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Thread: What a mess!

  1. #16
    Join Date
    Apr 2012
    Location
    Harrisburg, Pa.
    Posts
    85
    Steve.....yes, BOACHIE, LENKE AND BRIDWELL ARE ALL TOP NOTCH.....DR. HEY IS JUST CLOSER AND ALSO GOOD. PRAYING GOD SENDS YOU IN RIGHT DIRECTION!!!!
    1963 Fusion T4-L2 for congenital scoliosis. It was a bone graft and not instrumentation
    1989 to Present....Have had chronic pain. MRI's show severe neural foraminal stenosis L2-S1, rotational scoliosis lumbar spine over 40 degrees, compression of nerve roots L5-S1, Broad Based Herniations L4-L5, L5-S
    Surgery scheduled with Dr. Bridwell on December 11, 2012
    December 11, 2012 Had surgery with Dr. Bridwell. He fused L4-L5 with rods and screws.

  2. #17
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    successful broken rod revision one year ago

    Hi Steve,

    As Jess mentioned, I suffered broken rods 15 months after my original fusion surgery (which was T8-sacrum/pelvis). I had one extremely loud, painful pop one day when basically just standing, but nothing showed on x-ray or bone scan. A month later I was bending over to pick something up off the floor and felt and heard another extremely loud pop. This time I felt two distinct pops as the two rods broke completely through. I had a CT scan which suggested there might be a pseudoarthrosis at one level, but he couldn't see for sure. However, my surgeon told me that a broken rod means there is a non-union at that level.

    I underwent a huge revision surgery to repair the rods. My upper back was fine, so my surgeon elected to remove all hardware from L1 down and cut off the broken rods there. He put on connectors and reinstrumented the L1-sacrum. He then did anterior fusions from my side (XLIF) to put cages and bmp between the vertebrae at the 2 levels that were not fused.

    The recovery was still tough, but my pain from broken rods was gone immediately, and I did have an easier recovery than from the original surgery. I just passed the one-year mark after my revision, and my x-rays from last week all looked good. I work full-time, am an active mom, and consider my surgeries a success.

    Here is a link for you to my thread about my experiences if you are interested: http://www.scoliosis.org/forum/showt...t%2Bwas%2Bhear

    Please don't give up. There is a surgeon out there to help you, and you definitely need it. Do not give up, this can be fixed. You can't go wrong in St Louis (Lenke and Bridwell) although they may have a long wait. It seems like Dr Hey would be worth speaking to...he may be willing to look at your x-rays and speak to you by phone before you have to make a trip. Pashmann in Los Angeles (Cedars-Sinai) will do a consultation on x-rays for something like $150 dollars.

    Best of luck, and please do not give up.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #18
    Join Date
    Aug 2010
    Posts
    42
    Trying to contact Dr. Hey now.
    Thanks

  4. #19
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    If you are willing to travel to southern CA, my surgeon would be willing to help you.Let me know if you want his contact info
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #20
    Join Date
    Aug 2010
    Posts
    42
    I did reach a Doctor Hey in N.C. And have made an app. for Feb. 19th.
    This is a big bite for me as I do not have the funds to keep flying all over the country.
    Has anyone else used Doc. Hey? And good or negative feedback? Hope I am going the right way.

  6. #21
    Join Date
    Aug 2010
    Posts
    42
    And also got ahold of Dr. Lenke office who informed me they did not have an opening till the end of April. So it looks that Dr. Hey is the one for now.
    Hope someone else out there has had good revision with him?

  7. #22
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Dr. Hey has a very good reputation. I don't know how much revision work he does. Maybe make the appointment with Dr. Lenke just in case? You can always cancel if things go well with Dr. Hey.

    This is not the time to worry about money. Beg, borrow or steal to get yourself to a doctor who can help. When you are healed, you will be able to work and pay off the debt. The focus has to be on getting better--you deserve it, and your family does, too!!
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  8. #23
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Do keep us up to date. We are interested to follow you and look forward to a happy outcome. One step at a time.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  9. #24
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I went to see Dr Hey in June 2011. I was living in NC , at that time. We were moving to CA . My CA surgeon sent me to see Dr Hey for a second opinion. Dr Hey and Dr Bederman both agreed on the same course of action for my revision surgery in July 2011. If I was still in NC, I would have used Dr Hey without having any second thoughts. He is a great person as well as being a great surgeon
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  10. #25
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Dr. Hey has a website and if I were computer savvy I could type it in.
    Just go to google and type in Dr. Hey.
    Best of luck.
    I agree that you need to do whatever it takes to get a GREAT revision. Borrow money from relatives, drive, and stay in cheap motels. I am traveling 12 hours by car just to go to a surgeon that I trust.
    You deserve to feel better and be more active in your family. The alternative is to give up and I do not sense that you will do that. Your family depends on you too much.
    Keep in touch. You have a cheering squad here. Keep a picture of your family with you and let that picture remind you of why you are doing this.
    Go get 'em!
    Susan
    Last edited by susancook; 02-07-2013 at 04:16 PM. Reason: Can't type worth a damn........
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  11. #26
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901

    Dr. Hey's web site

    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  12. #27
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Steve,
    I don't know what part of the country you are from, but I think it's worth traveling to see Dr. Lenke in St. Louis. I met "Babyboomer" at my two year check up who had had several unsuccessful surgeries prior to seeing Dr. Lenke. She looked wonderful. If you are interested, the phone number is 314-747-2500 ext. 23
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  13. #28
    Join Date
    Apr 2012
    Location
    Harrisburg, Pa.
    Posts
    85

    ScubaSteve

    I am so thrilled you are going to see Dr. Hey.....Like others who have commented on your post, if you have to borrow money, stay in cheap motels and eat peanut and butter sandwiches for dinner, you need quality of life. I have followed him and his miraculous surgeries for several years, and how disappointed I was when I called his office and they did not accept my insurance. I will be anxiously awaiting to hear about your Feb 19th appointment. You can be assured you and your family will be in my prayers.

    Patty
    1963 Fusion T4-L2 for congenital scoliosis. It was a bone graft and not instrumentation
    1989 to Present....Have had chronic pain. MRI's show severe neural foraminal stenosis L2-S1, rotational scoliosis lumbar spine over 40 degrees, compression of nerve roots L5-S1, Broad Based Herniations L4-L5, L5-S
    Surgery scheduled with Dr. Bridwell on December 11, 2012
    December 11, 2012 Had surgery with Dr. Bridwell. He fused L4-L5 with rods and screws.

  14. #29
    Join Date
    Aug 2010
    Posts
    42
    I am nervous now that he doesn't do revisions? Someone suggested he may not. I pray he does as I have already got my plane ticket and getting ready with hotel room.
    I told his secretary that i had 3 breaks in hardware and whatnot so I would assume she would have said " he doesnt do that kind of surgery" right?
    I mean if he doesn't then we just wasted a plane ticket, and we cannot afford to do that.
    Does anyone know if he does do revisions? I have e-mailed his office again and left voicemail so we will see.
    Thanks to all for your kind words and support I felt a new breeze of fresh air in my heart yesterday.
    Pray that Doc. Hey does do revision work though and not just first spinal surgeries!!!!

  15. #30
    Join Date
    Aug 2010
    Posts
    42
    yacpatty,
    Where you looing at Doc Hey for first surgery or revision?

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