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  1. #1
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163

    Possible resolving scoliosis in 8 y/o boy

    Hi all,


    I have posted a little about my 8 y/o son, Torrey's scoliosis. We have watched his back closely since he was 3 y/o, when his 6 y/o sister was diagnosed with JIS. His x-ray was straight at that time. Around age 5 he developed a slight rib hump and back asymmetry. His pediatrician felt it did not warrant an x-ray and monitored Torrey every 6 months with the Adams forward bend test. We held off on x-rays because it seemed to stay the same. About 18 months ago, when he was 7, his rib hump and asymmetry got worse so he was x-rayed, which showed an 18 degree right lower thoracic curve.

    Torrey had a normal MRI at that time and we elected to continue to watch, although our local ortho offered bracing if we wanted it due to our strong family history (Leah stapled, and me braced then fused as an adult). That was definitely a no thanks! We planned to go see Dr Luhmann at Shriners St Louis if his curve got to 20 or more.

    About 9 months ago Torrey's x-ray was measured at 15 degrees, and his pediatrician thought his back looked a little better. Over the summer his back continued to look good, though we have done nothing special. Last month (when the forum was down) he had a follow-up x-ray which was measured at 12 degrees. Now I know there is a 5-10 degree margin of error, but I am thrilled that his x-ray went down 6 degrees instead of up 6 degrees! I think his back looks improved from what it did at 18 degrees, and looking at the two x-rays side by side, the recent one is definitely straighter.

    We are very happy right now and are cautiously hoping Torrey might dodge the bullet and grow out of his scoliosis.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,187

    What a great testimonial!

    Gayle that is so wonderful! I am so happy for Torrey, you, and the rest of your family. It certainly seems like things are going in the right direction. You have an honorary doctorate in managing scoliosis cases in my opinion. :-)

    You need to catch a break and it looks like you have. :-)

    Best regards,
    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,952
    I've heard and read about curves that resolve themselves for years. It's one of the things that makes me discount anyone who says their kids had a small curve and that it went away after <choose one or more> bracing, exercise, massage, etc.

    There's a reason why "wait and see" is the right thing to do for curves <25 degrees.

    Congratulations Gayle. I'm delighted for you.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  4. #4
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,187
    Quote Originally Posted by LindaRacine View Post
    I've heard and read about curves that resolve themselves for years. It's one of the things that makes me discount anyone who says their kids had a small curve and that it went away after <choose one or more> bracing, exercise, massage, etc.

    There's a reason why "wait and see" is the right thing to do for curves <25 degrees.
    That one article on Greek children indicated the largest groups were resolving or stable. The smallest group was for progressive curves. I can't remember if that was all kids including early onset or not, though.

    It's also the origin of the phrase, "braces are for the parents, not the child." PT is in the same category as far as anyone knows also. It's like looking only at the treatment group. If you did that with BrAIST you would falsely conclude that bracing keeps over 70% of kids <50* by maturity. But if you add the control group you see half of the control group ALSO remained <50* by maturity, presumably just by sitting on the sofa and eating ice cream. Just because controlled studies are hard to do doesn't magically make them unnecessary. Having a child with a small curve do something, anything, and then claiming that's what helped the curve is folk science.
    Last edited by Pooka1; 10-15-2013 at 10:05 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,973
    Gayle

    This is very good news.....Itís the kind of news that puts a little smile on your face. (Or mine)

    I am so happy for you guys

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Wonderful! I hope Torrey's back continues on the right track.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

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