Page 1 of 2 12 LastLast
Results 1 to 15 of 17

Thread: spinecore brace

  1. #1
    Join Date
    Jun 2004
    Posts
    5

    spinecore brace

    can anyone using the spinecore brace give me information like has it help or what degree it has decreased if any thank you karen

  2. #2
    Join Date
    May 2005
    Posts
    1
    Hi Karen,

    I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards

  3. #3
    Join Date
    Dec 2004
    Posts
    236

    spinecore

    Hello!
    I was surprised to read your posts about the Spinecore Brace. I thought it was pulled from the market, ONLY because something to do with the funding. I had heard it was an effective tool for slowing/stopping the curve. What state do you live in? Pat

  4. #4
    Join Date
    Mar 2004
    Posts
    1,140

    Smile

    Pat,

    Who told you that the SpineCor brace was pulled from the market ? As far as I know, they're very doing well - I hope they're not going bankrupt ? If you pull up their website and look at case studies and scientific studies you will see that the results speak for themselves. The thing that worries me - in my own particular situation - is that the brace is relatively new and doesn't have an established following as do the Boston and Milwaukee braces. However, many people who have worn Milwaukee and Boston have gone on to require spine surgery. The SpineCor concept is very appealing - it looks like a very comfortable brace and some people have had miraculous results with it. My daughter is only four and a half, I don't know if she would be a candidate for such a brace. It's something I'll definitely look into as she gets older. Adolescent children with curves below 30 degrees have had very good results - so it's something to consider. Here's the website:

    http://www.spinecorporation.com/English/index.htm



    Celia
    Last edited by Celia; 05-20-2005 at 07:37 PM.

  5. #5
    Join Date
    May 2005
    Posts
    776
    [QUOTE=Celia Vogel]Pat,

    Who told you that the SpineCor brace was pulled from the market ? http://www.spinecorporation.com/English/index.htm



    As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean.

    Published results seem extremely good, but it is very hard to work out why the idea is not really catching on yet, and i would love to hear from other people with either good or bad experiences (because of my daughter of 11 who has a 29 degree T 12 scoliosis, currently in hard brace, which is correcting it to 21 degree, not sure whetther that is "good enough")

    gerbo

  6. #6
    Join Date
    May 2005
    Posts
    1
    First off all I would like to apologies for my bad English.

    I am mother of girl born 11.04.1996., diagnosed lumbar scoliosis 21 d. according to COBB.

    Rigid TLSO brace recommended, I was wondering if SpineCor brace would be better for her.

    I would like to get in contact with treated patient, their experience, opinion.

    Thank You in advance for any answer!



    Ljubica Jagodić


    Croatia
    Quote Originally Posted by June Rusdon
    Hi Karen,

    I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards

  7. #7
    Join Date
    Mar 2004
    Posts
    1,140
    "As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."


    As far as enthusiatically promoting it on both sides of the ocean, I don't believe that this is the case. Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study. This seems to have been the case at many centres across North America. All children who were being treated with the SpineCor brace were suddenly left without a supplier.



    Celia

  8. #8
    Join Date
    May 2005
    Posts
    776
    [QUOTE=Celia Vogel]"As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."


    . Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study.

    Hi Celia ;although I really am not in the business of "defending" the current company, I do wonder whether the funding would have stopped when the previous company pulled out. I am also aware that the current manufacturer is only a very small business, so i would be surprised if he would be able to fund research all over the globe.

    If research was conducted in "your hospital" have you any insight in what kind of results were being achieved?

    best wishes

    gerbo (UK)

  9. #9
    Join Date
    Mar 2004
    Posts
    1,140
    Gerbo,

    I hope I'm not creating an international incident or bad press against the current company. This forum is a discussion place for parents and people who suffer from scoliosis. The information I gave you is based on hearsay evidence - i.e., what the orthotist told me. If Biothorex is a small company then it makes sense that funding would have stopped. Unfortunately, I have no insights into preliminary studies at our hospital. I do know that anyone who progressed more than 6 degrees were prescribed a rigid brace.




