mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
Fair enough, HD.
My personal opinion of CLEAR aside, you are correct to point out that there are always exceptions where a particular method might be wrong for most, but be the 'lesser of the evils' in an exceptional case.
And I always say that when choosing a treatment method for scoliosis, we are all just trying to choose the lesser of the evils.
mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
Yes, I completely understand that. And I'm sorry to hear you had that experience. As an ex-forum moderator, I never like to hear those kinds of stories, although I know that they are (unfortunately) common.
Likewise, I continue to participate here through some friction for the same reason. Because I think some things are important to share, even if sharing them isn't necessarily the most pleasant thing I've ever done.
But, I don't expect that you and I are the most common case. I think most people are coming here just to share their stories and get support. And those people, through long experience, will leave if you give them the impression that they're not welcome. A support forum is not a support forum, simply, if it's attacking and not supporting you. So, I don't expect that *most* people would stay on through such a greeting, even though you or I would.
I wasn't actually saying (or thinking at the time) that it was the lesser of two evils for this patient. I felt/feel that she needed to get to a real doctor. But I felt that the path to a real doctor ran through her being greeted here as a parent needing support and not some maybe-plant who needed to be frisked at the door. If she'd been welcomed, in the same way that every other participant is welcomed, I think she could have moved on to the treatment (I suspected) she needed. But, without that support, the only place she had to go to was the one that was telling her that surgery would kill her child.
What kind of forum may allow 6 years of your unmoral pathetic work?
mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
I don't think some people are thinking in those terms, unfortunately. They don't tend to see this as a game of cutting losses but rather they engage magical thinking to hold on to an unrealistic notion of "normal."
Surgery bares the brunt of this magical thinking because it is viewed as the diametric opposite of "normal." If they can focus on just that then they never approach the case of whether the patient would be worse off without surgery IRRESPECTIVE of how bad surgery might be. It is thinking in a vacuum.
If surgery was a choice then nobody would get it. To suggest it is a choice is to be thinking magically, not accepting that normal is off the table, and not trying to cut losses.
Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
I'm not saying, btw, that some participant (even one of the ones we're talking about) is not going to turn out to be a plant. I'm only trying to err on the side of presumed innocence until proven planty![]()