Linda, explain it to me! Susan
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Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by LindaRacine View PostHi Susan...
I'm unclear about the spinal cord injury. Is your surgeon saying that the injury was caused by the screw plowing through your bone? Or, was the screw placed badly in the first place? If the screw plowed through the bone, than the culprit is actually bone quality instead of surgery. BTW, proximal junctional failure is, essentially, PJK that requires treatment.
--LindaAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Last edited by LindaRacine; 03-10-2016, 08:46 PM.Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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I hate to add to the list of issues here, but I had severe bleeding during the surgery, losing over 5 liters of blood. My kidneys shut down and I was in the ICU for 9 days (don't remember much). Things finally started to improve, I was in the hospital another 5 days, and my kidney levels were close to normal at 1 month post-op. We were completely unprepared for this. How could you be? Just beware that sometimes, sometimes, issues can arise. This was the second time at a major NYC hospital that this had occurred - only the 2nd time over decades. Lucky me!T4-Sacrum fusion, with pelvic fixation in January 2015, Dr. Lonner in NYC
10 osteotomies, rotation from 25 to 2
Diagnosed at age 11 with double curve, 36 and 45 degrees, Braced for 2.5 years
At time of surgery, curves were 45 and 65 degrees
Chronic back pain, worsening, since age 11
Tried every pain management procedure, acupuncture, chiropractor, physical therapy ever created
Mom of 2 cuties!
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It's already on the list (vascular).Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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Susan Cook - Wow, in the worst sense
Originally posted by susancook View PostI had mild pulmonary atelectasis postop.
Susan
What scares me is your measurements are almost the same as mine are now, to a T, including the DDD and stenosis. Except that my tentative plan plus neurological monkeying around, is to go all the way to the pelvis.
You didn't mention your surgeon (at least, I didn't find the name). Were all the surgeries by the same person, and do you think that might have been a factor in the problems?
If approved, I will be operated on by Frank Schwab at HSS.
Quite worried about some neurological issues affecting my excretory functions - will start a separate thread about my surgery.
So sorry for all your troubles! I seem to recall seeing your story on a "regrets for surgery" thread but I may misremember.
AmandaLast edited by Back-out; 07-17-2016, 05:22 PM.Not all diagnosed (still having tests and consults) but so far:
Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
main curve L Cobb 60, compensating T curve ~ 30
Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive
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Susan, my measurements (with signature) are out of date.
Amanda
PS Hoping a duplicate entry (above) doesn't post too. Don't know what I did wrong.Not all diagnosed (still having tests and consults) but so far:
Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
main curve L Cobb 60, compensating T curve ~ 30
Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive
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I woke from surgery with my eyes unable to work at the same time. If I open them both up, one will laze to the side and I have double vision and blurry vision. I can see fine with squinting one eye shut. I still have this almost 5 weeks later and I am petrified. I am finally (barely) able to go see an opthamologist And should go sometime next week. He said he has heard of this lazy eye after back surgery. I will keep you all informed as I get an actual diagnosis. I was so worried about paralysis, I never saw vision issues as a threat. This is obviously a rare complication. If he tells me I need surgery, I may lose my mind! Ack. Breathe.
JanaDiagnosed with idiopathic scoliosis at age 11
Dr. Edgar Dawson of UCLA
Braced and "stopped" below 50 degrees
Age 25: 47 degrees, 48 degrees
Age 38 (3 babies later): 60 degrees, 63 degrees and 2.5 inches shorter
Age 41: 64 degrees, 70 degrees
Dr. Gregory Mundis Jr. of Scripps Hospital, La Jolla CA
June 2015-ALIF on L5-S1 for a slipped and degenerated disk
June 14, 2016-T4-L4 spinal fusion with instrumentation
Post-surgery: 16 degrees, 12 degrees and 2 inches taller
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Originally posted by Back-out View PostReferring to your surgical history and measurements.
What scares me is your measurements are almost the same as mine are now, to a T, including the DDD and stenosis. Except that my tentative plan plus neurological monkeying around, is to go all the way to the pelvis.
You didn't mention your surgeon (at least, I didn't find the name). Were all the surgeries by the same person, and do you think that might have been a factor in the problems?
If approved, I will be operated on by Frank Schwab at HSS.
Quite worried about some neurological issues affecting my excretory functions - will start a separate thread about my surgery.
So sorry for all your troubles! I seem to recall seeing your story on a "regrets for surgery" thread but I may misremember.
Amanda
Dr. Hu did my original surgery, Dr. Hiratzka my 2nd emergency surgery, and Dr. Hart my 3rd-5th surgeries.
I gratefully accept your "sorry for your troubles". I am in the "glad that I had surgery" section , but I have thought about posting in the "sorry" section, but I am grateful. If I had not had my original surgery, I would probably be on Dilaudid in a wheelchair by now. I was in a lot of pain and all of the alternative treatments did little to relieve the discomfort.
I wish you smooth sailing through your surgery.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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