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Thread: Taking a night off

  1. #1
    Join Date
    Nov 2013
    Location
    Oregon
    Posts
    19

    Taking a night off

    My 11 yr old daughter was diagnosed with scoliosis last sept at an examination for school sports.
    Since then she wears a night time brace. She is doing OK with it and has worn it every night without fail(except one night when she felt sick to her stomach part way through the nite).
    She is considering going to a sleep over with friends and some other girls she doesnt know too well. She is very concerned about how the others will take seeing her in a brace and how they will treat her.

    So I would like some opinions on what others think about letting her skip wearing it for that one night.

    thanks for any opinions/advice

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    991
    Fahsai,

    Please by all means reward her for her cooperation with the brace by giving her this one important night off! One night off in the scheme of things is nothing. I am quite sure her orthopedist would say that was fine if you asked, also. I think this type of small concession/reward goes a long way to pave the way for continued acceptance of the brace. She will have lots of fun and get to forget about her scoliosis for one night, which is really important.
    Gayle, age 46
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  3. #3
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,081
    I agree completely with Gayle.

    But to ease your mind, maybe you could ask your surgeon. Ours answers emails (or I mean his nurse does).
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,747
    I agree 100% with Gayle and Sharon. I would absolutely give your daughter the night off.
    mariaf305@yahoo.com
    Mom to David, age 15, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently holding around 26 degrees)
    Under care of Dr. Randal Betz since 2004

    Also mom to Nicole (22) and Danny (25)

    Link to VBS Website: www.vertebralstapling.com

    Janet Cerrone, PA to Dr. Betz janetcerrone@spineandscoliosis.com or (609) 912-1500

  5. #5
    Join Date
    Nov 2013
    Location
    Oregon
    Posts
    19

    Wink one happy girl

    Thanks for the opinions/advice.
    I agree that a special night for her would be a nice reward for putting up with the brace.

    I let her know that all of you agree and she is so happy.

    thanks again

  6. #6
    Join Date
    Nov 2013
    Location
    Oregon
    Posts
    19
    Just to let you know,
    she had a GREAT night with her friends at the sleep over and now is back to wearing the brace without complaint.
    I think it was a really good reward for being so good about wearing it.

  7. #7
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    991
    Hi Fahsai,

    That's wonderful news! I think it is so important to give some tangible rewards and reinforcement to these kids for wearing a brace.

    We had a horrible time with a full-time brace at our house when Leah was 6, so we ended up paying her $1/day of wearing it with a minimal of complaining. Her grandmother matched that amount. Our little girl made bank for awhile with her brace. You do what you have to do!!
    Gayle, age 46
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  8. #8
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,747
    Quote Originally Posted by FAHSAI View Post
    Just to let you know,
    she had a GREAT night with her friends at the sleep over and now is back to wearing the brace without complaint.
    I think it was a really good reward for being so good about wearing it.
    I think you absolutely made the right decision 100%!!!

    And please rest assured, that in the grand scheme of things, you did no harm whatsoever. In fact, in the long run, you probably made it much easier for your daughter to comply with brace wear.
    mariaf305@yahoo.com
    Mom to David, age 15, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently holding around 26 degrees)
    Under care of Dr. Randal Betz since 2004

    Also mom to Nicole (22) and Danny (25)

    Link to VBS Website: www.vertebralstapling.com

    Janet Cerrone, PA to Dr. Betz janetcerrone@spineandscoliosis.com or (609) 912-1500

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