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Thread: cant find a doc

  1. #1
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    May 2013
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    32

    Question cant find a doc

    my name is cody,ive been diagnosed with severe scoliosis,my disc has collapsed,my hip is elevated higher on one side than the other,its causing pain in my joint down my leg to my ankle,the doctor said my ribs are twisted which causes the rib pain and my muscles and slightly pinched or something like that which is causing muscle spasms,im on a muscle relaxer that dosent do much,i finally got on disability due to it all,the thing is im on ga medicaid and cant find a spine doctor around me,my zip code is 30711 if anybody knows a place that would help me,thanks

  2. #2
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    May 2009
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    3,580
    if you are on disability, are you not on Medicare, which
    would give you medical care....???
    not the greatest in the world for choosing surgeon maybe,
    but it is there for help...
    ????????????????
    how severe is your severe...?
    asking cause i have hip pain too...bursitis in hip caused by the scoliosis....got first shot for it Friday and it helped....very pleased about that...

    jess

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    983
    Hi,

    here is a search from the Scoliosis Research Society…I don't know anything about any of them but maybe it's a start. Am I correct that you are in Georgia? Do you have a Care Coordinator who might be able to help you?

    Results (Page 1 of 1)
    Dheera Ananthakrishnan, MD, MSE
    Emory University
    59 Executive Park South
    Suite 3000
    Altanta, GA 30329 United States
    Phone: (404) 778-6306
    Fax: (404) 778-6376
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions

    Justin V. Bundy, MD
    Augusta Orthopedics & Sports Specialists
    3650 J Dewey Circle
    Augusta, GA 30909 United States
    Phone: 706-863-9797
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions

    John Kenneth Burkus, MD
    Hughston Orthopaedic Clinic
    PO Box 9517
    6262 Veterans Pkwy
    Columbus, GA 31908-9517
    Phone: (706) 494-3305
    Fax: (706) 494-3105
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions, Juvenile/Infantile

    William C. Horton, MD
    Emory Orthopaedics & Spine Center
    59 Executive Park South, Suite 3000
    Atlanta, GA 30329
    Phone: (404) 778-7115
    Fax: (404) 778-6378
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions, Juvenile/Infantile

    Stephen B. James, DO
    1100 Northside Forsyth Drive
    Suite #340
    Cumming, GA 30041
    Phone: (770) 886-8111
    Fax: 678-341-6788
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions

    James R. Malcolm, MD
    Pinnacle Orthopaedics
    300 Tower Road, Suite 200
    Marietta, GA 30060
    Phone: (770) 427-5717
    Fax: (770) 429-6503
    Http://Pinnacle-Ortho.Com
    Specialties: Adolescent, Adult Scoliosis, Aging Spine, Degenerative Conditions
    Gayle, age 46
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  4. #4
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    May 2013
    Posts
    32
    leahdragon fly thanks for the help and yes im in ga,and jrnyc mine does cause hip pain,it feels like my joint is rubbing together,also my knee hurts down to my ankle,all on the right side,is bascially ribs down to my ankle,i went to a orthopedic doc for my ankle and she said 99% of xrays she looks at people say they were diagnosed with scoliosis but actually didnt have it,she said its overly diagnosed but with me she said its severe,its one of the worst ones she has looked at,she says i need to see a spine specialist soon,im having spasms were my curve is,idk what they can do to fix my hip,back,and ribs,and nope they put me on medicaid and leahdragonfly ive never heard of a care cooridnator,how do i find out if i have one?

  5. #5
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    May 2009
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    3,580
    what degree curve do you have....?
    are you curved top of spine, bottom, both....?

    i hope you find a surgeon who takes your medicaid...
    having govt coverage is not the best, sometimes it is all
    one can manage...

    i got relief from hip pain from steroid shot...
    i stopped shots for 2 years after it caused a reaction where
    cortisol dropped to zero and i was exhausted, like mono...
    that was caused by too much steroid to spine...i got alot of shots
    for back pain....too many...

    i hope you can find help with pain while you search for doctor...
    i tolerated my hip pain for almost a year now before i got
    shot in desperation....now i need my blood checked for cortisol
    reading in a few weeks...

    good luck
    jess

  6. #6
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    May 2013
    Posts
    32
    jrnyc she said they didnt have a way to tell me my angle cause they dont specialize in spines,she said the nearest doctor is easy a hr and a half away,i ask her how is a person suppose to beable to run that far alot,on latest report it said lower lumbar,i guess it means my lower back,one doctor i seen for my disability review said he dosent recomend it and a brace wouldnt help so what do i do,im 20 how can somebody live like this,i have to either stay in bed or a recliner now as it is

