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Thread: Hip pain caused by scoliosis...????

  1. #196
    Join Date
    May 2009
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    3,745
    thanks Karen...
    walked puppy today and my left hip never stopped burning...
    so i want to try another half dose steroid shot...end of May
    when i see pain doctor....dental implant surgery rescheduled
    to June 3rd.

    no one knows why Sparky does not get thirsty....i wish there
    was a pill to make him want to drink water...
    will see what they say about scheduling his surgery at tomorrow
    nite's appointment with vet.

    hugs and woofs

  2. #197
    Join Date
    Mar 2010
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    2,769
    Quote Originally Posted by jrnyc View Post
    thanks Karen...
    walked puppy today and my left hip never stopped burning...
    so i want to try another half dose steroid shot...end of May
    when i see pain doctor..
    ..dental implant surgery rescheduled
    to June 3rd.

    no one knows why Sparky does not get thirsty....i wish there
    was a pill to make him want to drink water...
    will see what they say about scheduling his surgery at tomorrow
    nite's appointment with vet.

    hugs and woofs
    Jess,
    No offense, but are you nuts? Your cortisol is low, right? I would recommend pain meds until you can figure out WHY your cortisol keeps crashing. I'm really concerned about this and hope you don't do it. Can you even have dental implant surgery with low cortisol?

    Very concerned,
    Rohrer01

    P.S. My inbox is now empty. ;-)
    Last edited by rohrer01; 05-12-2014 at 11:19 PM.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  3. #198
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    May 2009
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    thanks for the concern, rohr...
    i have one dental surgery left...that should be it...
    and i am sure i have had surgeries before when my cortisol was
    low, since my levels seem to bounce around...
    i have to call the endocrinologist in Manhattan...
    keep procrastinating....upsetting when they don't take
    your insurance...won't know til i call....
    i see endo doc in CT tomorrow...Tuesday May 13th...
    but that will be it...don't like or respect her...
    i am ON pain meds...they do not do much for the burning pain.
    i will discuss getting a shot with my GP, whom i respect the most.

    Sparky got two scheduled vaccinations today...poor baby barked and barked at them when they were done....he was not a happy camper...
    and he is now scheduled for another sonogram May 27th..this time they will do a needle biopsy with it...to see if he does need the surgery...
    i expect them to say he does.

    thanks again for the concern....have to find a doctor who knows
    what they are doing....good endocrinologists are hard to find...

    jess...and Sparky

  4. #199
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    Hope you get some relief and Sparky does as well

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #200
    Join Date
    May 2009
    Posts
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    thanks Melissa

    Sparky is rescheduled for needle biopsy/sonogram
    tomorrow, May 15th....around 1:00...
    i am worried about him...his breath smells bad and i
    brush his teeth every nite...do not know if it could
    be related to the cysts on prostate...but vet will
    check his teeth tomorrow when he goes in...

    he brings so much joy, the sweet puppy...

    jess...and Sparky

  6. #201
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    May 2009
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    the vet that has done his sonograms before did today's...decided not to biopsy....the last sonogram was done by someone
    who doesn't know Sparky...
    the cysts are bigger than 6 months ago, but they are going to wait...i have to bring in urine sample every month and he will get another sonogram in about 3 months...
    they said biopsy is so invasive...this after telling me it doesn't hurt all that much...what do they know?!!

    they sedated Sparky at my request...he was shaking with fear when we got there...always does...vet said he was a very good boy....and he was too sleepy to
    bark at them to tell them off when it was over...

    getting his teeth cleaned next month...vet said there is some plaque on his teeth....his breath was OK today, of course, since he saw vet...

    sweet boy is back home with his momma, where he belongs....

    thanks to all who expressed concern...

    jess...and Sparky
    Last edited by jrnyc; 05-15-2014 at 11:31 PM.

  7. #202
    Join Date
    Sep 2003
    Location
    NJ
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    1,294

    Lightbulb Hip pain

    Quote Originally Posted by jrnyc View Post
    Irina..thank you so much for your kind concern...and your thoughts are much appreciated.
    i hope you recover fully from your surgery, to be pain free.

    rohr...so sorry to hear that your shoulder is still causing pain, but
    i am glad the shot helped for now, and that it answered your question.

    my daily pain at my right hip is so severe it shocks me....
    i am pretty sure inflammation is involved, but i do not know if worsening lumbar curve is causing the inflammation....
    i need a new spinal X ray anyway, as my latest is from Jan 2012....
    but i never have had a hip X ray...i cannot see anything on my 2012
    X ray that tells me anything is going on at hip level....i do see how the curve gets worse there....
    this pain only started a couple of weeks ago, so maybe a new spinal X ray will reveal something going on there.

    you are right, rohr...
    i am very leery about steroid shots...if a doctor told me a very small
    amount of the stuff might help the hip...i still do not know if i would
    risk it...only because there is a chance if my cortisol disappeared again,
    it might not come back...and Addison's disease scares me.

    jess...and Sparky
    Jess, our hips were designed a certain way. With your large lumbar curve the mechanics of walking are way off normal and the gait is affected. This is often a cause of trochanteric hip bursitis. IMHO don't bother with more radiation to your hips. Just address your scoliosis which is impacting your quality of life and your health. Fear is your greatest enemy and spoiling your life.

