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Thread: 13 year old daughter with a 44 degree lumbar curve

  1. #46
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,016
    Hi Cool,

    It sounds like you have left no stone unturned in your daughter's careÖI am sorry she will need surgery. I do think you have every right to ask any and all questions that you want answers to. My experience is I have gotten very brief answers to any e-mailed questions to doctors, if answers at all. Would it be possible to have another appointment and pose these questions? That way you may have a dialogue that can be more informative.

    Best of luck, and please do let us know how things are going.
    Gayle, age 47
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  2. #47
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,109
    coolblue,

    Glad you checked in. Very sorry about the progression.

    I think if you make a list of questions for the surgeon he or his nurse will respond. I am guessing there will be very little he says your daughter can't do after she recovers from surgery and the fusion is solid. I am further guessing she will likely be restricted from certain activities for about a year, maybe less. He will tell you.

    Your daughter and your family will get through this and move on. It is ~6.5 and ~5 years post surgery for my girls and the subject never comes up. They have moved past this and your daughter will also.

    Best regards,
    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #48
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    2,834
    Cool

    I personally would ask about the robot assist just out of interest....This is a valuable tool.
    http://en.wikipedia.org/wiki/Mazor_Robotics
    http://mazorrobotics.com/the

    Her plumb line and shoulder heights are way off in the October x-ray.....There is quite a bit of difference between both x-rays.

    I really donít think you can dodge this much longer and agree with the cervical issues and shifting. Her plumb is now way off.

    If I had to guess on gained height, it would be around 2 inches....and end up with a substantial correction. Rib humps are usually improved quite a bit after surgery.

    Ed
    49 yr old male, now 55, the new 45...
    Pre surgery curves C12,T70,L70
    A/P T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #49
    Join Date
    Apr 2013
    Location
    INDIA
    Posts
    18
    Thank you Gayle, Ed and Sharon. Have sent the list of questions to the Doc. Surgery set for 3rd of Nov. Fingers Crossed.

    Can anyone let me know where to find a checklist for both pre-op and and post-op in the case of adolescent surgery (esp for girls). Am also looking for what to expect kind of a guide.

    Any past posts would be of great help. Shall keep the group posted wrt developements.

    Meanwhile how does one have this post moved to Surgical and its thread title suitably modified. Any suggestions.

    Best regards,

    coolblue

  5. #50
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    2,834
    Cool, I donít know what kind of checklist your looking for. I have attached a prep list....

    Ask if you have any questions....

    For example, Grabbers sometimes are provided by insurance companies here in the US. If not, you can save the money and use Barbeque tongs.

    I'm not fond of using step stools on medications, this is a great way to promote a fall. If a patient cant reach something, so be it. It can wait. Do anything to prevent a fall.

    Hope this helps....

    Ed
    Attached Files Attached Files
    49 yr old male, now 55, the new 45...
    Pre surgery curves C12,T70,L70
    A/P T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #51
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,231
    Wishing your daughter the best on her upcoming surgery. My only last thought is: be prepared for something to go wrong, in my experience in talking with folks, do not be surprised. Most everything is fixable as it just is a bump in the road. We all hope for a very smooth course with surgery because of all of the prep that we do....just be ready for a bump in the road. With my last surgery it was a pulmonary embolism, certainly scary when it happened but really minor in the scheme of things.

    You sound like such a caring, awesome parent. I wish your daughter fast healing and you, peace.

    Susan
    Last edited by susancook; 10-19-2014 at 07:46 PM.
    2011: Degenerative Adult Onset Scoliosis @65
    25* T levoscoliosis/ 36* L dexroscoliosis w/ 11.2 cm coronal & 3.5 cm sagittal balance T kyphosis 90*
    Severe disc degen thoracic & lumbar stenosis
    Surgery: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    3/2013, Dr. Hu @ UCSF
    Postop hernia @ ALIF incision repaired 2014
    8/2014: Rev surgery OHSU Dr. Hiratzka hardware removal T3-T5; reinstrument & revision fusion T3-T6
    Proximal Junctional Failure w/ SCI
    Cauda Equina Syndrome

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