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Thread: almost 2 years post op...both rods are broken

  1. #31
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,503
    Spring,
    I hope everything went well with your surgery today and that you have a smooth recovery. I'm so sorry that this happened to you. Linda and Gayle have both experienced revision surgery and have to be an inspiration to you since they are doing so well. Please post when you are able. Sending gentle hugs your way.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 63
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  2. #32
    Join Date
    May 2010
    Posts
    245

    Healing Prayers!

    Spring,
    Just want you to know you are in my thoughts and prayers . Now that the surgery is over, let the healing begin~One day at a time. You can do this Spring! You're strong! And it gets better before you know it! I hope the pain control is working. Bye for now~~~Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Am awaiting surgery with Dr. Lenke(Oct. 29th,2012) at Washington University in St. Louis, Mo. He will fix my saggital imbalance.

  3. #33
    Join Date
    Jul 2010
    Location
    Dubuque, Iowa
    Posts
    59
    Hello! I have made it through once again. Surgery took 5 hrs, all went smoothly. When they got in they found 2 more areas of non-union, so it had failed at L3-L4-L5 and S1. I had constant pain in that area ever since the original surgery.I got to keep the old hardware, it is really neat to see and feel it. This is certainly no walk in the park but it is not even close to being as bad as the original fusion. I should be going home tomorrow, still having some pain control issues but only during the night. I have to wear a brace this time for 3 months which I hate already.The pain I had prior to this surgery for the past 5 weeks from the broken rods is completely GONE! I stand straight up again, I am so happy and thankful for that. All the pain I have now is all surgical pain. I gained 10 lbs before surgery from inactivity, hopefully I lose that quickly, my appetite is poor due to indigestion/heartburn...not sure why that is. No more I V's today...one step closer to home. Thank you for all of your well wishes!! Take care
    Spring
    42 yrs old
    Milwaukee braced 1983 to 1989
    was told my curves would never progress
    at 19yrs old 1991, T30-L38
    2010, T38-L56--progression in one year 2011, T40-L67
    new diagnosis-kyphoscoliosis, DDD, Arthritis, Osteoporosis, 73 degree Kyphosis
    Surgery 1-09-12....10 hrs all posterior T4-sacrum & 2 cages
    Dr. Lenke-St. Louis Mo.
    Surgery to clean out infection 2-10-12
    Revision for broken rods 1-23-14

  4. #34
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,012
    Dear Spring,

    That is wonderful news!! You sound great already. I am thrilled to hear the broken rod pain is all gone.

    Thanks for updating us so soon. I hope you will get to go home tomorrow--your own bed will feel great.

    Take care,
    Gayle, age 47
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  5. #35
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    2,819
    Quote Originally Posted by Spring72 View Post
    When they got in they found 2 more areas of non-union, so it had failed at L3-L4-L5 and S1.
    Yikes x 3! Those are hard levels to fuse.....

    Try to take it easy for now.....Healing thoughts

    Ed
    49 yr old male, now 55, the new 45...
    Pre surgery curves C12,T70,L70
    A/P T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #36
    Join Date
    Jul 2012
    Location
    Warsaw, MO
    Posts
    303
    Glad to hear your doing well! Prayers for a speedy recovery!
    Tamena
    Diagnosed at age 12 with a double major curve

    Braced till age 15

    SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

    Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

  7. #37
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,503
    Thanks so much for posting. I've been thinking about you and so happy to hear that everything went well. I hope you feel a little better each day as you recover from this surgery. I bet you are happy to be standing straight again and with less pain!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 63
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  8. #38
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,435
    Great news. I hope you have a pain free recovery.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  9. #39
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,152
    Great news! Hope all goes well for you from here on.

    PS, I had indigestion for the first time in hospital after surgery. I was eventually diagnosed with gall stones. Had them out and the really bad pain has gone, but still get indigestion occasionally. I lived nearly 58 years before I had indigestion the first time, I feel it had something to do with my surgery, not a coincidence.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #40
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    514
    I am happy for you!
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  11. #41
    Join Date
    May 2010
    Posts
    245

    Yeay!!!

    Ho Spring,
    Just want to say how glad I am you're through this. I also had indigestion after my revision surgery. I also had my gallbladder removed about two months later. I know it sounds weird, but I have heard gall bladder problems go together with spinal surgery. You are going to do great now. You must be so relieved of that horrible pain you had before the surgery. I know you'll have pain for a while, but everyday will hopefully get better. So stay in touch and I'm so glad you got through this and are on your way to recovery. Sincerely, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Am awaiting surgery with Dr. Lenke(Oct. 29th,2012) at Washington University in St. Louis, Mo. He will fix my saggital imbalance.

  12. #42
    Join Date
    Aug 2008
    Posts
    63
    Great to hear all went well. Can't believe we heard from you so soon. I also got to keep my harrington rods when they were removed many years back. It's very interesting to see. I hope you continue with a smooth recovery.

  13. #43
    Join Date
    Jul 2010
    Location
    Dubuque, Iowa
    Posts
    59

    Cool

    Sounds like it's a good thing I had my gallbladder removed when I was 26! Indigestion is much less now, appetite is down (that is just fine with me). I'm very miserable in this brace, it is making my incision extra sore, didn't have one first time around. An extra precaution I guess. Staples come out 2/05....only have 48 this time! Maybe the brace won't bother me so much. Thanks for the welcome back! (catch my pun)?
    Spring
    42 yrs old
    Milwaukee braced 1983 to 1989
    was told my curves would never progress
    at 19yrs old 1991, T30-L38
    2010, T38-L56--progression in one year 2011, T40-L67
    new diagnosis-kyphoscoliosis, DDD, Arthritis, Osteoporosis, 73 degree Kyphosis
    Surgery 1-09-12....10 hrs all posterior T4-sacrum & 2 cages
    Dr. Lenke-St. Louis Mo.
    Surgery to clean out infection 2-10-12
    Revision for broken rods 1-23-14

  14. #44
    Join Date
    Jul 2012
    Location
    Warsaw, MO
    Posts
    303
    Staples? I didn't think the docs used them for this surgery anymore. I don't think I could've handled having them removed.
    Diagnosed at age 12 with a double major curve

    Braced till age 15

    SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

    Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

  15. #45
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,012
    Great news Spring, it sounds like you are doing really well.

    Tamena, staples are still widely used. I had them after my first surgery but not the second. For me they did not hurt being taken out. It felt great to be rid of them afterward.

    Keep up the good work Spring, and take it easy. Several short walks each day and keep those bowels moving.
    Gayle, age 47
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

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