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Thread: X-ray tomorrow and question on brace

  1. #1
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    X-ray tomorrow and question on brace

    We have the normal 6 month out of brace X-ray tomorrow. Our last check in was June showing no progression since December 2012. If tomorrow's X-ray shows no progress (please!!) would it be unreasonable to ask to have her wean from this brace? She's 14.75 yrs, menses for 1 year, 41 thoracic curve. What's the protocol?

  2. #2
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    Quote Originally Posted by cello_mom View Post
    We have the normal 6 month out of brace X-ray tomorrow. Our last check in was June showing no progression since December 2012. If tomorrow's X-ray shows no progress (please!!) would it be unreasonable to ask to have her wean from this brace? She's 14.75 yrs, menses for 1 year, 41 thoracic curve. What's the protocol?
    I wouldn't be surprised if there was still no progression. We have a few people here who got beyond where your daughter is and hung there. It's not crazy to hope.

    I think you can ask for a bone age determination (hand/wrist radiograph). That will show if there is any growth remaining. No reason to wear the brace if there is no growth left.

    Otherwise, our surgeon had mentioned two years post menses as when he would release my one daughter from post-op observation. I assume that is the growth issue also.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
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    Unhappy

    48 degrees. He's referred us to the surgeon.

  4. #4
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    Good luck at the doctor's, Cello Mom!

    No question is ever unreasonable when it comes to our kids so I would definitely ask about weaning if there's no progression (fingers crossed!).

    I agree that the key will be her bone age.

    Again, best of luck and let us know how it goes.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  5. #5
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    Quote Originally Posted by cello_mom View Post
    48 degrees. He's referred us to the surgeon.
    So sorry. Your daughter should be very proud of herself about trying so hard with bracing.

    Good luck with the surgery. Hopefully it will be her only back surgery she will ever need.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #6
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    Quote Originally Posted by cello_mom View Post
    48 degrees. He's referred us to the surgeon.
    By the way, that is still in tethering range. Tethering is a non-fusion surgical treatment. There must be growth remaining. If successful, your daughter will not need a fusion or at least that is the goal.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
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    So sorry to hear this news, Cello Mom. (I think our posts crossed earlier - we were posting at the same time).

    While I know this is not the news you were hoping for, remember that most kids do amazingly well following fusion. They are so resilient. If it is just a single curve, her fusion won't involve too many levels and that's a good thing.

    And, yes, tethering is an option to consider IF there is some growth remaining. If you would like more info on tethering, you should contact either Shriners in Philly (see my signature) or Dr. Peter Newton in San Diego, depending on what part of the country you live in. As far as I know, those are the only two places tethering is currently being performed.

    Best of luck and please keep us posted.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  8. #8
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    We've scheduled a meeting with Dr. Grayhack at Lurie Children's In Chicago for 12/20 to ask questions, and I am speaking to someone this evening whose child had the tethering last month at Shriner's in Philly. I am hopeful there are options beside the fusion which scares me a lot.

    Has anyone here has it done and know the protocol for how they choose it vs. fusion? I am scared of procedures that are "new" or "experimental" and of course we would be across the country from either location.

  9. #9
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    Quote Originally Posted by cello_mom View Post
    I am speaking to someone this evening whose child had the tethering last month at Shriner's in Philly. I am hopeful there are options beside the fusion which scares me a lot.

    Has anyone here has it done and know the protocol for how they choose it vs. fusion?
    If you would like, I can put you in touch with another mom whose daughter had tethering a little over a year ago. Her daughter's case was not much different than yours in terms of curve size, age, etc.

    Just e-mail me at the address in my signature and I'll give you this mom's contact info.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  10. #10
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    Following up. She's not in the tethering range at all. Discussed her situation with Dr. Newton's nurse at Raday in SD where they perform this as with her ortho. She's a Risser 4 and her Tri radiate cartilage is closed. They won't consider her with those numbers for any programs. Not even Shriners. Sigh.
    Last edited by cello_mom; 12-08-2013 at 09:44 PM.

  11. #11
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    Quote Originally Posted by cello_mom View Post
    Following up. She's not in the tethering range at all. Discussed her situation with Dr. Newton's nurse at Raday in SD where they perform this as with her ortho. She's a Risser 4 and her Tri radiate cartilage is closed. They won't consider her with those numbers for any programs. Not even Shriners. Sigh.
    I'm sorry cello-mom. You tried. This is not the end of the world. Your daughter will be a star. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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