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Thread: 13 year old daughter with a 44 degree lumbar curve

  1. #61
    Join Date
    Apr 2013
    Location
    INDIA
    Posts
    27
    Thanks Linda. Dunno about the laxatives but last night they gave her a suppository which did not help much. Anyways have got the doc to prescribe an anema which seems to have helped. She's feeling weaker but would get better as the day progressed.

    Thanks to all of you for just being there.

  2. #62
    Join Date
    Feb 2014
    Posts
    90
    Hi there,
    Thinking of you guys and hoping your daughter heals quickly! One thing she might try for constipation when out of the hospital is warm prune juice. Sounds kind of gross but I found it helped. I used to just pop a glass in the microwave for a little bit.
    Hang in there!
    -spring
    Surgery Jan 6, 2014 at 38 yrs
    Posterior Fusion T10-L4, osteotomy 1 lev.
    Pre op-Thoracolumbar Curve-50 degrees

  3. #63
    Join Date
    Apr 2013
    Location
    INDIA
    Posts
    27

    Update

    Hey Guys,


    All your prayers and wishes worked !

    We are back home. Dear daughter is fine and is already moving around albeit with braces. Normal diet ( a bit extra thanks to her protective parents to try and increase her heamoglobin levels).

    She is about 1.5 inches taller and is waiting to show off her new found height gain to her friends. All the pain, nausea, dizziness are a thing of the past.

    As of now she has been prescribed pain meds on SoS basis which she has not taken yet. She is fused T4 to L4. Her curves are in single digit along with a good correction of the rotation as well. She has been fitted with a Co-Cr rod along with a Titanium Rod. I have noticed a slight bit of left chest wall protrusion and a slight forward lean but the doc says it would all fall in place.

    All of us are very happy with the outcome. Fingers crossed.

    Coolblue
    Last edited by coolblue; 11-19-2014 at 06:46 AM.

  4. #64
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,604
    That's such great news, coolblue!

    Kids recovery pretty quickly. She will seem back to normal before her activity restrictions are lifted if she has any. That is the hard part... reminding them to take it easy when they feel completely fine.

    Onward and upward!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #65
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    Jan 2008
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    NC
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    8,604
    Quote Originally Posted by coolblue View Post
    Her curves are in single digit along with a good correction of the rotation as well.
    This seems like the key to avoiding another surgery. We have a woman on the group who was fused I think 6 years ago to L4 and her disc below that is fine. Hopefully now that your daughter's spine no longer technically has scoliosis (<10*) and was derotated, she will be okay for life. There was an article recently about how hyper correction matters in terms of disc health below the fusion. I will try to remember where I saw that. It's why Dr. Hey stands on his head to correct lumbars.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #66
    Join Date
    Jan 2008
    Location
    NC
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    Here it is... it is only when I wrote about Dr. Hey that I remembered it was on his blog...

    http://drlloydhey.blogspot.com/2014/...dolescent.html

    What is really cool about Dr. Lafage's research is that she was able to show that over the 2 years after scoliosis surgery, the lumbar discs actually REHYDRATED after the surgical realignment of the spine above the discs. This happened at ALL lumbar levels when the pelvic incidence was low (most common in AIS), and in some levels with high pelvic incidence (PI). This research suggests that the realignment was actually REVERSING the early damage to the lumbar discs, which would be our hope to allow those lower 2-4 lumbar discs to last the patient another 80+ years!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #67
    Join Date
    May 2009
    Posts
    3,745
    off topic....
    (sorry)...

    Sharon....your messages are full...

    jess...and Sparky

  8. #68
    Join Date
    Jan 2008
    Location
    NC
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    8,604
    okay I'll empty them.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #69
    Join Date
    Apr 2013
    Location
    INDIA
    Posts
    27

    5 Monthly Update

    Hi Everyone,

    Just wanted to update regarding my daughter's progress. She is now 5 month post-op and doing great. In fact looking at her another classmate of hers opted for surgery with the same doctor.

    Last month over video conference the Doc allowed her to start swimming. She is doing great apart from feeling stiff and sometimes sore as a result of the stiffness. Yesterday we went to consult with the local doctor who was very impressed with her correction.

    There are some concerns / queries on which I wanted the groups advise:

    1. She still has a significant arch (high lordosis) which causes her chest and bums to protrude out. The local doctor looked at the xray and said that from the film everything looked great and probably the body would adjust in some time. My wife is very concerned with this as her gait looks very odd. Will the body eventually adjust.

    2. Her school is organising a trip to the US next month where they would be visiting among others Universal Studios and Disney World. My daughter is super excited and crazy about adventure rides like roller coasters etc. The local doctor is not comfortable with it. It breaks my heart to tell her not to sit on them after going so far. Nonetheless I promised her to post it on the forum

    3. To help sore back whilst sleeping should I invest in a memory foam topper? Will it be of help.

    Look forward to your thoughts

    CB

  10. #70
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,665
    coolblue... What levels were fused? Would it be possible to post a photograph of her lateral postoperative xray?

    While I would never recommend that you suggest that your daughter disobey the surgeon in terms of riding roller coasters, I think most surgeons remove pretty much all restrictions on kids at about 6 months postop.

    It's hard to know if a memory foam topper will help your daughter. We're all so different, and I don't think any of us really know about such things until we try them. I used soft memory foam toppers for many years, and loved the way they feel. Then, I ordered a memory foam bed for my guest bedroom. It's far firmer than any of the toppers I used. And, for some reason, I really love it. I swapped my top of the line Sleep Number bed for the cheap memory foam bed, and can't imagine ever switching back. The good news is that (at least in the U.S.), the toppers are pretty inexpensive, so trying it isn't too much of a risk.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  11. #71
    Join Date
    Apr 2013
    Location
    INDIA
    Posts
    27

    18 Month Update

    Hi All,

    Just wanted to update you that my daughter passed her class X exams by securing max possible CGPA of 10. Is a great achievement for her considering she had her surgery during Class VIII and the whole year was a washout at least as far as her studies were concerned.

    She is otherwise doing great and living life as normally as a teenager would. She does swimming as often as she can. I'm trying her to start yoga as this would help her throughout her life. Would go back to the doctor in about six months time for a review but hopefully things would be OK.

    We consider ourselves blessed that it all worked out well in the end. Thanks again to all fellow members who chipped in with their words of advice and encouragement.

    CB

  12. #72
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,604
    Excellent news about your daughter's achievements, both academic and recovering for surgery. Thank you for updating the group.

    For parents who are honestly worried abut life post-fusion, I think they should try very hard to imagine what their child's life would be life without the surgery. In my case, I believe one or both of them would be dead (fast-moving curves that may never have stopped curving) and neither would have had a high school much less college career because they would be so twisted up they may never have left the house.

    I am not saying all kids who need surgery but don't get it would have a bad outcome. I am saying there is reason there is a near total consensus on fusing certain curves in adolescents. There is a reason for that.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  13. #73
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,476
    So glad that your daughter is doing well.

    Jerky rides? I do not suggest it! She has the rest of her life to do the roller coaster, but this soon after surgery, probably not.

    Memory foam topper? Ahhhhhh....... Highly recommended. Do you have friends that have a memory foam topper? Maybe she could try theirs first. I purchased mine at Costco (? Do you have access to Costco?). I love it!

    Wishing her continued healing.

    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  14. #74
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,258
    Cool, thanks for chiming in with the good news on your daughter. Tell her I said congratulations! (smiley face)

    Ed
    49 yr old male, now 57, the new 50...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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