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Thread: Scoliosis testing in schoole. nurses who fail to detect

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  1. #1
    Join Date
    Apr 2004
    Location
    new jersey
    Posts
    323

    Scoliosis testing in schoole. nurses who fail to detect

    Hi,
    I'm in a delima, Fortune goes to a private school, and she had her first fitting for a boston brace yesterday. Just so happens today at school the nurses were checking for scolioss...They failed to notice her curve, they told her to keep her shoulders straight duh....and they failed to read the permission slip which states a strong family history...This is not the first time this happened...the school failed to see it in my other children...
    Question....How good R these scoliu screening in schools..?
    What requirements do the nurses have ?
    Do they have to take a special class to detect scoliosis....??
    If I had to rely on the school nurses, ....
    ?????
    CONNIE


    Surgery June 28th 2004
    fused T4 -L3
    Hip graft
    Grown 1 1/2 inches
    25/o upper T 15/o
    53/o T 15/o
    37/o L 6/o
    Dr. Micheal Nuewirth
    New York City

    August 6, 2004
    Pulmonary Embolism
    complication from surgery

    January 2007 currently
    increasing pain at the T4/5
    point irratation heardwear

  2. #2
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    school screening

    I just spoke to my sister-in-law who is a retired NJ school nurse. In NJ the school nurses in the public schools get a certificate in scoliosis screening. This requires taking a special course. I do not know whether this holds true in the private schools.
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  3. #3
    Join Date
    Apr 2004
    Location
    new jersey
    Posts
    323
    Karen,
    Do you have any suggestion on how I can get involved in getting better quality screening for my childrens school? What agency can I call to get these nurses certified? Does scoliosis have any genetic links to living locality? or nationality? Do you have a percenage list in where its high and where scoli is seen at its lowest?..... I think I want to volunteer and help the nurses in my school...
    Last edited by spincon58; 02-23-2005 at 05:46 PM.
    CONNIE


    Surgery June 28th 2004
    fused T4 -L3
    Hip graft
    Grown 1 1/2 inches
    25/o upper T 15/o
    53/o T 15/o
    37/o L 6/o
    Dr. Micheal Nuewirth
    New York City

    August 6, 2004
    Pulmonary Embolism
    complication from surgery

    January 2007 currently
    increasing pain at the T4/5
    point irratation heardwear

  4. #4
    Join Date
    May 2004
    Location
    Houston, Texas now live in Colorado Springs, CO
    Posts
    543
    Connie,

    I can tell you, from someone working in a school, they always welcome help. In our school we have one school nurse who has to see about 900 children in grades PK to 5th grade. They are so overworked!! They also have to screen every student each year for hearing and vision, review all immunizations, not counting the day to day problems and children coming to school sick with fever, throwing up, and some parents using the school nurse in place of taking their child to the doctor for ringworm, lice, etc. Our schools have high school students that are training in the health profession that come over to help for half a day about 4 days a week. Maybe you can check out some of the scoliosis clinics or doctors about doing some school screenings. I know during the flu season we have help come in from the county health department to give flu shots, maybe they could also come in to do scoli screenings?
    Theresa

    April 8 & 12, 2004 - Anterior/Posterior surgery 15 hours & 7 hours
    Thorasic - 79 degree down to 22
    Lumbar - 44 degree down to 18
    Fused T2 to sacrum
    June 2, 2005 - Pedicle subtraction osteotomy @L3 7 hours
    MAY 21, 2007 - Pedicle subtraction osteotomy @ L2, extended the fusion to S2 and added pelvic instrumentation 9 hours

    FUSED T2 - SACRUM 2

  5. #5
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    school screenings

    I suggest contacting the school principal and/or school board.
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  6. #6
    Join Date
    Apr 2004
    Location
    new jersey
    Posts
    323
    I spoke to the nurse and asked her to recheck my duaghter for a learning lesson so they can see her scoliosis...She said she watches a film and takes a class.....so thats that..
    CONNIE


    Surgery June 28th 2004
    fused T4 -L3
    Hip graft
    Grown 1 1/2 inches
    25/o upper T 15/o
    53/o T 15/o
    37/o L 6/o
    Dr. Micheal Nuewirth
    New York City

    August 6, 2004
    Pulmonary Embolism
    complication from surgery

    January 2007 currently
    increasing pain at the T4/5
    point irratation heardwear

  7. #7
    Join Date
    Feb 2004
    Location
    Perth, Western Australia, Australia
    Posts
    299
    How did Fortune's fitting go Connie?

    I think I have one of the classic lines from a scoliosis screening. Up until the late 80's, they still did routine scoli checks. I was in Kindy in the late 80's and was wearing my brace 23/24 hours a day.

    You would think they'd a diagnosis of scoliosis would be pretty obvious, but nup, my Scoliosis check diagnosis was: SPINE STRAIGHT.

    And did my mum had a go at the school nurse for that one.

    Still makes me wonder and shake my head in disbelief.......

