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  1. #1
    Join Date
    Jan 2012
    Posts
    55

    Telephone call

    Monday morning bright and early I received a telephone message from Dana--Dr. Arlet's PA and assistant...

    She stated that Dr. Arlet was not going to perform my surgery. She said "it is too expensive" and that I "would probably not make it off the table". She further said something to the effect that Dr. Arlet had a reputation to uphold.

    She said I could go to another surgeon if I wanted to but they would only make me sign a DNR to perform the surgery.

    She would not/could not give me a specific reason for this other than my age and the intricate/complex surgery that would take ten hours.

    I call placed to my GP--the one thing that every doctor has to say about me medically is the high quality of my health. Other than this scoliosis issue and some hernias (probably from the 2010 hernia repair, etc.), I do not have any problems. My bones are normal, my heart is normal, etc--I take HRT and thyroid meds and now pain meds along with multiple vitamins--nothing else. I carry Allegra and an Epipen.

    If you know of a surgeon who operates on the 70's-age-with a curve of 70 in 2012, please reply.

    Thank you

  2. #2
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Where do you live?

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #3
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Definitely a second opinion required! You do not want a surgeon who feels he's not up to the job, because he probably isn't. Best of luck!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  4. #4
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Oh my, I'm so sorry to hear about your phone call. I re-read some of your earlier posts to see when you'd been scheduled. I'm thinking he wasn't the right surgeon for you, all along! You had some doubts. . . Could this be a blessing? It's got to be hard to look at it that way - you've been thinking & planning. It probably feels as though a rug has been pulled out from under you! You need a doctor who is confident in his/her skills for your needs. I 'get' that you may be a high risk patient, but the 'reputation' part was uncalled for.
    I'm going to St. Louis for my surgery because after a year+ of searching, I couldn't find anyone in or near Ohio. There are many good back surgeons who do fusions, but finding a scoliosis specialist has been challenging.
    Good luck to you!
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  5. #5
    Join Date
    Jan 2012
    Posts
    55
    Quote Originally Posted by mabeckoff View Post
    Where do you live?

    Melissa

    I live in NC on the NC/SC border--about 50 miles from Wilmington and 40 from Myrtle Beach...

  6. #6
    Join Date
    Jun 2006
    Location
    Texas
    Posts
    137
    oh how terribly disappointing. and to hear it the way you did- with what you remembered Dana the PA saying- oh! As if you are such a high risk case... you know, when my husband & I were trying to conceive, we went to infertility cinics and we were told a smiliar message- "the clinic has a 90% success rate and you do not fit the candidate status we are looking for". So in other words- the reason those clinics had a high success rate is because they would not accept couples with actual bonafide infertility issues. sort of the message you received./ I am so sorry for this set back, it's not as if you "want" this surgery, but you are choosing to be pro-active and take control of the scoliosis while you still can. I pray you find a good qualified surgeon you can trust. Soon. so sorry you must start the search again.... Jamie in TX
    57 years old.
    thoracic curve 68 degrees
    lumbar-sacral curve +/- 41 degrees
    Cspine C3- C7 fusion Nov. 2011 <done! success!!>, then scoli surgery T2- L4 or maybe to sacrum.
    Discogram/ myelogram pending. Surgery to be scheduled, maybe fall 2015. <scared but I know this is not going to get better>
    THANKS TO EVERYONE FOR SHARING EXPERIENCES AND KNOWLEDGE!

  7. #7
    Join Date
    Jan 2012
    Posts
    55
    Peg

    That's just it--my health has never been in question by any other doctor--Brigham, Kurd (who took over for Brigham) or Hey--and especially by any of my routine doctors--and it was never in question when I went to Phil.

    It has always been just the opposite...

  8. #8
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    I would strongly suggest Dr Lloyd Hey in NC.
    He is an excellent surgeon

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  9. #9
    Join Date
    May 2010
    Posts
    348
    Hi,
    I don't know for sure if you have read any of my posts. I can tell you I had a very severe spinal deformity called "Flatback syndrome, a saggital imbalance. I had three surgeries and things kept getting worse. I was bent over 45degrees and the pain was excruciating. I kept seeing Dr. Lenke's name on this web site.
    I was seeing a spinal surgeon at university of Minn. Spine Center. Butt they were only telling me I would more than likely end up in a wheel chair. I saw Dr. Lenke's web site and read all about some of his technekes he used. But he only takes the most serious of situations.
    So I sent in my records to his medical asst. and within a couple weeks I was in. I had to see him once(13hrs one way). He scheduled me for surgery on Oct. 31st 2013. And all is great. There's more to the story, but I just think ou owe it to yourself to see this man. I was 60yrs. Old. I know he does any age as long as they can withstand the surgery.he's located in St. Lewis Mo. At the Univ. of Washington. Center for Advanced Medicine. If you have any questions I would be glad to answer. My surgery was 15 hrs. long. He is in my book , someone to go to if you are in a desperate situation. Hoping the best for you!! Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

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