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Thread: Sally's continuing saga

  1. #61
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,707
    Sally,
    We are all happy to hear from you. Take it easy and you'll be feeling better soon. Hang in there.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  2. #62
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Hi Sally. It's good to hear from you and know all is progressing well. Hope it's not long before you can sit comfortably.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #63
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,131
    Sally

    Glad to see your recovery is moving along ok....

    We are interested in hearing about this surgery and its recovery.....but take your time and take care of yourself.

    BTW, “The” hip pioneer’s name is Dr Jeffery Mast....he was the first in the US, and started these surgeries a few decades ago. I have a friend who worked with him here in Reno......

    A little history from the 1970’s.....

    http://www.maitrise-orthop.com/corpu..._mast_us.shtml

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #64
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Thanks to all for your caring thoughts and concern. I think I am finally far enough in recovery that I can sit for more than five minutes at a time. It has been two weeks and one day now and I just D/C'd my pain meds. I know they are necessary for pain in the beginning, but they make me so nauseous and bind me up so much which also makes me nauseous. They also make me itch to the point that I feel like I could go mad, so there are many reasons to get rid of that stuff. I am still pretty weak and need naps every day, but am starting to feel a whole lot better. I will be seeing my Surgeon on Thursday and He will be removing my dressing and hopefully I will have a nice clean scar on my butt. Haha! There are no staples or stitches to be removed, just steri-strips holding me together. After two and a half weeks they should be completely healed.
    Take care everyone, Sally
    PS: Susie B - when I posted on facebook, I posted on my original thread, so I can see how you missed it.
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  5. #65
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,595
    Quote Originally Posted by loves to skate View Post
    Thanks to all for your caring thoughts and concern. I think I am finally far enough in recovery that I can sit for more than five minutes at a time. It has been two weeks and one day now and I just D/C'd my pain meds. I know they are necessary for pain in the beginning, but they make me so nauseous and bind me up so much which also makes me nauseous. They also make me itch to the point that I feel like I could go mad, so there are many reasons to get rid of that stuff. I am still pretty weak and need naps every day, but am starting to feel a whole lot better. I will be seeing my Surgeon on Thursday and He will be removing my dressing and hopefully I will have a nice clean scar on my butt. Haha! There are no staples or stitches to be removed, just steri-strips holding me together. After two and a half weeks they should be completely healed.
    Take care everyone, Sally
    PS: Susie B - when I posted on facebook, I posted on my original thread, so I can see how you missed it.
    Great to hear that you are doing well. I knew that you would conquer this challenge like the others that you have faced. I recommend that you not take whatever medicine gives you pruritis or itching. While that may not technically be an allergy it is an "untoward response". I had the same response with codeine and oxycodone, but also had a fine red rash, so I have listed them as allergies. Someone gave me oxycodone after ankle surgery, and I spent the whole night in the hospital squirming scratching my back on the sheets as I itched so much. It was torture.

    Do you use ice bags? That saved me pain meds.

    Take care of yourself. Hate to say it, but we "older chickens" need a little longer to heal.

    Hugs to you, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  6. #66
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Thanks Susan, Yes, I do use ice bags and am taking tylenol as much as allowed. I am sore in the morning and still a little nauseous in the morning, but feel pretty good in the afternoons.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  7. #67
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    How far is the hospital from home? How did you travel home?

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  8. #68
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Sally--
    Wonderful to hear that you are in recovery mode! We were worried. Take your time healing and best wishes for an uneventful recovery. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  9. #69
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Quote Originally Posted by mabeckoff View Post
    How far is the hospital from home? How did you travel home?

    Melissa
    Melissa, The hospital is about 13 miles from where we live and I just rode home in the car. We went in to see the Doctor today and he is very pleased with my progress. The bandage came off today and I asked why it had to stay on so long and he was surprised that it was still on. I told him that the visiting nurse called his office and someone told her not to take it off, that it would come off when I saw the Doctor. He wasn't too happy about that and apologized to me. At least there are no stitch marks or staple marks which makes me happy. I will start outside the home PT next week and that is located directly across the street from the hospital.
    Melissa, I will try to call you today and if you don't hear from me, you can call me any time up until 10:00PM or 7:00Pm your time.
    Take care everyone and thanks for thinking of me.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  10. #70
    Join Date
    Aug 2006
    Posts
    46

    Smile

    Glad to hear you're doing well, Sally! Enjoy those naps & rest easy. Sending you a gentle hug!

  11. #71
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    Thanks for speaking with me today. Glad that you are doing better
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  12. #72
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445

    Advice to anyone going into the hospital.

    They say the best is yet to come! Who are they anyway?
    I thought I should add the latest to my saga. Somewhere, somehow (I think the hospital) I picked up Clostridium Difficile. I have never been so sick in my entire life. I think I managed to get medical care in time to prevent permanant damage to my intestinal track. My Doctor put me on Vancomycin and I started to get better right away. Vanco in pretty specific for C. Diff so that is why my Doc is pretty sure of his diagnosis, but the stool culture came back negative for C. Diff. Anyway after two weeks on Vanco, I was feeling much better, but not perfect. Last week, I had a relapse, so now I am on two weeks course of Metronidazol. It's named C. Diff because it is difficult to get rid of. The ultimate cure - a poop transplant. Sounds like fun, huh? At least, there is hope out there for a cure.

    When you are in the hospital for anything, make sure your nurse washes her or his hands in soap and water because, guess what folks, C. Diff is not killed with alcohol based hand washes. Only thorough hand washing and bleach will kill C. Diff.

    Thanks for listening and I hope everyone is doing well. Between the site being down and being sick, I haven't been on here too much. Love to all, Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  13. #73
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,131
    Sally

    I know someone who went through this, fecal transplant.....and she is fine now.

    I hear the Vancomycin is pricy stuff.....

    Get better soon!

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #74
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Oh Sally your poor thing! I hope the meds do the trick!
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  15. #75
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    571
    This is so scary. I hope you get better soon, Sally.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

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