    Alison

  8. #8
    Mary Lou Guest
    It's funny that this post is active right now. The other day I ran into a woman who was giving me the third degree about Jamie's Scoliosis. She knew Jamie had been in the hospital but didn't know what she was in for. I told her about her Kyphoscoliosis and explained what they both were. She didn't seem to have a clue what I was talking about! She asked me why I didn't notice Jamie's Scoliosis. (as though all of us parents haven't questioned ourselves). She has two daughters so I asked her when was the last time either of her daughters had an x-ray of their back. She said never. I then asked her when was the last time she saw her 13. y.o. daughter in a bathing suit bending over, touching her toes and if she examined her back at that time and she had no clue when she saw her daughter in that position and she also told me she never checks her daughters' backs. I told her those were the two easiest ways to see Scoliosis. I told her thank God our family doctor checks my daughter yearly and she seemed like her doctor didn't check her girls. I was so mad!

    I questioned our middle school nurse and was informed they check our girls in seventh grade. Jamie was diagnosed in August before her seventh grade year, so what if Jamie hadn't been diagnosed and was absent the day of the testing? She could have gone untreated for another year until her next yearly check up with our doctor. I called the high school today out of curiosity and aske if they check the girls in high school. I was basically told they don't and that they are required to get a physical in sixth and eleventh grades and that their family doctors should check them and besides, they are required to have a physical in order to play sports. I asked,what about my girls who aren't into sports, but are in the band and aren't required to have a physical? She didn't have an answer for me. What about the kids who never go to the doctor?

    Thank you for listening to me ramble on. This just has me so frustrated! Sure, most girls are skeletally mature by eleventh grade, but my daughter is also skeletally mature, but her curve still progressed. I need to figure out a way to get the word out to other parents in our schoo district. Besides my daughter there is another child who had spinal fusion w/instrumentation this year and at least one other girl (all three kids are eighth graders) who wears a Boston brace, so it should be an important issue in our school.

    Mary Lou

  9. #9
    Join Date
    Jan 2005
    Location
    Northeastern Oregon
    Posts
    515
    Here's how I feel:

    All three of my daughters play sports. All three of them are required to have sports physical's every other year. Guess what, they were never diagnosed at school or at their sports physicals. They all even went to a chiropractor on a regular basis to get their bones aligned, which was wasted money, because you can't fix this with a chiropractor. The chiropractor even missed it. My oldest daughter, Crystal, surgery March 15, even asked the chiropractor about it. She was just told she had lazy posture and so did her little sister. When Crystal would have to have chest x-rays because of her asthma, doctors would ask her if she had ever injured her back. Her response would be no, and the doctor wouldn't suggest anything else. So, even our medical profession missed it. The one that said something was a parent that I know that has a child with scoliosis. She even recommended a doctor for us to take Crystal for a Shriner referral.

    I guess my thought is this: Those of us with this problem to deal with need to educate the rest of them, even the professionals. Because, they do miss it. And they missed it on all three of my kids, numerous times. I find I look at almost every kid now and see if they stand straight, etc.

    I'll get off my soap box now.

    'til later.
    Nikki

  10. #10
    Join Date
    Mar 2005
    Location
    Louisiana
    Posts
    16

    no school testing

    i went to private elementary school, in new orleans, where there is no scoliosis testing. it is such a shame that my parents paid so much money and there was no testing for this nor was there an official school nurse! they did have a secretary who handed out bandaids and ice packs which i dont think counts!

    anyways, even my pediatrician, who i visited regularly, never noticed my scoliosis. they never wven checked me for it! my mom noticed my scoliois and by the time i went to the doc for it my curve was an outragous 46%.

    eventually, i had to have surgery and no have to live withthe scar down my back. i dont mind it much , but what i do mind is the fact that the doctor never checked me for it! ...i dont see that doctor anymore!!!
    ---Alicia---

    Age: 16
    Scolioisis surgery: 6/26/03
    We're coming back bigger and better than ever!
    <3 *NOLA* <3
    Sincere Thanks to all who donated to the hurricane relief funds!

  11. #11
    Join Date
    Jul 2005
    Location
    Philadelphia, PA
    Posts
    29
    I never actually had scoliosis screening done at my school, because i had already had fusion at that point (seventh grade). however, i found from friends that you bend over and they look at your back (i imagine to look for a rib hump) and make an analysis. if they believe someone may have it, they contact their parents. the tests aren't very accurate because they thought one of my friends had scoliosis and she didn't, and by the time i would have been tested in school, i probably would have died.

    my scoliosis was 'discovered' by my doctor during a physical when i was eight-ish, and by that point it was already pretty far along, but i don't remember the exact curves.
    Marlana
    16, Senior
    Spina Bifida
    Boston Brace for 2 years
    Spinal Fusion July 25, 2002
    Post-Op Brace for 6 months

  12. #12
    Join Date
    Nov 2008
    Location
    Ohio, USA
    Posts
    4
    They do not, never did, and as far as I know aren't going to have any scoliosis testing in my school. I think they should, though.
    I don't think of my back brace as a disadvantage.

    I think of it as something that will help me, and I am fortunate to have the oppurtunity to fix my scoliosis.

  13. #13
    Join Date
    Jul 2006
    Location
    Chelsea, MI
    Posts
    49

    Do it right or don't do it...

    My daughter was screened by 3 pediatricians and twice in the
    middle school and was told she did not have scoliosis - imagine
    my surprise when standing in the front yard, someone besides
    me noticed it, we finally insisted on an XRay, and were told ~45T/45L.
    To cut the screeners a little slack, I do think the kids without
    increased thoracic kiphosis and smaller degrees of rotation are harder to
    spot. Also, the dancers are taught to bend from the hips, not
    their spines and can fool imprecise screeners for quite a while.

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