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Thread: What does removal of the iliac screws involve?

  1. #16
    Join Date
    Jan 2012
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    Yacolt, WA
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    1,246
    Roarer, thanks for clarifying the halo comment. So, it is not so good.
    Susan
    2011: Degenerative Adult Onset Scoliosis @65
    25* T levoscoliosis/ 36* L dexroscoliosis w/ 11.2 cm coronal & 3.5 cm sagittal balance T kyphosis 90*
    Severe disc degen thoracic & lumbar stenosis
    Surgery: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    3/2013, Dr. Hu @ UCSF
    Postop hernia @ ALIF incision repaired 2014
    8/2014: Rev surgery OHSU Dr. Hiratzka hardware removal T3-T5; reinstrument & revision fusion T3-T6
    Proximal Junctional Failure w/ SCI
    Cauda Equina Syndrome

  2. #17
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    Yacolt, WA
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    Quote Originally Posted by dixiesmommie View Post
    Thanks Linda. I'm going to make a list of all the pains and see what he says on Wednesday. I believe he is doing a left hip injection to assist in diagnosing. Will post what I find out Wednesday.
    Hi, I keep a calendar journal where I write down when anything happens that might be related to my back. I describe in detail exactly where the issue/pain/whatever is and it's characteristics. I hate it when I get to a doctor's office and someone asks a detailed history question and I can't remember the details.

    Susan
    2011: Degenerative Adult Onset Scoliosis @65
    25* T levoscoliosis/ 36* L dexroscoliosis w/ 11.2 cm coronal & 3.5 cm sagittal balance T kyphosis 90*
    Severe disc degen thoracic & lumbar stenosis
    Surgery: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    3/2013, Dr. Hu @ UCSF
    Postop hernia @ ALIF incision repaired 2014
    8/2014: Rev surgery OHSU Dr. Hiratzka hardware removal T3-T5; reinstrument & revision fusion T3-T6
    Proximal Junctional Failure w/ SCI
    Cauda Equina Syndrome

  3. #18
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,246
    Quote Originally Posted by dailypain View Post
    Oh my gosh. I use that term almost everyday. "Feels like I have a 2x4 right at the end of my scar on my pelvis or sacrum area.

    Most times I say I can't bend over (which means very little bend over since I can't bend-more of a lean forward), because my 2x4 feels like it might crack. So my husband does whatever it was I needed for me. He does so much, I feel bad. He does almost everything around the house and other.

    I think we do have something in common. We may be on to something.

    Daily Pain
    (Karen)
    Oh Karen, maybe we should get a copyright! You are on to something , or on something....
    Susan2x4, catchy isn't it?
    2011: Degenerative Adult Onset Scoliosis @65
    25* T levoscoliosis/ 36* L dexroscoliosis w/ 11.2 cm coronal & 3.5 cm sagittal balance T kyphosis 90*
    Severe disc degen thoracic & lumbar stenosis
    Surgery: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    3/2013, Dr. Hu @ UCSF
    Postop hernia @ ALIF incision repaired 2014
    8/2014: Rev surgery OHSU Dr. Hiratzka hardware removal T3-T5; reinstrument & revision fusion T3-T6
    Proximal Junctional Failure w/ SCI
    Cauda Equina Syndrome

  4. #19
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    21

    Answer to Linda

    Quote Originally Posted by LindaRacine View Post
    Hi Daily Pain...

    The ilium is not fused to the spine, so it's confusing to me why they'd be hitting fusion mass. I wonder if they were trying for the sacrum. Here's a photo of typical iliac screws:

    http://www.scoliosisjournal.com/content/6/1/6/figure/F1

    --Linda
    Hi Linda:

    Not sure why, but The following was on the Doctors notes:

    ..."A coaxial system.consisting of a 18-gauge outer needle a d 22-gauge 7 inch inner needle 22-gauge needle was then placed under fluoroscopic guidance, however, despite multiple attempts we were unable to access the right L5-S1 foraminal region due to the large volume of overlying bone graft material...."

    .?
    Daily Pain
    (Karen)

  5. #20
    Join Date
    Sep 2003
    Location
    Northern California
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    Quote Originally Posted by dailypain View Post
    Hi Linda:

    Not sure why, but The following was on the Doctors notes:

    ..."A coaxial system.consisting of a 18-gauge outer needle a d 22-gauge 7 inch inner needle 22-gauge needle was then placed under fluoroscopic guidance, however, despite multiple attempts we were unable to access the right L5-S1 foraminal region due to the large volume of overlying bone graft material...."

    .?
    Daily Pain
    (Karen)
    They weren't trying to inject at the iliac bolt site. I think the typical diagnosis is that the surgeon pushes right over the site of the head of the iliac bolt/screw. If it's painful, they can do a local injection (no fluoroscopy needed) to see if it helps.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  6. #21
    Join Date
    Aug 2008
    Posts
    83
    Quote Originally Posted by susancook View Post
    Hi, I keep a calendar journal where I write down when anything happens that might be related to my back. I describe in detail exactly where the issue/pain/whatever is and it's characteristics. I hate it when I get to a doctor's office and someone asks a detailed history question and I can't remember the details.

