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Thread: Susan's surgery at UCSF with Dr. Hu on 19 and 22 March, 2013

  1. #631
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,573

    #3 Surgery scheduled for March 20, 2015

    First, thanks everyone for your kind comments, prayers, and support. I am walking well with crutches, but time is limited due to thoracic pain. I use my wheelchair when I am tired.

    Dr. Hart's office called today.
    My surgery with Drs. Hart and Hiratzka and a thoracic surgeon. Oregon Health and Sciences University [OHSU]
    Surgery: Ant Thoracic Viskectomy [that's what Dr. Hart's surgery scheduler said.....I asked her to spell it twice]....think he meant Diskectomy and fusion T2-3 to T12/L1, T2 to L1 new instrumentation, Segmental Instrumentation T2 to L1, Posterior Smith Peterson Osteotomies T2/3 to T 6/7, Posterior Spinal Fusion T2-L1.....maybe not in that order.
    10 hour surgery
    7 day hospital stay.

    I enjoyed the visit with him, he answered lots of questions, and I have confidence that he will help to resolve my pain.

    Here's hoping.....
    Susan
    Last edited by susancook; 02-28-2015 at 02:32 AM.
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  2. #632
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570
    Susan,

    I think I am saying what many people here are thinking... I feel so bad for you, wish I could help somehow, just don't know what to say. I remember how you mentioned when we first met, that you were so afraid to be one of these people who need multiple revisions, and here you are... I hope that the third surgery would be the last. Hang in here. Many people care about you.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  3. #633
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    98

    Susan

    Like Irena I also feel so bad for you and hope this surgery will fix you problems.
    You have helped me get through my waiting time, just reading how strong you are.
    I am sure there are times that you break down and I hope you family is there for you
    Knowing you have to have an other Long surgery can't be easy. But living with all that pain is not either.
    Susan I hope all goes well for you, i will be thinking of you.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused T10-S1 with screws in pelvis

  4. #634
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163

    Dr Hart will fix you

    Dear Susan,

    I was stunned to read your update, and feel so bad for you. I really do know how disappointing it is to suddenly be faced with broken rods and starting back to square one with recovery. You, however, had really had more than your fair share of complications, similar to babyboomer (Linda B.). I have every confidence that Dr Hart will do an outstanding job getting your back rebuilt. He did an amazing job on my broken rod revision.

    How much family support will you have when hospitalized? I had excellent care at OHSU with my revision, but the days are so long and lonely in the hospital, and I really could have used family help in the hospital. Unfortunately for me my husband was also caring for our two school-aged children when I was hospitalized, and my parents wouldn't dream of visiting me or helping as they don't like hospitals. I think having someone overnight to help with repositioning, pain management, and comfort measures would be tremendously helpful.

    Please let me know if I can help. I am 2 hours away, but I will certainly be thinking of you. You are so tough, I know you will make it past this and get back to the road to recovery. Take care my friend,

    Gayle
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  5. #635
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,956
    Susan, I so sorry this happened the way it did....they will get you fixed up this go around, and get you balanced properly.

    You mention having thoracic pain, were you diagnosed with having any “thoracic” herniation’s? I wonder since I had lumbar and cervical herniation’s and know how brutal that pain is. I wonder what your pain must be like? It must be incredible....

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #636
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Susan,

    Please know that you are in my prayers. I hope that things start turning around for you

