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Thread: Two revision surgeries

  1. #1
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766

    Two revision surgeries

    Well I finally have some answers to what is causing some of my problems . I have my rods joined at about the t-10 or t11 area. I also have a cross connector in that area. I have had nerve problems in my left chest since the rods were joined. That was over 3 years ago. Well the latest ct scan showed a possible nerve being impinged at that area. At the end of August I will have t6 through t10 left hardware removed. The Dr will cut the rod and remove the screws, cross connector and the domino connector.( left side only). I will then (hopefully)have relief of the nerve pain in the chest wall.I am praying that this helps. It may also help the scapula move better also. The second problem is another cervical disc has ruptured into the spinal cord. I am already fused c5-6-7. This is c-4 . That surgery will be several months after the thoracic hardware removal. I am so glad to be able to find an answer to these problem. It sounds crazy but I will be happy to get relief from the pain and off of the meds!!! Amen! Jackie

  2. #2
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691
    Best of luck with both of your surgeries. Relief is in sight!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  3. #3
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,527
    Wow! I hope that this does it. It is frustrating to tell someone that you have pain and they cannot figure out where it is coming from.
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  4. #4
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I hope that you will get pain relief and that all goes well

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,555
    Jackie, its good to see a plan in place.......

    I have read about cross members in the past but cant remember why and when they use them. Maybe Linda would know? I have never seen any discussions on this subject matter here.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766
    Hi Ed, the cross connectors go between the right and left hardware. Now I have what the Dr calls domino connectors. I have 4 rods as first I was fused t10 to pelvis. I fractured t9 side days out of surgery.so then I was fused t2 to t10. They did not remove the original rod but put the new one along side of the first one. Then they connected them with what looks like a band of metal. This is the "domino connector". But my space between my vertebrae is limited. The Dr says that I am build too small. This area has always been a problem. They are to remove the left side only. I have a question. Do I get to keep the removed hardware?I would at least like to see it.

  7. #7
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Quote Originally Posted by jackieg412 View Post
    Hi Ed, the cross connectors go between the right and left hardware. Now I have what the Dr calls domino connectors. I have 4 rods as first I was fused t10 to pelvis. I fractured t9 side days out of surgery.so then I was fused t2 to t10. They did not remove the original rod but put the new one along side of the first one. Then they connected them with what looks like a band of metal. This is the "domino connector". But my space between my vertebrae is limited. The Dr says that I am build too small. This area has always been a problem. They are to remove the left side only. I have a question. Do I get to keep the removed hardware?I would at least like to see it.
    We use to routinely give patients any implants that were explanted, but I haven't seen that happening recently. I've been trying to give our Pathology lab to release a broken rod so I can send it to the manufacturer for analysis, but was told that all implants were sent to Pathology and that Pathology won't release them unless Risk Management approves it. I don't know if that's just UCSF policy, or if it's the common practice. No matter what, it can't hurt to ask your surgeon for the implants.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  8. #8
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,555
    What I mean is that you will see constructs like mine without cross connectors and some with one or a few. Companies might recommend a cross pc for certain parameters, with the surgeon making the final call. Its not like every T2-L3 construct has the exact same connectors in the same spots on every case. I noticed this years ago, especially with full fusions like mine, others has cross connectors and I didnít. Is the extra support worth having that extra pc of metal possibly causing havoc?

    Every surgeon has to weigh out every single pc of hardware thatís used. Every screw thatís driven in adds support, but at what cost? I had screws inserted on each level, but males have larger pedicles which make them easier to place.....The screws are driven in on angles due to anatomy and form a very strong triangular shape, almost like a tower. Iím wondering why these cross pcs are actually necessary?

    I hope its as simple as removing that one pc thatís causing all the pain.....It would be nice if this was an immediate thing but you know that healing has to happen and nerves can be stubborn when it comes to healing.

    Operate and wait and see. Thatís all we can do.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  9. #9
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,162
    When I had my revision for broken rods I also asked Dr Hart to take out the single pelvic screw I had. That left SI or screw area had bothered me since surgery. Since I was about 15 months post-op he said it would be fine to remove it. I asked him for it as a remembrance, and I did get it back. I still have it and look at it occasionally. It is pretty huge!

    It seems in general that patients don't usually get explanted things back. There is more resistance now about giving back items that have been in someone's body due to contamination with blood and body fluids. I work in invasive cardiology and we used to routinely offer patients their old pacemakers and defibrillator generators back when they got replaced. That practice has pretty much gone by the wayside.

    Jackie good luck with your upcoming surgeries! I really hope they are going to help you with your long-standing pain, and I'm glad you are finally getting some help.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  10. #10
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766
    Well I am just days away from surgery to remove parts of the hardware. I am off of some of meds and struggling with that but it should be over soon. It has taken a long time to get here . This part of the hardware has been there for over 3 years, and I have had issues for that long. I started getting serious about a solution last December. The doctor has always been straight forward about being reluctant to remove it. But the ctrl scan showed part of it is on the intercostal left nerve. I will be glad to have it get the chance to get better. This is still part of a workers comp case and the hospital wants 40,000 dollars upfront. Good luck with that!!! I am amazed that this small part of removal is to cost up to 60.000 dollars. I still need to call the legal part of this as I don't have that amount of money to pay up front. It isn't like I don't have additional insurance. Oh well just another hassle. I just don't want this cancelled. It has been so long to get this close.

  11. #11
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,162
    Hi Jackie,

    Best of luck in the coming days - I hope you can get all the financials dealt with and get the surgery done. You have waited so long to get some relief.

    Please let us know how everything goes.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  12. #12
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    All the very best to you Jackie. I hope this surgery is the last and you have a quick and smooth recovery.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #13
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766
    Well tomorrow should be the hardware removal day. It has been a long time coming. The hospital has asked for 40.000 dollars upfront. By the settlement contract I can not pay them until a bill occurs. So I can not give them that. My attorney has faxed a document to them that states that. I am liable for the funds to be paid a certain way. And risk a lot if I do it wrong. It will work out I am sure. But such aggravation!! Some how it just doesn't seem right. A deposit is one thing but that is even more than I was given.

  14. #14
    Join Date
    Feb 2014
    Posts
    99
    Good luck, Jackie! Not just with the surgery-I hope all the financials get settled quickly for you. You don't need that added stress right now. Will be thinking of you tomorrow and sending healing vibes so you may recover quickly.
    Surgery Jan 6, 2014 at 38 yrs
    Posterior Fusion T10-L4, osteotomy 1 lev.
    Pre op-Thoracolumbar Curve-50 degrees

  15. #15
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766
    First one done .so far so good°°°

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