  7. #7
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    May 2009
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    3,580
    yes....you need to get help
    why not look for more than one doctor at a time...??
    a pain doctor might be able to help you with the pain...
    that way you might be able to get up out of bed or off
    recliner....
    i sympathize with you....i have lived with this most of my
    life, as have many....and i am waaay older than you are.
    not saying you shouldn't treat it and investigate surgery,
    but suggest address the pain right now....
    pain management doctors can help.
    and a scoliosis specialist can measure your curve(s) and tell
    you exactly what you are dealing with.

    can you post your X rays here???

    jess

  8. #8
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    May 2013
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    32
    Oh I am looking for pain doctor,I haven't had Medicaid to long,it went into effect on the 1st,I can save the X-rays off my cd,they are from may of last year,I've had some say it ain't bad,but they don't know how it is,can I post links from photobucket on here?,I guess they don't want to give any pain meds to a person so young,they gave me inflammatory pills that are called mobic which dosent help

  9. #9
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    May 2009
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    3,580
    how old are you...?
    are you under 18? under 21?
    do you need some kind of parental consent...?

    pain is pain...young people feel it too...
    they tend to bounce back from surgery faster than older
    people...but they certainly feel pain like anyone else...

    no doctor wants any patient becoming dependent on pain meds...
    but, in my lay person experience, a good pain doc will treat the symptoms, try to address cause, while you can look for surgeon at same time...
    i have had many different kinds of pain treatment....from shots,
    to pills, to patches, to nerve ablation, etc....with differing success.

    jess

  10. #10
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    May 2013
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    32
    Some forums don't allow links to other website so I was asking before I did it,I'm 20

  11. #11
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    May 2013
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    32
    I'll post them here soon

  12. #12
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    May 2009
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    3,580
    i think you need a pain doctor who knows his business...
    of course they do not want to see a 20 year old become
    dependent on pain meds...
    but no one wants to leave you in pain so you cannot
    get off the couch and function...at least, in my experience
    with pain doctors they wouldn't....now is when you are
    supposed to be doing so many things in your life...
    not be unable to move or enjoy or pursue your dreams.

    i am wondering if you have ever had a chance to discuss
    treatment options with a doctor??...there are shots a doctor
    might try, if he/she thought it could help you....not just pain
    meds...
    the good news about your age is that should you have surgery,
    your age might help you recover and heal faster....

    jess

  13. #13
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    i did see a doctor in eith 07 or 08 but lost my insurance and couldnt go back,i didnt realize how bad it was until 2010 when i went to work at the dollar general and after a few days had to quit,it feels like pressure is pushed down on my spine while standing,could my spine be pressing on nerves and making my legs semi numb?,im googling and trying to find a pain managment doctor,i toss and turn all night,i go from right side to back to left side and back again,i cant lift heavy stuff,it hurts holding my 25lb nephew and hes alway wanting me to and i cant cause of it,i wish they made a brace to keep my torso pulled up to keep the pressure off of it,here are my xrays http://i1121.photobucket.com/albums/...ps244099f6.png http://i1121.photobucket.com/albums/...pseb0a4ec9.png im not to sure if it could have got worse since then
    Last edited by Pontiacgp; 01-30-2014 at 03:25 PM.

  14. #14
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    3,580

    i cannot tell from your Xray how big the curve is...
    you might want to ask Linda Racine, the moderator of this forum, what she thinks about your X rays....she works in a scoli unit
    of a big hospital in CA...you can send her a private message if you
    wish to...

    in my own experience, numbness usually means nerves are involved...that is what i know as a patient, and was told by doctors when i had numbness years ago from Lyme disease. i am used to living with a curve that is now 70 degrees on the bottom and 42 on top....i did well until i herniated discs in my lower spine....until then, i held down a full time job in Manhattan, went to school part time nites and wkends....and went to the gym. since herniating discs it was downhill all the way for me...

    you have youth on your side...which may not sound like alot, but it will be if you need the strength to recover from future surgery....
    for now, i would concentrate on finding doctors who take the medical insurance you have....and getting out of pain might be a first concern....
    i do know injections work better for nerve related pain than for structural related pain....that was told to me by two top scoli doctors...they thought my pain was more structurally related than nerve related, and i didn't get as much help from shots as they hoped....until i got a shot in left hip last week...it worked like a charm to kill the pain in left hip that i lived with for almost a year!

    jess

  15. #15
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    do you have bad discs at age 20??
    i hope not....
    ???

    jess

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