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Thread: VEPTR to Avoid Proximal Junctional Kyphosis

  1. #1
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    VEPTR to Avoid Proximal Junctional Kyphosis

    Hi...

    I participated in a webinar this evening. One of the sessions was by Robert Hart of Portland, OR, who has been using VEPTR (titanium rib) implants to combat proximal junctional kyphosis. (VEPTR implant technology was developed for treating early onset scoliosis in very young children.) He has 15 patients so far, and no catastrophic failures. I was skeptical, but I have to say that the xrays look really good. Only time will tell if it's really a solution.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
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    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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  2. #2
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    That's very encouraging news Linda! I'm guessing that this is a possible fix for PJK that stays below the cervical region, is that right?

  3. #3
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    Wow--Dr Hart is my doctor!
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  4. #4
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    Quote Originally Posted by tonibunny View Post
    That's very encouraging news Linda! I'm guessing that this is a possible fix for PJK that stays below the cervical region, is that right?
    Hi Toni...

    Not sure how to answer this. The VEPTR is not meant to fix PJK, it's meant to keep PJK from happening in the first place.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #5
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    Oh I see! Sorry, I misread. How long does the VEPTR stay in place following fusion surgery?

    Anything that can help combat PJK is very encouraging.

  6. #6
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    hmmm....not sure what VEPTR is...but the term sounds like a scary poisonous snake!! (VEPTR...VIPER)

    jess
    Last edited by jrnyc; 08-07-2013 at 09:32 PM.

  7. #7
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    Vertical Expanding Prosthetic Titanium Rib I think
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  8. #8
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    Quote Originally Posted by tonibunny View Post
    Oh I see! Sorry, I misread. How long does the VEPTR stay in place following fusion surgery?

    Anything that can help combat PJK is very encouraging.
    It's anchored to the ribs. I can't find any images of xrays of the VEPTR used in adults. Here's what the device looks like:

    http://www.surgicalspotlight.ca/Arti...er=Winter_2010
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  9. #9
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    By the way, while we're on the subject of PJK, I have to take a moment out to brag:

    http://www.ncbi.nlm.nih.gov/pubmed/23848349
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  10. #10
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    Nice one Linda! I know several children who have had the VEPTR here in the UK, mainly to help with thoracic insufficiency in cases of congenital scoli, but they're not used as permanent rods. I was wondering how long an adult would be expected to have the implant in for, in order to combat PJK?

  11. #11
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    Quote Originally Posted by LindaRacine View Post
    By the way, while we're on the subject of PJK, I have to take a moment out to brag:

    http://www.ncbi.nlm.nih.gov/pubmed/23848349
    Very cool!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  12. #12
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    Quote Originally Posted by tonibunny View Post
    Nice one Linda! I know several children who have had the VEPTR here in the UK, mainly to help with thoracic insufficiency in cases of congenital scoli, but they're not used as permanent rods. I was wondering how long an adult would be expected to have the implant in for, in order to combat PJK?
    They're not meant to be removed.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  13. #13
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    Quote Originally Posted by Pooka1 View Post
    Very cool!
    Thanks Sharon!
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  14. #14
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    Very cool indeed, Linda!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

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