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Thread: Telephone call

  1. #61
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570
    Quote Originally Posted by lordswild View Post
    Jess

    I can see that my remarks about pain were not clear...

    I have become increasingly concerned about the fact that there are those who still have pain and some who seem to now have pain that did not previously...

    Maybe I am being naive, but I thought most or all of the pain would be eliminated with surgery. And maybe this is the case but I am not seeing that spelled out...

    Martha
    Martha,

    My doctor told me that there are no guarantees and she even asked me what would I think if I end up in more pain than before. She told me that some of her patients reported that they traded one pain for another. I was lucky - all my presurgical low back pain is gone, but I have some issues with my right leg... it tingles when I am in bed and feels a little off. I didn't have that before the surgery...
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  2. #62
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,573
    There is no guarantee concerning the alleviation of pain with fusion surgery. There are statistics about patients after scoliosis fusion that have more, less, and the same pain. I do not remember them, but they are no doubt many places on this forum.

    I am very pleased with my surgical results and my preop pain which truly limited my quality of life was alleviated with the surgery.

    Good luck, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  3. #63
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Scoliosis surgery is not to take away pain. It is to stop progression of your curves

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  4. #64
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,573
    Melissa,

    Scoliosis comes in many forms with many etiologies. Since my scoliosis was secondary to multiple degenerative/ stenotic processes in my spinal vertebrae, my surgery was to alleviate pain. The only reason that I was admitted to the "Scoliosis Club" was because my discs collapsed asymmetrically. If they had collapsed symetrically, i would just be 4 feet tall and in pain. Certainly, there may have been a future worsening of my curve with time on the future, I doubt that it would have progressed a whole lot. The possibility of future degeneration in my spine seems inevitable, especially with my osteoporosis ( the Bain of many aging folks). Most of my surgery involved repair and rebuild while maintaining function.

    I remember many conversations on line here with many of you who seemed to me to wonder why I was even in pain, much less seeking a surgical resolution. When I asked my surgeon on a scale of 1 to 10, how difficult did she say that my spinal surgery wold be and she said, "8". That blew me away from what I understood from this Forum.

    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

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