I absolutely know how you feel right now…to get so far in recovery and suddenly be put back to square one is devastating. I do think the recovery is easier and less painful because all the rest of your fusion is solid, and the large scoli correction is already done, so all the pain associated with the initial surgical straightening of the spine will not reoccur. I had significantly less pain with the second surgery and came off narcotics pretty easily.
As far as how to move past the fear of suffering broken rods a second time…I am still struggling with that to some degree. I don't dwell on it constantly or anything, but it is now in the back of my mind that I could break rods again and how awful that would be. Hopefully for you your recovery will be uneventful and you can get back to normal as soon as possible.
One thing about going through this twice for me was the benefit of learning things from the first surgery. I knew how to manage my bowels to prevent serious constipation, I knew how to gradually increase my walking, I knew how to manage my meds and activity restrictions, and most of all, I knew that while the first weeks or two would suck, I would for sure start to feel better after that.
Please let us know how you are doing after your surgery.
Gayle, age 46
Boston brace as a teen for AIS
Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
Feb 2012 major A/P revision for broken rods
mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
4/08 26 degrees, brace 16 hrs/day
9/08 17 deg. OOB - brace discontinued
9/09 30 deg, resuming brace
5/10 VBS Dr Luhmann Shriners St Louis
5/14 stable 4 yrs post-op, 14* T
also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)