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  • #31
    Linda, explain it to me! Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

    Comment


    • #32
      Originally posted by LindaRacine View Post
      Hi Susan...

      I'm unclear about the spinal cord injury. Is your surgeon saying that the injury was caused by the screw plowing through your bone? Or, was the screw placed badly in the first place? If the screw plowed through the bone, than the culprit is actually bone quality instead of surgery. BTW, proximal junctional failure is, essentially, PJK that requires treatment.

      --Linda
      Linda, as I understand it, the kyphosis increased and thus pulled away from the hardware. By pulling away, the screw went into the thecal sac since the screws are screwed into the vertebrae at an angle. The screw was placed correctly, but the kyphosis of course was not anticipated. Osteoporosis, of course doesn't help the situation. Susan
      Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

      2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
      2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
      2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
      2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
      2018: Removal L4,5 screw
      2021: Removal T1 screw & rod

      Comment


      • #33
        Podium presentation on complications

        Complications by Category.png
        Last edited by LindaRacine; 03-10-2016, 08:46 PM.
        Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
        ---------------------------------------------------------------------------------------------------------------------------------------------------
        Surgery 2/10/93 A/P fusion T4-L3
        Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

        Comment


        • #34
          I hate to add to the list of issues here, but I had severe bleeding during the surgery, losing over 5 liters of blood. My kidneys shut down and I was in the ICU for 9 days (don't remember much). Things finally started to improve, I was in the hospital another 5 days, and my kidney levels were close to normal at 1 month post-op. We were completely unprepared for this. How could you be? Just beware that sometimes, sometimes, issues can arise. This was the second time at a major NYC hospital that this had occurred - only the 2nd time over decades. Lucky me!
          T4-Sacrum fusion, with pelvic fixation in January 2015, Dr. Lonner in NYC
          10 osteotomies, rotation from 25 to 2
          Diagnosed at age 11 with double curve, 36 and 45 degrees, Braced for 2.5 years
          At time of surgery, curves were 45 and 65 degrees
          Chronic back pain, worsening, since age 11
          Tried every pain management procedure, acupuncture, chiropractor, physical therapy ever created
          Mom of 2 cuties!

          Comment


          • #35
            It's already on the list (vascular).
            Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
            ---------------------------------------------------------------------------------------------------------------------------------------------------
            Surgery 2/10/93 A/P fusion T4-L3
            Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

            Comment


            • #36
              Susan Cook - Wow, in the worst sense

              Originally posted by susancook View Post
              I had mild pulmonary atelectasis postop.
              Susan
              Referring to your surgical history and measurements.
              What scares me is your measurements are almost the same as mine are now, to a T, including the DDD and stenosis. Except that my tentative plan plus neurological monkeying around, is to go all the way to the pelvis.

              You didn't mention your surgeon (at least, I didn't find the name). Were all the surgeries by the same person, and do you think that might have been a factor in the problems?

              If approved, I will be operated on by Frank Schwab at HSS.
              Quite worried about some neurological issues affecting my excretory functions - will start a separate thread about my surgery.
              So sorry for all your troubles! I seem to recall seeing your story on a "regrets for surgery" thread but I may misremember.

              Amanda
              Last edited by Back-out; 07-17-2016, 05:22 PM.
              Not all diagnosed (still having tests and consults) but so far:
              Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
              main curve L Cobb 60, compensating T curve ~ 30
              Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

              Comment


              • #37
                Susan, my measurements (with signature) are out of date.

                Amanda

                PS Hoping a duplicate entry (above) doesn't post too. Don't know what I did wrong.
                Not all diagnosed (still having tests and consults) but so far:
                Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
                main curve L Cobb 60, compensating T curve ~ 30
                Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

                Comment


                • #38
                  I woke from surgery with my eyes unable to work at the same time. If I open them both up, one will laze to the side and I have double vision and blurry vision. I can see fine with squinting one eye shut. I still have this almost 5 weeks later and I am petrified. I am finally (barely) able to go see an opthamologist And should go sometime next week. He said he has heard of this lazy eye after back surgery. I will keep you all informed as I get an actual diagnosis. I was so worried about paralysis, I never saw vision issues as a threat. This is obviously a rare complication. If he tells me I need surgery, I may lose my mind! Ack. Breathe.
                  Jana
                  Diagnosed with idiopathic scoliosis at age 11
                  Dr. Edgar Dawson of UCLA
                  Braced and "stopped" below 50 degrees
                  Age 25: 47 degrees, 48 degrees
                  Age 38 (3 babies later): 60 degrees, 63 degrees and 2.5 inches shorter
                  Age 41: 64 degrees, 70 degrees
                  Dr. Gregory Mundis Jr. of Scripps Hospital, La Jolla CA
                  June 2015-ALIF on L5-S1 for a slipped and degenerated disk
                  June 14, 2016-T4-L4 spinal fusion with instrumentation
                  Post-surgery: 16 degrees, 12 degrees and 2 inches taller

                  Comment


                  • #39
                    Originally posted by Back-out View Post
                    Referring to your surgical history and measurements.
                    What scares me is your measurements are almost the same as mine are now, to a T, including the DDD and stenosis. Except that my tentative plan plus neurological monkeying around, is to go all the way to the pelvis.

                    You didn't mention your surgeon (at least, I didn't find the name). Were all the surgeries by the same person, and do you think that might have been a factor in the problems?

                    If approved, I will be operated on by Frank Schwab at HSS.
                    Quite worried about some neurological issues affecting my excretory functions - will start a separate thread about my surgery.
                    So sorry for all your troubles! I seem to recall seeing your story on a "regrets for surgery" thread but I may misremember.

                    Amanda
                    Hi, Amanda: My shorthand seems to be confusing. My scoliosis was discovered when I was age 65, not 65 degrees. My curves were 24*, 36*. My fusion is to the pelvis.

                    Dr. Hu did my original surgery, Dr. Hiratzka my 2nd emergency surgery, and Dr. Hart my 3rd-5th surgeries.

                    I gratefully accept your "sorry for your troubles". I am in the "glad that I had surgery" section , but I have thought about posting in the "sorry" section, but I am grateful. If I had not had my original surgery, I would probably be on Dilaudid in a wheelchair by now. I was in a lot of pain and all of the alternative treatments did little to relieve the discomfort.

                    I wish you smooth sailing through your surgery.

                    Susan
                    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                    2018: Removal L4,5 screw
                    2021: Removal T1 screw & rod

                    Comment

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