    I am still pain free 12 years post-op.
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  8. #203
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    Jess-- I don't know if this helps any or not, but I am positive that my scoli caused hip pain for me. I have never been one to wear anything but comfortable shoes past a certain young age (tee hee) but during the few years just prior to my surgery, so many of my shoes caused my hips to ache terribly that I had to give them up. They were just normal short shoes that you wouldn't give a thought to-- but the sole might have had as much as a 3/4" "heel" to them-- enough to tip you forward just a tad. After my surgery they were fine again. At least that is how I viewed it-- tipping me forward... Best wishes. And I agree with Karen. That is what my doctor said-- when your scoliosis interferes with the quality of your life and you can no longer live it the way you want to, you will know it is time to have surgery. He left it up to me, and I decided. I have never regretted it even though it is tough for awhile. It is tough not having it also, and you are not getting anywhere, but progressing backwards. Best wishes as you continue to mull over your options.
    67 and plugging along...
    2007 52į w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15į
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  9. #204
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    May 2009
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    3,745
    thanks for your kind concern, guys....

    must be working on my subconscious...
    i had a dream i was having the surgery...woke up bothered by it...
    the dream had an overall violent sense to it...

    invading my dreams...not good...
    one should be able to get away from troubles when asleep!

    jess...and Sparky

  10. #205
    Join Date
    Mar 2010
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    2,769
    Jess,
    Karen may be right. The longer you wait to fix the spine, the more damage that is done to your hips.
    Spine surgery is scary, but so is hip replacement. That's eventually where you'll be at this rate.
    Perhaps if you can fix the spine, you may be spared the hips...???

    HUGS,
    Rohrer01
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  11. #206
    Join Date
    May 2009
    Posts
    3,745
    i don't know, rohr..
    i was told i have bursitis in left hip...right hip now feels the same
    as left...
    but the surgery scares me...that there is no sure outcome of less
    pain...if there were, i would have had the surgery 7 years ago...

    thanks for the concern...
    jess...and Sparky

  12. #207
    Join Date
    May 2008
    Location
    reno,nevada
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    4,162
    After waiting and living in such pain for all those years, (It was torture) I finally had scoliosis surgery, and healed wonderfully.....

    When my cervical discs finally decided to become extremely painful last year after a few pain free (spine) years, I basically lectured and vented to my surgeon about pain....I didnít want to continue on battling herniated discs anymore!!! For all those years the surgeons were telling me to have scoliosis surgery, and now with the neck, Iím as ready as can be for an ACDF surgery on my neck, but it was a different story..... He was going to manage that with steroids, and diclofenac and it worked. I have taken 2 diclofenac pills in the last 12 months, so that would be considered extremely successful pain management. How many shots does it take to realize that its not successful for the long term? I rejected shots in my lower spine in having 4 lumbar herniationís, Iím not a doctor, but still didnít make any sense to me, Dr Menmuir agreed. I had 20 different pain producing problems down there! A lumbar train wreck.

    Jess, as you can see I have had 2 different scenarios of bravery and decision making here.....spine and neck. When I wasnít ready I needed surgery, and when I was ready, surgery timing wasnít ready. As far as my scoliosis surgical decision, I was too scared and paid a stiff price of major pain through my 40ís. If I could turn back time, I would have done it 10 years earlier. You are in the same exact situation I was in leading up to my scoliosis surgeries.

    One of the things that helped me was watching Dr Boachie fix Juma Genda on the Discovery program ďSurgery Saved my LifeĒ. I watched that program probably 30 times (with the gore) and figured if Juma could be repaired, so could I. This kid was 15 years old, and knew he just had to do this to save his life.

    Your lower spine is as bad as mine was....I wont forget your x-rays.

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  13. #208
    Join Date
    May 2009
    Posts
    3,745
    thanks Ed...for explaining and sharing...

    i fully sympathize with c spine stuff...my recent neck MRI shows i have herniated disc in my neck...i was blaming all the constant neck pain on classic symptom of Lyme...
    and whiplash accident when undergrad in college...but i have to say, finding out i have a herniated disc in neck did not surprise me...the neck pain is with me every minute of every day...

    and even though my cortisol level is still too low, i want to ask for another half dose shot of steroid in hip....bursitis burning pain is hard to take 24/7

    i hate that i am allergic to NSAIDS...told to not risk trying another
    one...the Diclofenac really helped eliminate at least 50% of my pain,
    but i had to stop after 5 months when i had an allergic reaction.

    all said...the pain in my lower back and my hips...especially left hip...
    is the worst of all the pains i live with...but without NSAIDS, with
    nothing but narcotic pain meds, the only other med is the shots....
    and since i have a problem with adrenal function, i have to be so
    very careful and sparing with those...

    i am very glad for you that you were able to avoid surgery on your
    neck, and that a simpler approach helped.
    i hope it is lasting relief....you so deserve a break!

    jess...and Sparky
    Last edited by jrnyc; 05-20-2014 at 11:47 PM.

  14. #209
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,162
    Jess

    You need scoliosis surgery, you know this.....

    This will probably be the only time I type this.....but your special.

    Somehow, someway, I hope the needed trust and bravery will sink in.....

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  15. #210
    Join Date
    May 2009
    Posts
    3,745
    thank you, Ed
    i appreciate your kind words and effort to help me see things
    clearly....
    i know...i know i need the scoli surgery...

    i realize with the pain in my neck...literally...that i live
    with alot more hurting on a daily basis than i care to think
    about...
    i do not know that i am as brave as you...and the others
    who had scoliosis surgery...i especially admire those who
    are fused to sacrum...that scares me the most...

    wishing you a wonderful spring and summer...
    jess...and Sparky

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