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Thread: coming back

  1. #1
    Join Date
    Sep 2012
    Location
    Pawtucket RI
    Posts
    46

    coming back

    Hi everyone! I'm not sure who remembers me since I've been gone about a year and a half. I had my spinal fusion with instrumentation from T3 to L5 as scheduled on 1/3/13. Dr Eberson (pedi scoliosis dr) did majority of surgery with Dr Robertson (adult spine dr) assisting. It's been a rough recovery for me to say the least but along with my physical recovery I ended up hooked on all of my pain meds which is why I kind of disappeared for a while. I'm now about 9 months clean and not even taking aspirin for pain. I'm in so much pain on a daily basis and was have a big open area near my 19 inch incision line which came out of nowhere along with 2 smaller open areas also on my back. Has anyone else had anything like this happen? Also at the top of my incision line there's a few big visible bumps which are painful. Not sure if they are vertebrae or screws or what? ?? I did have to get an additional 6 units if blood given to me on top of the 2 units I donated to myself. ..not sure if that could be causing the open areas? They came out of nowhere after my long incision healed. Also I was wondering if anyone had any suggestions concerning pain that doesn't include a narcotic. I'll try anything at this point. I'm 39 and can barely stand up long or some days even get out of bed. And sleep? Not more than 2 or 3 hours at a time then I wake up from the pain like the rods are digging into me and need to reposition myself. Any suggestions would be greatly appreciated!! I'm just really struggling and very uncomfortable. My surgery did achieve a 80% correction which is incredible as even my cosmetic deformity was horrible abd my right rib cage was collapsed onto my pelvis which is now lifted and im almost completely straight except for a 20* curve but absolutely NO more deformity! I hope everyone has been well and look forward to any feedback! Thanks!!
    38 yo with 71* left thoracolumbar curve from untreated AIS dx'd @ age 10. Surgery on for Jan 3, 2013 with Dr.'s Robertson and http://i30.photobucket.com/albums/c3...ps321159d8.jpg. Spinal Fusion with instrumentation from T2-L4.

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,332
    Please have your surgeons evaluate you for infection on the hardware. I think that is consistent with the wound opening and there being pain. When do you see them again?

    Your pain might be all related to an infection. Hopefully they can solve whatever the issue is.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,119
    When was that photo taken? If that's recent, and your surgery was over a year ago, that's a problem.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  4. #4
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,104
    Quote Originally Posted by Jennilee View Post
    I'm in so much pain on a daily basis and was have a big open area near my 19 inch incision line which came out of nowhere along with 2 smaller open areas also on my back. Has anyone else had anything like this happen?
    Jennilee, This doesn’t sound good at all.... Open areas are signs of infection, I wouldn’t play around with this at all....not for a minute.

    I had detailed incision forms given to me and was told to inspect often. If there was anything funky going on at all, I was to come down immediately. This was in BOLD print! 1/2” Letters. Funny how the important things were in such large bold print. No matter what meds your on, you can see it.


    I’m so sorry you have been having such a hard time...

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #5
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,332
    I debated about saying this but I will say it... if you can't get an emergency appt with your surgeons then you should walk into the ER of that hospital in my opinion and get seen by a specialist. Scars are not supposed to look like that.

    Don't mess around with urgent care... go back to the hospital where you were fused.

    If it is an infection brewing for a year then it is an emergency in my opinion.

    When is the last time you had a check up and what did the surgeon say?
    Last edited by Pooka1; 06-13-2014 at 07:59 AM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #6
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,588
    Get thee to a doctor! You were addicted to pain meds because you were in pain! Your problems are not in your head. Being in bed and having a poor quality of life is not usual...not even close.

    You need help. I am worried about you! Let us know how you are doing. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  7. #7
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    854
    Hi Jennifer,Looking at the picture of your scar ___I just have a question---do you use a heating pad? I was able to pull a part ok my scar off by burning it with a heating pad. It was not as long as yours but if you are using a heating pad do be careful The skin does not have total feeling. I do agree that you should have it checked. Let us know.

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