    Celia

  10. #10
    Join Date
    May 2005
    Posts
    776
    [QUOTE=Celia Vogel]Gerbo,

    I hope I'm not creating an international incident or bad press against the current company.

    Not through me, that's for sure, and free exchange of information can only help us all.

    did read your story about your daughter and how much she improved, very impressed, are you still in contact with dr Mehta, and how is your daughter doing?

    Which was the hospital doing the trial?

    best wishes

    gerbo

  11. #11
    Join Date
    Mar 2004
    Posts
    1,140
    Gerbo,

    I'm all for the free exchange of information. I was thinking that maybe you can contact any of the following centres in the U.K. and see what kind of results they have obtained so far with the SpineCor brace, if you find out anything please let us all know. I've also provided a list of U.S. centres that are currently prescribing the SpineCor if anyone in the U.S. is interested in contacting them to obtain results. If you find anything, please post the results


    UNITED KINGDOM


    DISTRIBUTOR
    Healthcare UK Ltd
    Springwood House
    Foxwood Way, Foxwood Industrial Park
    Chesterfield S41 9RN
    United Kingdom
    Contact: Mr. Andrew J. Mills
    Phone: + 44 (0) 1246 454682
    Fax: + 44 (0) 1246 269042
    e-mail: a.mills@healthcare.uk.net
    web: www.heatlhcare.uk.net


    SHEFFIELD
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    The Sheffield Children's Hospital
    Western Bank
    Sheffield, S10 2TH
    United Kingdom
    Consultants:
    Mr. D L Douglas FRCS
    Mr. A C Howard FRCS
    Mr. A A Cole FRCS
    Tel: +44 (0) 114 271 7000


    CAMBRIDGE
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    Addenbrooke's Hospital NHS Trust
    Hills Road
    Cambridge CB2 2QQ
    Contact: Mr D Conlan FRCS (Orthopaedic Surgeon)
    Tel: +44 (0) 1223 216854
    Secretary: Rita

    Nuffield Hospital Cambridge
    4 Trumpington Road
    Cambridge CB2 2AF
    Contact: Andrew J Mills
    Tel: +44 (0) 1246 454682
    e-mail: a.mills@healthcare.uk.net
    Secretary: Helen Wainwright
    e-mail: h.wainwright@healthcare.uk.net


    MIDDLESBROUGH
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    James Cook University Hospital
    Marton Road
    Middlesbrough
    TS4 3BW
    Contact: Mr S Papastefanou FRCS (Orthopaedic Surgeon)
    Tel: +44 (0) 1642 850850


    SOUTHAMPTON
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    Southampton General Hospital
    Tremona Road
    Southampton
    SO16 6YD
    Contact: Ian Berryman
    Tel: +44 (0) 2380 777222

    STOCKTON ON TEES
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    North Tees & Hartlepool NHS Trust
    University Hospital of North Tees
    Hardwick
    TS19 8PE
    Contact: Richard Webb
    Tel: +44 (0) 1642 617617

    STOKE ON TRENT
    HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
    Hartshill Orthopaedic & Surgical Unit
    North Staffordshire NHS Trust
    Newcastle Road
    Stoke on Trent
    ST4 6QG
    Contact: Mr El-Nasri Ahmed FRCS
    Contact: Mrs Caroline Jackson (Orthotist)
    Orthotic Dept Tel: +44 (0) 1782 553774



    UNITED STATES


    CALIFORNIA
    STUDIO CITY
    NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
    Pain Relief Center
    Scoliosis Care Foundation
    12215 Ventura Blvd
    Suite 208
    Studio City, CA 91604
    Contact: Dr. Gary A Deutchman
    Phone: (212) 360-7760
    Email: scoliosiscenter@optonline.net


