I'm new here. I'm a scoliosis mom (harrington rod 1981) now caring for my 15 year old daughter who recently had congenital scoliosis surgery. She has a hemivertebra, t10 and her primary curve was a kyphosis curve of 59 degrees. She was fused from T8-L2. She has had a very difficult recovery. Her surgery was in November 2013. Our biggest concern is her continued severe pain in her shoulder blade area and her rod is pushing up against her skin. I can see it from the top of her fusion till about two inches down her fusion. When I first noticed it we went back to the surgeon because he thought the hardware must have moved and he was going to operate immediately to fix it but after x-raying her he said nothing moved. He said it was so visible because she's pushing her shoulders, neck and head forward to avoid the pain which is making her rod visible. He hoped as she continues to recover she will stand more upright. So far the rod is becoming more prominent as the surrounding swelling reduces. I can't even begin to say how depressed she is about the continued pain and rod sticking out. It seems like she needs to have the fusion continue higher and the rod put in deeper (yes she is thin). Does anyone know how that surgery would compare to the first one? Has anyone heard of hardware being visible so soon? I know there are many people having revision surgeries for older hardware but I wasn't expecting this for her. Any similiar stories out there?
Melissa
Melissa
Comment