Hi Cool,
It sounds like you have left no stone unturned in your daughter's care…I am sorry she will need surgery. I do think you have every right to ask any and all questions that you want answers to. My experience is I have gotten very brief answers to any e-mailed questions to doctors, if answers at all. Would it be possible to have another appointment and pose these questions? That way you may have a dialogue that can be more informative.
Best of luck, and please do let us know how things are going.
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable