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Thread: Thank you, Ed!

  1. #1
    Join Date
    Nov 2012
    Posts
    88

    Thank you, Ed!

    I noticed in another thread that you recently lost your mom. I am so very sorry for your loss. You're a terrific person and we all love your encouragement on this board. You have given us a lot of helpful information. Thank you so much. I've always thought that people with such kind hearts, such strength and stamina, had to have had good parents. Your mom surely was a wonderful lady. I will be praying for you, that you are comforted in the days ahead.
    1973 Age 15 diagnosed with scoliosis but told too old for surgery.
    2001 age 43 told too old for surgery, did physical therapy & traction.
    2001 to 2008 Intermittent use of home traction machine and TENS unit.
    2009 traction no longer effective - physical therapy.
    2011 More physical therapy. 2012 Collapsing scoliosis - MRI before surgery
    At age 53, surgery on October 2nd, 2012 with Dr Hey
    Fusion with titanium rods and bolts from T1 to pelvis.
    Post op x-ray

  2. #2
    Join Date
    Mar 2010
    Posts
    2,755
    Ed,
    I also saw the post where you lost your mom. I'm so sorry to hear this. Sometimes we don't know what to say, but please know you are in our thoughts at this time. I tried to send you a PM but it wouldn't send.

    Take Care.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  3. #3
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,704
    Ed,
    I am sorry to hear of your loss of your mom. I can't imagine how hard this is for you. I'm sure your mom was a wonderful person in order to raise such a kind, caring son.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  4. #4
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Ed, I am very sorry to hear of your loss. Losing a mom is so hard. I pray that you will get though this


    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #5
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Ed,
    I second what everyone else said. You are a special person and so must your Mom have been. You will be in my thoughts and prayers.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  6. #6
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Ed--
    I have been off for a time so hadn't seen the post about your mother. I'm so sorry to hear that. And yes, to echo the ones above, someone as supportive and helpful as you have been to all of us, had to be one very strong, loving person too. You're certainly in my thoughts and prayers. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  7. #7
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    Sending my sympathy also. It is so hard to lose a parent-- we can expect it as we grow older, but when it actually happens, it still hurts so. I lost both my mother and father within 4 months of each other one year. There's a time to grieve and this would be it, and everyone seems to deal with grief in their own way. Let us know what we can do-- individually or as a group. Sending love your way.
    67 and plugging along...
    2007 52į w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15į
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  8. #8
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,111
    Ed,

    I am so, so sorry to hear about your mother. Huge loss. Take care of yourself.

    Best regards,
    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,804
    Thanks guys. The e-mails and PMís are appreciated....you are all wonderful.

    I donít have much to say other than the fact that grief is extremely powerful.....I think that time will heal, and the power of the lord is strong.

    When I return home from Florida, I hope to recover somewhat so I can comment on scoliosis related issues......this is what our forum is about. I know that elders in their 80ís are not allowed to fall, because that is what happened.....Her hip gave out, probably from osteoporotic degeneration....

    My mom was a classical pianist, an artist, and an incredible person. Now, I have to figure out how to get the paintings home....She had all the pictures of course, and have all the old photos now... looking at my shoulder heights during my teen years......I guess it doesnít matter since it all turned out just fine in the end....

    Thx
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #10
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,804
    Iím back home now trying to recover from THE worst stiff neck ever above my fusion, so bad that my left arm and hand has been numb. This is a first time I have ever had nerve related arm issues and think back to those that have had these sorts of problems here in the past.

    I took a 3 year old Celebrex...from my medication arsenal. I will report on the shelf life of this product. lol

    I made it 15 months without any neck issues, but it seems that this is going to be one of my future problems. Last year my surgeon told me that my C5-C6 is showing signs of degeneration....and my neck seems to be falling forward just like ET.

    Once again, I will give Chiro and ultrasound a try....I expect to do around 4 or 5 neck adjustments everyday this week.

    Thanks for all the support...

    Happy Easter

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  11. #11
    Join Date
    May 2009
    Posts
    3,745
    Ed, sorry to hear of you current neck pain...
    i do hope tx helps relieve the pain...
    you have surely been thru enough!

    Happy Easter to you, too...
    i have a pic of Sparky, the Easter bunny, that i will send you...
    hope it makes you smile.

    jess

  12. #12
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I'm sorry to hear that Ed. It's one of my fears as well.

    The first thought that came into my head was, these things happen/get worse during times of severe stress. The tension in our bodies, in particular, brings out pain in all our vulnerable bits. Losing your Mom is a hugely stressful event, so I have hope that as the stress eases, so will your pain. Take it easy.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #13
    Join Date
    Apr 2012
    Posts
    155
    I'm sorry Ed,

    She's in a better place now. My sympathy goes to you. *HUGS* and just read my signature

    Best wishes,

    Kat

  14. #14
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Ed--
    Sorry to hear of the difficulties you are having with your neck. I'm sure the stress of losing your mom has played a role. I know my neck is one of the areas I have the most trouble. I recently have noticed an improvement since my husband got me this "seat" to put on the computer chair. Have you ever used the Backjoy Relief? www.BACKJOY.com 10 minutes at the computer was about all I could handle without my neck acting up. This really has helped. It just positions you differently. We got it at Bed Bath and Beyond for about 40 dollars. Hope things improve soon. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  15. #15
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Ed,

    So sorry to hear of the loss of your mom. Sounds like she was an incredible woman. I hope you can get some relief from your neck pain.

    Best,

    Maria
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

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