Hi, new here. I have an S curve, with a Harrington in my - well, I don't even know which vertebrae but its my middle curve. I had surgery 17 years ago, and am rather uneducated about my condition.
Dr. Olgilvie was my surgeon then from University of Minnesota. I'm sure he's retired now, but I know he's at least no longer in the area. My 7 in scar is on my side by my rib cage. I have never read of another patient who had this type of surgery- as they are always referred to as anterior/posterior. Does anyone know what this is called? I have a 5 in rod and 4 screws.
I have since seen Dr. Tribus in Madison, WI. Last time was about 5 years ago and he was terrible- which I have read from others on here many years ago as well, his bed side manner needs work. I have been in chronic pain for about 3-5 years. Its been so long I'm not even sure what qualifies as pain to tell you the truth. I describe it more as uncomfortable. I can remember about 12 years ago is when the bursitis started in my shoulder blade in my upper curve. Since then my Right Sacrum has given me trouble off and on over the years. The last 3 years, my under arm area is extremely sensitive. It feels bruised all the time, yet something I have learned to live with.
I have done physical therapy, which feels like a waste of money. I do regular Tuina massages that provide a lot of relief- however, there have been occasions that I am in extreme pain during the massage. I think it is also a lot of emotional pain as I am unaware of how much pain I am in until someone touches me (again, the bruising feeling), and I then realize how stupid it was that I waited that long to go in. I now try to do a regular appointment monthly as a preventative measure.
In the last 3-4 months, my left sacrum has been giving me pain when I sit on the couch. This is typically when I get home from 8 hrs of sitting at my desk, so I'm not sure if its an unsupportive couch I am sitting on, or the sitting is just getting to be too much and the couch is the place I am at after 8 hrs.
Well, I have had some stuck vertebrae for about a week, in my lower lumbar, combined with extreme sensitivity around my entire pelvis- feels bruised, cramping, and sharp pain when my back arches backward even the slightest. My Bursitis in my upper shoulder blade feels like it has a camp fire under it. And there is now a sensitive vertebrae in my mid-upper spine. For the last 13 years I honestly have felt like a whiner, and that people have it so much worse than I do so why can't I just deal with it. I am so insecure to talk about it. Because I have an S curve, I actually don't look too bad, and nobody can tell anything is even wrong with me. So I feel like maybe they won't believe me if I do complain, or that I am just being a whiner and I should stop complaining. And now I just cry, and cry, and cry because I just don't know where to start or what to do. I don't want to go to work and sit- yet I am not sure how to address this with my employer, so I just sit in pain for hours and have been calling in sick regularly.
I have been online for the past 3 days, and am overwhelmed with the lack of direct information. Where do I start, what is the latest technology, and what do I do about my job? I narrowed it down to 5 surgeons based on 5 star ratings for fusion surgeons and hospitals on healthgrade.com, and the first one I called only specializes in Knee and Hip surgery. What the heck have I been doing for 3 days???? Help, please. And thank you for letting me get that out.
Tiona
Dr. Olgilvie was my surgeon then from University of Minnesota. I'm sure he's retired now, but I know he's at least no longer in the area. My 7 in scar is on my side by my rib cage. I have never read of another patient who had this type of surgery- as they are always referred to as anterior/posterior. Does anyone know what this is called? I have a 5 in rod and 4 screws.
I have since seen Dr. Tribus in Madison, WI. Last time was about 5 years ago and he was terrible- which I have read from others on here many years ago as well, his bed side manner needs work. I have been in chronic pain for about 3-5 years. Its been so long I'm not even sure what qualifies as pain to tell you the truth. I describe it more as uncomfortable. I can remember about 12 years ago is when the bursitis started in my shoulder blade in my upper curve. Since then my Right Sacrum has given me trouble off and on over the years. The last 3 years, my under arm area is extremely sensitive. It feels bruised all the time, yet something I have learned to live with.
I have done physical therapy, which feels like a waste of money. I do regular Tuina massages that provide a lot of relief- however, there have been occasions that I am in extreme pain during the massage. I think it is also a lot of emotional pain as I am unaware of how much pain I am in until someone touches me (again, the bruising feeling), and I then realize how stupid it was that I waited that long to go in. I now try to do a regular appointment monthly as a preventative measure.
In the last 3-4 months, my left sacrum has been giving me pain when I sit on the couch. This is typically when I get home from 8 hrs of sitting at my desk, so I'm not sure if its an unsupportive couch I am sitting on, or the sitting is just getting to be too much and the couch is the place I am at after 8 hrs.
Well, I have had some stuck vertebrae for about a week, in my lower lumbar, combined with extreme sensitivity around my entire pelvis- feels bruised, cramping, and sharp pain when my back arches backward even the slightest. My Bursitis in my upper shoulder blade feels like it has a camp fire under it. And there is now a sensitive vertebrae in my mid-upper spine. For the last 13 years I honestly have felt like a whiner, and that people have it so much worse than I do so why can't I just deal with it. I am so insecure to talk about it. Because I have an S curve, I actually don't look too bad, and nobody can tell anything is even wrong with me. So I feel like maybe they won't believe me if I do complain, or that I am just being a whiner and I should stop complaining. And now I just cry, and cry, and cry because I just don't know where to start or what to do. I don't want to go to work and sit- yet I am not sure how to address this with my employer, so I just sit in pain for hours and have been calling in sick regularly.
I have been online for the past 3 days, and am overwhelmed with the lack of direct information. Where do I start, what is the latest technology, and what do I do about my job? I narrowed it down to 5 surgeons based on 5 star ratings for fusion surgeons and hospitals on healthgrade.com, and the first one I called only specializes in Knee and Hip surgery. What the heck have I been doing for 3 days???? Help, please. And thank you for letting me get that out.
Tiona
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