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Thread: Would like to hear from anyone that had Anterior only surgery

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  1. #1
    Join Date
    May 2006
    Location
    Michigan
    Posts
    41

    Would like to hear from anyone that had Anterior only surgery

    I would like to hear from anyone that has had anterior only surgery to correct their scoliosis. My daughter had anterior only surgery in August of 2006. She was scheduled to have posterior only surgery,but the day before the surgery the surgeon changed his plan to anterior only. We were already at the hospital and it was out of town, so we had no time for another opinion at that point and put all our faith in the surgeon's call. She was 16 at the time and is now 22 years old. She has had excruitiating pain ever since her surgery. We have had multiple opinions in the last 7 years and every surgeon we went to when he looked at her X-rays asked us why it was done anterior only. I do remember the surgeon saying he though it would giver her a better correction by doing it anterior only but we had it done at Shriner's hospital in Chicago and the surgeon is now at another hospital. I have tried to reach him but have not recieved a call back and since he is at another hospital he probably would not remember her surgery anyway without having access to her records. Every surgeon we have been to for antother opinion has said that they would have done a posterior surgery or and anterior plus posterior. Those that recommended revision have said they would go in posteriorly and stabalize her more and also go down another level or 2.

    She is fused from T-10 to L-2. It seems that she has significant pain right over the area of her fusion. Of course, the pain managment doctors have always been focusing at the unfused part of her spiine below her fusion because of the stress that a fusion can put on the lower levels. She has had epidurals and facet block injections on those lower levels with little help.

    Today he took a lot of time to think this out what could be causing her pain and now he thinks that since the spine is fused only anteriorly that maybe the posterior part of her spince (where her fusion is) is not totally stable and that could be causing her pain since that is the worst area of pain.

    I have searched this forum and I seem to only be able to find people that have had Anterior and Posterior or only Posterior. Is there anyone on here that has had anterior only or is it really that uncommon?

  2. #2
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    I am so sorry for the pain your daughter is enduring. I have not seen anyone on this forum who has had anterior only. I hope you are looking for an SRS revisionist Doctor with tons of experience.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,557
    I feel the same way....I am so sorry this has happened.

    It wouldn’t be a bad idea to go see someone highly qualified to do a revision surgery. Perhaps a trip to TCSC or Dr Lenke.

    She had a shorty done, so it would seem that it shouldn’t be terribly difficult to have her fixed.....this really is good news.

    Do you have any current x-rays you could post?

    Does she have Zielke hardware ?

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    May 2006
    Location
    Michigan
    Posts
    41
    I know her implants were made by DePuy and they are stainless steel. I will pull out her surgical report and see what else I can find. She is at her wits end. We live in Michigan and have been to a few spine surgeons over the the last 7 years since her surgery trying to find an answer. About half said that the last 2 levels "may" not have fused properly by the looks of her x-rays, but the other half have said they think they are definately fused by the looks of her x-rays. All of the surgeons we have gone to have done revisions and one is on the SRS list. They were all here in Michigan where we live. The SRS guy said that scoliosis does not cause pain and after being fused she should not be in pain so he told her to live with it. He was a total waste of time and money to put it bluntly. I will look at her surgical report and see if I can find any more information, but she cannot even live her life like this and is so sorry she had the surgery to begin with, although her curve was progressing quite rapidly between the age of 14 when she was diagnosed and 16 when she had her surgery.

  5. #5
    Join Date
    May 2006
    Location
    Michigan
    Posts
    41
    I tried to attach an x-ray but I think it came out really small, I will try to upload a larger one.

  6. #6
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,527
    I just wanted to support you as a mom that is taking care of her daughter. Your daughter should be out doing all of the fun stuff that young people do. My only suggestion is to go next to one of the best scoliosis revisionist surgeons in the US and help your daughter get on with life. I wish you the best in helping your daughter. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  7. #7
    Join Date
    May 2006
    Location
    Michigan
    Posts
    41
    Ed,
    I just looked at your X-ray, I guess she does have a "shorty" after seeing yours! I attached 2 CT images that show her hardware. I know before surgery the surgeon said she would not need a brace, but immediately afterwards he said she would need to wear a brace for at least 3 months whenever she was up and walking. She did that and when she went back to see him he had her wear it another 2 months. He must have had thought the stability of the hardware was questionable since the day before surgery he said she would need it and after the surgery he changed his mind. If only we could find a dr. that would actually take some time to try to help figure out what is wrong so she could get it fixed.

    I just find it so odd that every surgeon we have consulted have been surprised that her surgery was anterior. It makes me wonder if she did have a posterior surgery in addition if it would help. A couple of them have suggested that then the others said they would leave it alone because she could end up in worse pain. We are now desperate for an answer.

    I would be happy to hear any suggestions!

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