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Thread: My appt. with Dr. Lenke!! April 18th!!!!!

  1. #1
    Join Date
    May 2010
    Posts
    345

    My appt. with Dr. Lenke!! April 18th!!!!!

    I am so relieved at this moment. Naomie just called me and set me up for the 18th of April, at 1:45PM(X-rays) and 2:45PM to see Dr Lenke. Isn't that great? I feel so much better now that I know he will be looking at his own X-ray. I am ready for whatever it is I have to do. But I don't ever want to go back to the way I was before my surgery with Dr. Lenke. I know I am in good hands. It was just an accident. And I know he will fix me. I'll keep you all posted! At least I don't have to wait very long to know what's going to happen.
    Thanks to all of you for being here for me. I don't know what I'd do without the support of this place. It helps that you know first hand what these surgeries are about. Warmly, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  2. #2
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    PTL! What wonderful news! I've been feeling so concerned (as we all have) for you. I am so glad you will get to see him so soon. What a relief to be in his care again and have his expert "handling" once more. I'll be praying for you. Hugs, Susie
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  3. #3
    Join Date
    Apr 2012
    Location
    Harrisburg, Pa.
    Posts
    85

    Dr. Lenke

    Hi Linda,

    I have been thinking so much about you. My husband even asked me the other day how you were. I told him you had a falling accident and let me assure you, it happens to many people. I worked at a rehab 23 years and you cant imagine the number of patients, especially ladies, who had fallen.
    I am so glad you are going to see Dr. Lenke and I know he will do whatever he can to fix your problem. I will be praying for you on the 18th, my husband's birthday, and ask the Lord to direct him in knowing exactly what to do to bring you relief. You are a strong woman with the right attitude to get you through this. You are in my thoughts and prayers.

    Patty
    1963 Fusion T4-L2 for congenital scoliosis. It was a bone graft and not instrumentation
    1989 to Present....Have had chronic pain. MRI's show severe neural foraminal stenosis L2-S1, rotational scoliosis lumbar spine over 40 degrees, compression of nerve roots L5-S1, Broad Based Herniations L4-L5, L5-S
    Surgery scheduled with Dr. Bridwell on December 11, 2012
    December 11, 2012 Had surgery with Dr. Bridwell. He fused L4-L5 with rods and screws.

  4. #4
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Linda--
    How relieved you must feel! To put Dr. Lenke in charge of this is the best scenario. Good luck to you with your appt. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  5. #5
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570
    So happy for you! Please let us know how your appointment goes and best of luck.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  6. #6
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Linda,
    I'm so happy to read this post from you. Dr. Lenke will do whatever it takes (hopefully something minor) to make everything right for you. I am so thankful that you don't have to wait much longer to see him. I sent you an email last night.
    Thinking of you and feeling optimistic . . .
    Karen
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  7. #7
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,795
    Hi Linda...

    Very glad you got an appointment. Hopefully, you'll look at this as just a bump in the road.

    BTW, I was disappointed to see that you deleted both of your previous big threads. Not sure why you did that, and would encourage you (and others) not to do it in the future. There's actually a lot of good information in threads like those, that can be very helpful for people having similar issues.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  8. #8
    Join Date
    May 2010
    Posts
    345
    Quote Originally Posted by LindaRacine View Post
    Hi Linda...

    Very glad you got an appointment. Hopefully, you'll look at this as just a bump in the road.

    BTW, I was disappointed to see that you deleted both of your previous big threads. Not sure why you did that, and would encourage you (and others) not to do it in the future. There's actually a lot of good information in threads like those, that can be very helpful for people having similar issues.

    Regards,
    Linda
    . I guess that I was under the impression that we were not suppose to have more than one thread going at once. Is there a way to let the members know if you have posted something new on an old thread? Anyway, sorry that I did that Linda. I will know better next time. Maybe you could explain that to me a little clearer how to do this. Warmly, Linda
    Last edited by babyboomer16; 04-09-2013 at 11:55 PM.
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  9. #9
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad that you got a quick appt. Hope it works out
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  10. #10
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Linda, I am glad that you are on the way to better health in your back. Sorry that you fell, but whatever happened to your back, Dr. Lenke will figure out what to do. I assume that you were not wearing your brace when maybe you should have. so, who is perfect? there are probably many on the blog who should be wearing the brace more that they should have, but just lucked out and didn't fall. Or they fell gently and didn't break anything.