    FLORIDA
    PEMBROKE PINES
    NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
    Pembroke Pines Chiropractic Center
    186 S Flamingo Road
    Pembroke Pines, FL 33027
    Contact: Dr. Gary A Deutchman
    Phone: (212) 360-7760
    Email: scoliosiscenter@optonline.net


    ILLINOIS
    CHICAGO
    HOSPITAL AND ORTHOPAEDIC SURGEON
    Rush Presbyterian St-Luke Medical Center
    1725 West Harrison Street,
    Suite 440
    Chicago, IL 60612
    Contact: Dr. Christopher DeWald
    e-mail: orthoscoli@aol.com
    Contact: Ms. Nadine Trznadel, M.S.N., R.N.
    Phone: (312) 942-6517
    Fax: (312) 942-5185
    e-mail: ntrznadel@rush.edu


    MARYLAND
    BALTIMORE
    ORTHOTICS & PROSTHETICS CLINIC
    Denison Orthotics, Inc.
    220 West 28th Street
    Baltimore, MD 21211
    Contact: Mr. Harold E. Thompson
    Contact: Mrs. Michele Koehler
    Phone: (410) 235-9645
    Fax: (410) 243-7043
    e-mail: denison@erols.com


    HOSPITAL AND ORTHOPAEDIC SURGEON
    Johns Hopkins Medical Institute
    Pediatric Orthopaedics
    601 North Caroline Street, # 5253
    Baltimore, MD 21287-0882
    Contact: Dr. Paul D. Sponseller
    Phone: (410) 955-3609
    Fax: (410) 502-6816
    e-mail: psponse@jhmi.edu


    MICHIGAN
    GRAND RAPIDS
    HOSPITAL AND ORTHOPAEDIC SURGEON
    Mary Free Bed Orthotics
    235 Wealthy St. SE
    Grand Rapids
    MI 49503
    Contact: Mr. Doug Richardson CO
    e-mail: drichardson@mfbrc.com
    Contact: Ms. Ellie Boomer CO
    e-mail: eboomer@mfbrc.com
    Phone: (616) 242-0315
    Toll Free: (800) 474-0324
    Fax: (616) 454-2624

    Mary Free Bed Hospital & Rehabilitation Center
    Outpatient Clinic
    235 Wealthy St. SE
    Grand Rapids
    MI 49503
    Contact: Norine Simmons, Clinic Nurse
    e-mail: nsimmons@mfbrc.com
    Phone: (800) 528-8989
    Phone: (616) 242-0353
    Fax: (616) 456-4850

    Orthopaedic & Spine Specialist of West Michigan
    750 East Beltline, NE
    Grand Rapids
    MI 49525
    Contact: Dr Scott Russo MD
    Phone: (616) 942-1313
    Fax: (616) 942 6879


    NEW YORK
    NEW YORK
    NON-SURGICAL TREATMENT RESEARCH & BRACE CENTER
    SpineCor Treatment Provider:
    Dr. Gary A. Deutchman
    Located at the following center:
    Park Avenue Neurology & Rehabilitation, PC
    Chiropractic Care of New York, PLLC
    Scoliosis Care Foundation
    1085 Park Avenue
    New York, NY 10128
    Phone:212-360-7760
    email: scoliosiscenter@optonline.net
    SpineCor Treatment Provider:
    Marc J. Lamantia, D.C., DACBN
    Located at the following center:
    Discover Treatments LLC
    271 Nassau Blvd
    Garden City South
    NY 11530
    New York
    Phone: 212-360-7760
    email: scoliosiscenter@optonline.net



    HOSPITAL AND ORTHOPAEDIC SURGEON
    Hospital for Special Surgery
    523 East 72nd Street, 2nd floor
    New York, NY 10021
    Contact : Dr. Oheneba Boachie-Adjei
    Phone : (212) 606-1948
    Fax : (212) 794-2562
    e-mail : boachie@hss.edu


