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Thread: Avoiding scoliosis revision surgery

  1. #16
    Join Date
    Aug 2012
    Location
    San Francicsco Bay Area
    Posts
    127

    Alternative to fusion to the sacrum

    Well I have finally found my surgical alternative to being fused to the sacrum. It is a temporary alternative, but it will last several years hopefully. I will post more info later.

    Thanks,

    T1

  2. #17
    Join Date
    Mar 2008
    Location
    Chicago-"land"
    Posts
    157

    Whelp....I have to make the best of it.

    My disc at L5/S1 is a goner, along with progressive scoli and kyphosis that makes me look like an old woman. I don't have a choice in regard to fusion to the sacrum.

    I'm so sorry you're feeling bitter. Wow - I know that feeling so well. "If I had just done this instead" "If I had just picked another doctor".....and on and on. Bitterness will eat me up so I try not to go there but I do relate to your feelings and they are valid.

    I don't WANT to go to the sacrum, that's why I didn't do it in the first place, but I should have. I hear good and bad but most of being fused to the sacrum is just damn difficult and I am thinking it's how you approach things that will make the difference. (Someone please tell me a good attitude is critical!)

    I can't walk far, nor straighten my legs whatsoever. I can't stand longer than 3/4 mins without pain. If I don't get fused to the sacrum, I'm in a wheelchair, and I don't want that.

    I know it's going to be hard to adjust but the trade off is I'll be straight and able to walk. I had forgotton about difficulty in wiping (there simply has be be a way to do it for pete's sake), but I don't care what I look like getting up from the floor, just as long as I can do it. Perhaps if I were 25 it would bother me more but the thought of strolling a mall again, eventually, sounds pretty good to me. I'll start working on squats now

    I just can't figure out what "rolling in and out of bed" means!! ha ha!
    Last edited by Chihuahua Mama; 10-23-2014 at 11:14 PM. Reason: typo
    Susan
    XLIF/Posterior Surgery 6/16/08. Fused T10-L5 in CA by Dr. Michael Kropf (don't go there unless it's simple, I hear he's at Cedar's now). Very deformed, had revision w/5 PSO's, rods from T-3 to sacrum including iliac screws, all posterior, 5/23/16 with Dr. Purnendu Gupta of Chicago.


    Owner of Chachi the Chihuahua, So Cal born and bred, now a resident of 'Chicagoland' Illinois. Uh, dislike it here....thank God there was ONE excellent spine surgeon in this area.

  3. #18
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    Susan, your physical therapist in the hospital will teach you to logroll. It is basically to sit at the edge of the bed (and gauge how far your head needs for room to go to the pillow), use your hand as a brace as your head goes toward your pillow and your legs and feet go to the other end. You are now on your side. Then you just roll onto your back. Easy peasy. It's very simple after your try it a few times. To get up you just do the reverse. The main thing is that you don't want to bend your body and this does the trick. Actually, I think some doctors have you learn how to do it in advance so you won't be having to learn just after the surgery.
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

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