If you got on disability (SSD or SSI), don't you have medicaid AND medicare? As far as I know you don't need referrals unless the provider you are trying to see doesn't accept your insurance. I made my own appointment with a specialist (not for back) when I was having trouble with another issue. I had medicaid at the time. I didn't have a problem. I did, however, ask my PCP/GP (my regular doctor) to send in a referral after the fact just to cover my bases. He did, but it wasn't necessary. You need to tell the provider what insurance/s you have and find out from their financial department if you really do need a referral. If you don't need a referral, then you can quit wasting your time waiting for one. Usually if you have medicare, you can go anywhere that accepts medicare. The same with medicaid. Make a few calls and MAKE SURE. You could be wasting valuable time. You need to be dealing with the financial departments of these doctor's offices. Some doctor's automatically assume you need a referral. That's the way it is if you have an HMO. HMO's only allow you to see doctor's within their network. Even then, I've found out that I don't need a referral IF I go within my own network. I used to waste a lot of time waiting for the referral letters to go through. Now I just make appointments within my network if I feel I need to see a specialist. My insurance has always paid.
1985 - Dx w/ painful AIS at 16 with 39* upper LEFT thoracic single curve.
2000 - 41*
2010 - 46* (T1 - T6) 38* (T6-L2) Now a double thoracic
2012 - Dx w/ Cervical Muscle Dystonia.
DDD L5/S1 with left nerve impingement
Left SI joint dysfunction