    Maybe Dr. Lenke will decide just to wait and see how it naturally heals. If he thinks that a small revision would be needed, then your team will get behind you and you will take a deep breath and go for it.

    I did not hear that we should have only one thread going at a time. If you have the same thought or problem that you have entered before, then use the old thread and continue it. If it is a new problem, then start a new thread. As I understand it, don't start a new thread when you already have an older thread on the same problem.

    I think that my drugs are making my thought pattern repetitive.

    I am looking forward to your blog about what Dr. Lenke says.....as are so many others.

    You are in my thoughts and prayers. You are a strong person and I know that whatever happens, you will be OK.

    Hugs,
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  11. #11
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Susan, you are cracking me up. You should be a writer.

    Usually, Dr. Lenke doesn't have patients wear braces. Don't know about Linda specifically.
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  12. #12
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Good luck linda
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  13. #13
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,795
    Linda... it's fine to have multiple threads, although I actually think it's better to just keep posting to the same thread (like Melissa has done). That way, new people who want to learn about your journey can find all your posts.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  14. #14
    Join Date
    May 2010
    Posts
    345
    Quote Originally Posted by kennedy View Post
    Good luck linda
    Thank-you Kennedy!
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  15. #15
    Join Date
    May 2010
    Posts
    345

    Smile

    Quote Originally Posted by susancook View Post
    Linda, I am glad that you are on the way to better health in your back. Sorry that you fell, but whatever happened to your back, Dr. Lenke will figure out what to do. I assume that you were not wearing your brace when maybe you should have. so, who is perfect? there are probably many on the blog who should be wearing the brace more that they should have, but just lucked out and didn't fall. Or they fell gently and didn't break anything.

    Maybe Dr. Lenke will decide just to wait and see how it naturally heals. If he thinks that a small revision would be needed, then your team will get behind you and you will take a deep breath and go for it.

    I did not hear that we should have only one thread going at a time. If you have the same thought or problem that you have entered before, then use the old thread and continue it. If it is a new problem, then start a new thread. As I understand it, don't start a new thread when you already have an older thread on the same problem.

    I think that my drugs are making my thought pattern repetitive.

    I am looking forward to your blog about what Dr. Lenke says.....as are so many others.

    You are in my thoughts and prayers. You are a strong person and I know that whatever happens, you will be OK.

    Hugs,
    Susan
    Hi Susan. Hope this note finds you healing well and in good spirit. I had a not so good night last night. I am having pain in my right hip(butt)although it was the left side rod that I broke. I didn't wear a brace after surgery. I am thinking that Dr. Lenke will have to do surgery and I mean a pretty good revision surgery. I say that because of the wayI am pitching to the right and then forward a little bit. Enough that it makes me have to use some strength to pull myself up. I feel like crying a lot of the time. I never feel that way, EVER!! But this has really got me down. I should be ashamed of myself for feeling sorry for me! I had so many plans and I'm so afraid, (and I don't know why) that the good Dr. will leave me this way. Why do I feel that way. Where is that fear coming from. I think It's because I fell and messed up his art work. How screwed up is That thinking? I know he's a compassionate man. So I need to settle down. All of us on this web site have been through many lumps and bumps! Some more than others, but still the same, it's all stressful. You are amazing the way you're healing after a huge surgery. I am so proud of you, and happy for you. Just keep up the good work. I read your last post yesterday, and was surprised at how well you sound! I just want you to know that just writing this makes me feel better. Thanks for letting me vent. I will survive, I promise you that. My faith and this website are two very important blessings! I will keep you in my prayers and all the rest of our scoli's that are struggling to have a normal life. Warmly, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

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