    Susan
    Hi Linda,

    I am going on one year post op now and still in horrible left sided pain. My doctor is a four hour drive away. He sent me to his pain management partner who did si joint injection that helped for a day. Then did an RFA lumbar (why lumbar still baffles me when si joint worked a bit). I just went back to pain management who suggested another si injection. Can't imagine why I would spend that money and take a four hour drive for a day's worth of pain relief. I transferred my pain management to closer to home for future visits. I get very few answers from my doctors. Seems like they are always in a hurry to get to the next patient. I have to take the four hour ride in Sept for my 1 year follow up. Is there anything I should specifically ask about regarding this constant left sided pain? If surgery is suggested for the si joint what are your thoughts, experiences? I know you previously mentioned there is not a high successful rate. Could a change of position of the illiac screw hold my si joint better? I am in so much pain and very confused and frustrated with the lack of answers from doctors. Hopefully you can give me some suggestions of questions to ask. Thank you so much for all your support and help through this long road.

  7. #22
    Join Date
    Jun 2011
    Posts
    1,940
    Quote Originally Posted by dixiesmommie View Post
    Hi Linda,

    I am going on one year post op now and still in horrible left sided pain. My doctor is a four hour drive away. He sent me to his pain management partner who did si joint injection that helped for a day. Then did an RFA lumbar (why lumbar still baffles me when si joint worked a bit). I just went back to pain management who suggested another si injection. Can't imagine why I would spend that money and take a four hour drive for a day's worth of pain relief. I transferred my pain management to closer to home for future visits. I get very few answers from my doctors. Seems like they are always in a hurry to get to the next patient. I have to take the four hour ride in Sept for my 1 year follow up. Is there anything I should specifically ask about regarding this constant left sided pain? If surgery is suggested for the si joint what are your thoughts, experiences? I know you previously mentioned there is not a high successful rate. Could a change of position of the illiac screw hold my si joint better? I am in so much pain and very confused and frustrated with the lack of answers from doctors. Hopefully you can give me some suggestions of questions to ask. Thank you so much for all your support and help through this long road.

    Good luck and I hope you find some relief

    Melissa
    Melissa

    All surgeries are on hold right now

  8. #23
    Join Date
    Sep 2003
    Location
    Northern California
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    6,301
    Quote Originally Posted by dixiesmommie View Post
    Hi Linda,

    I am going on one year post op now and still in horrible left sided pain. My doctor is a four hour drive away. He sent me to his pain management partner who did si joint injection that helped for a day. Then did an RFA lumbar (why lumbar still baffles me when si joint worked a bit). I just went back to pain management who suggested another si injection. Can't imagine why I would spend that money and take a four hour drive for a day's worth of pain relief. I transferred my pain management to closer to home for future visits. I get very few answers from my doctors. Seems like they are always in a hurry to get to the next patient. I have to take the four hour ride in Sept for my 1 year follow up. Is there anything I should specifically ask about regarding this constant left sided pain? If surgery is suggested for the si joint what are your thoughts, experiences? I know you previously mentioned there is not a high successful rate. Could a change of position of the illiac screw hold my si joint better? I am in so much pain and very confused and frustrated with the lack of answers from doctors. Hopefully you can give me some suggestions of questions to ask. Thank you so much for all your support and help through this long road.
    Hi...

    I don't really know much about it. The pelvic screw isn't meant to "hold" the SI joint. Removing the pelvic screw(s) is usually an option starting about 1 year postop.

    If you can find a good physical therapist, you might find some help from that modality.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  9. #24
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,246
    Quote Originally Posted by LindaRacine View Post
    Hi...

    I don't really know much about it. The pelvic screw isn't meant to "hold" the SI joint. Removing the pelvic screw(s) is usually an option starting about 1 year postop.

    If you can find a good physical therapist, you might find some help from that modality.

    Regards,
    Linda
    Linda, I do have a good PT. The section of my lower back that hurts is in my sacral area. I do not feel any discomfort when I push on the area, but have a sensation of tightening which gets worse over the progression of the day. The tightening sensation increases with walking, especially walking uphill. Suggestions?
    Susan
    2011: Degenerative Adult Onset Scoliosis @65
    25* T levoscoliosis/ 36* L dexroscoliosis w/ 11.2 cm coronal & 3.5 cm sagittal balance T kyphosis 90*
    Severe disc degen thoracic & lumbar stenosis
    Surgery: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    3/2013, Dr. Hu @ UCSF
    Postop hernia @ ALIF incision repaired 2014
    8/2014: Rev surgery OHSU Dr. Hiratzka hardware removal T3-T5; reinstrument & revision fusion T3-T6
    Proximal Junctional Failure w/ SCI
    Cauda Equina Syndrome

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