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Thread: CSF leak post op

  1. #1
    Join Date
    May 2011
    Posts
    76

    CSF leak post op

    Does anyone here have first hand experience with a CSF leak post fusion? DD15's was 11 days ago, and while she suffered a rare CSF leak detected day three post surgery (small pedicles, screw nicked it during operation), it healed post op, and now 11 days post op has recurred. She is on strict bed rest for two days, increased fluids and caffeine.

    Recovery has been very rough. Rougher than we expected in terms of pain. But as soon as her back pain began to subside, she was hit with the spinal headaches which is a mother of thing. She cannot sit up for ten seconds. Dreadful pain, Excruciating.

    Surgeon. neurosurgeon, head of ortho etc all involved and watching and treating at home now, potentially in hospital if not resolved by Monday.

    Thanks in advance for any BTDT

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    I donít, but there could be posts if you search....this is a very rare thing.

    I wouldnít hesitate taking her back to the hospital if need be....try to stay strong through all of this.

    Iím so sorry this happened. The surgeons will make things right....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,793
    CSF leaks are pretty common in revision surgery, but not very common in primary surgery in kids or adults. They are, however, one of the more common complications. In the short term, I understand they can be very frustrating. The good news is that it can be fixed. Hopefully, they'll do something (a blood patch probably) tomorrow. Hang in there.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  4. #4
    Join Date
    May 2011
    Posts
    76
    We are back in hospital today with CT scan tomorrow. Surgeon thinks a small tear seen during surgery but which sealed during surgery may have reopened. Some issue with abnormally small pedicles and screw position. Ugh

  5. #5
    Join Date
    Mar 2010
    Posts
    2,755
    I wish your daughter well and you some peace of mind.
    It's horrible being a mom and seeing your child suffer.
    Linda is so reassuring. She pretty much knows what they will do.
    Please keep us informed.

    (((HUGS)))
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  6. #6
    Join Date
    May 2011
    Posts
    76
    Blood patch deemed not recommended based on location of leak (T4-T6) and a lumbar drain is being used to decrease pressure and allow for the site to heal.

    resting comfortably in hospital but will be here another 4 days at least.

    Poor kid is ready to get on with her life and now this.

  7. #7
    Join Date
    May 2011
    Posts
    76
    Home after 11 days in the hospital. Leak repaired. Much less pain now..no painkillers at all in almost two weeks. Glad that's DONE.

  8. #8
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Wow! Such good news!

    Deep breaths....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  9. #9
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Great news! Onward and upward.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  10. #10
    Join Date
    Mar 2010
    Posts
    2,755
    Wow! There needs to be a "like" button. LOL
    I'm really happy for you both!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

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