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #637
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Susan - sending prayers for this surgery to be the one that fixes your back. I'm sure there are times you don't feel like it, but you are a STRONG woman. It's evident that you care deeply about others. I pray you have the support you need. Please know you are cared for. Fondly, Peggy
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  8. #638
    Join Date
    May 2010
    Posts
    348
    Susan, I am so sorry this is happening to you. I had four revision surgeries (so far.). But every time I went into surgery there was renewed hope. I just felt so bad~~ I was ready for someone to make it right!!! Saying that doesn't mean I wasn't apprehensive, and you already know what to expect as far as recovery. My last surgery was for a broken rod (L1 area). They took everything out T4to sacrum, and put in new, better equipment! But just because they "fixed" a broken rod, didn't help me feel better waking up and all the things we have to go through. BUT IT STILL GIVES A FRESH NEW HOPE! And that's my prayer for you Susan, hope for a better outcome and they can even throw a "miracle"in while their at it.
    I have read a lot about Dr. Hart. Wonderful surgeon from what I read. You sound like your in extreme pain. My advise is don't try to be super woman and white knuckle it! Get something to help with that pain!
    I'm thinking of you and hope you can feel the good vibes coming your way. Sincerely, Linda
    Last edited by babyboomer16; 03-02-2015 at 03:56 PM.
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  9. #639
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,573

    X-ray....

    STUDY: SPINE THORACIC 2 VIEWS 02/24/15 11:46:00

    HISTORY: Scoliosis

    COMPARISON: 12/30/14

    FINDINGS:
    Posterior spinal fixation rods, screws, and laminar wires are evident. The
    hardware is imaged to the level of the mid lumbar spine; the distal hardware is
    not imaged.
    One of the rods is broken at the T12 level, not seen on the prior
    study.
    Lucencies around the T6, T7, T10, T11, and T12 pedicle screws are
    unchanged.
    Upper thoracic degenerative disk disease and exaggerated kyphosis
    appear unchanged. Thoracolumbar degenerative disk disease appears unchanged.
    No acute fracture or focal osseous destruction is identified.

    IMPRESSION:

    1. Broken paraspinal rod, new from 12/30/14.

    2. Unchanged lucencies around multiple thoracic pedicle screws.

    3. Unchanged thoracic degenerative disk disease and exaggerated kyphosis.

    The good news is that the injections around the screws REALLY decreased my pain! I cannot believe how much better I feel! I had the same procedure done before my trip to Mexico and the pain relief lasted for 3 weeks and then the pain gradually returned.

    So, I am depending on Dr. Hart to do his magic!

    Linda. thanks for your kind note. I am doing well, at least in how I am feeling and my attitude as you can read above. I have a GREAT pain management doctor, Grace Chen who has rescued me many times! Of course, I occasionally get twinges and I know that if I do not have the surgery, the honeymoon will not last forever. I just walked around the block with my crutches, but am back in my wheelchair now. I had PT today as well as my pre-op appointment at OHSU. The Internal Medicine doc that I saw and I decided to do a stress test since I am 68 and want to make sure that I am fit for surgery. I am also concerned about preventing another PE.

    Susan.....it is what it is......
    Last edited by susancook; 03-02-2015 at 07:45 PM.
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  10. #640
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Dear Susan,
    Another night with restless leg syndrome, so I decided to check out the Forum. I don't get on here much anymore. I am so sorry to read that you have continued to have problems with pain and other issues. I will definitely be praying for you for a great outcome from this third surgery. It really sucks that some people have to have two or more surgeries on their backs. You are such a special person with your compassion for all the other people on this Forum. God bless you and may He give you the strength you need to face this future surgery.
    Sincerely, Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  11. #641
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    816
    Susan I will be thinking of you this week and praying all goes well. I know you will be busy leading up to the big day. Please let us know how you are doing.Jackie

  12. #642
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Susan, #3 is approaching. You're in my prayers for a successful outcome and healing. I can safely say, ' we are all wishing the best for you'!
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  13. #643
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    Chiming in too to add that you are in my thoughts and prayers as well.
    67 and plugging along...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  14. #644
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163

    Thinking of you Susan

    Hi Susan,

    I have been thinking of you this week and wonder how your surgery went. I hope you are comfortable and starting baby steps on the road to recovery.

    Please let us know how you are when you feel up to it. Your fan club awaits.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  15. #645
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    816
    Yes Susan we are all waiting to hear. Let the healing begin!

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