    PHYSICAL THERAPY CLINIC
    Hospital for Special Surgery
    Rehab Services
    535 E 70th Street
    New York, NY 10021-4892
    Contact : Mrs. Charlene Hannon, P.T.
    Phone : (212) 606-1213
    Fax : (212) 535-0612


    LONG ISLAND
    ORTHOTICS & PROSTHETICS CLINIC
    M. H. Mandelbaum Orthotic & Prosthetic Services, Inc.
    Corporate Office
    116 Oakland Avenue
    Port Jefferson, NY 11777
    Contact: Mr Steve Mullins (Orthotist)
    Phone : (631) 473-8668
    Fax : (631) 473-8691
    Web : www.mhmoandp.com


    HOSPITAL AND ORTHOPAEDIC SURGEON
    Stony Brook University Hospital
    Health Science Center
    T18, Room 080
    Stony Brook, NY, 11794-8181
    Contact : Dr. Wesley V. Carrion
    Phone : (631) 444-7693
    Fax : (631) 444-8894
    Health Science Center
    T18, Room 020
    Stony Brook, NY, 11794-8181
    Contact : Dr. Susan S. Haralabatos
    Phone : (631) 444-8061
    Fax : (631) 444-7671

    POUGHKEEPSIE
    ORTHOTIC & PROSTHETICS CLINIC
    Mid-Hudson Orthopedic Systems
    70 Livingstone Street
    Poughkeepsie, NY
    12601
    Contact: Mr Bob Zwissler
    Phone: (845) 471 7777
    Fax: (845) 471 0088
    e-mail: bzwiss@att.net


    PENNSYLVANIA
    ERIE
    ORTHOTICS & PROSTHETICS CLINIC
    Presque Isle Orthopedic Lab
    1225 Filmore Avenue
    Erie, PA 16505
    Contact : Mr. Jonathan Heifetz C.O.
    Phone : (814) 838-2349
    Toll Free : 1-800-438-2690
    Fax : (814) 835-8042
    email: pioll@aol.com


    HOSPITAL AND ORTHOPAEDIC SURGEON
    Shriners Hospital for Children
    1645 West 8th Street
    Erie, PA 16505
    Contact : Dr. James O. Sanders
    Phone : (800) 873-5437
    Phone : (814) 875-8700
    Fax : (814) 875-8778
    e-mail : josanders@worldnet.ath.net
    Last edited by Celia; 05-26-2005 at 06:11 AM.

  12. #12
    Join Date
    May 2005
    Posts
    776
    Dear Celia

    Well, you are not half thorough, I like that. I'll think of a little questionaire to send to all consultants, asking for their objective/ subjective views/ experiences and see what we'll get back. I'll post this (the questionaire) once i am back from holiday next week

    Best wishes

    gerbo

  13. #13
    Join Date
    Mar 2004
    Posts
    1,140
    Gerbo,

    Thanks for the nice words I'll see what I can come up with on my end - I won't be able to contact every centre though. Are you sending the questionnaire via e-mail ? I was thinking of just calling them on the phone.



    Celia

  14. #14
    Join Date
    Mar 2004
    Posts
    1,140
    Gerbo/Lurkers,

    I spoke to a few orthotists and I e-mailed a few others but I found that I got better responses by just talking to them directly. So... I found out that some centres are getting comparable results to published studies but others are failing miserably, this could be due to a learning curve problem. Very close follow-up is important, the straps have to be replaced/adjusted every three months. I got the impression that this was a major key to success. The type of curve treated is important, apparently long single curves do better than short or double curves. The brace is intended for small curves 30 degrees and under, although curves between 30 and 40 degrees have been treated with the brace. Studies that have been done to date have been on adolescent curves rather than juvenile curves - although it looks like studies in the juvenile group will be done at some point in the not too distant future. That's it in a nutshell.




    Celia

  15. #15
    Join Date
    Dec 2004
    Posts
    236
    Thanks for follow-up and posting. Interesting . . something to think about, and further discuss with ortho. THANKS!
    Pat

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •