Originally posted by TAMZTOM
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I'm new, college student contemplating surgery :/
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Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Originally posted by Pooka1 View PostIt's possible they will deny surgery because she is only at 43*. It would be a kick in the teeth if they then needed to go below L3. Dr. Hey often uses the phrase, "a stitch in time saves nine" in reference to people who would have benefited from earlier fusion. Marissa might try to get a consult from him.07/11: (10yrs) T40, L39, pelvic tilt, rotation T15 & L11
11/11: Chiari 1 & syrinx, T35, L27, pelvis 0
05/12: (11yrs) stopped brace, assessed T&L 25 - 30...>14lbs , >8 cm
12/12: < 25 LC & TC, >14 cms, >20 lbs, neuro symptoms abated, but are there
05/13: (12yrs) <25, >22cms height, puberty a year ago
Avoid 'faith' in 'experts'. “In consequence of this error many persons pass for normal, and indeed for highly valuable members of society, who are incurably mad...”
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Here is one o f Dr. Hey's blog posts where he uses the phrase...
http://drlloydhey.blogspot.com/2007/...scoliosis.html
This woman was screwed because there is not a single surgeon who would have operated on the T30*.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
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Originally posted by Pooka1 View PostHere is one o f Dr. Hey's blog posts where he uses the phrase...
http://drlloydhey.blogspot.com/2007/...scoliosis.html
This woman was screwed because there is not a single surgeon who would have operated on the T30*.
For Marissa, the issue would be, 'Can focused, specific non-invasive treatment get this goddamn curve down below the progression threshold quickly enough to avoid surgery?'07/11: (10yrs) T40, L39, pelvic tilt, rotation T15 & L11
11/11: Chiari 1 & syrinx, T35, L27, pelvis 0
05/12: (11yrs) stopped brace, assessed T&L 25 - 30...>14lbs , >8 cm
12/12: < 25 LC & TC, >14 cms, >20 lbs, neuro symptoms abated, but are there
05/13: (12yrs) <25, >22cms height, puberty a year ago
Avoid 'faith' in 'experts'. “In consequence of this error many persons pass for normal, and indeed for highly valuable members of society, who are incurably mad...”
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hi Marissa
please do not let any discussion of need for immediate decision
frighten you...
this is all what you would be best off discussing with your surgeon...
or any surgeon you might want to get another opinion from...
there is a list of top scoli surgeons all across the country,
on this scoliosis website...under "resources"
jess...& Sparky
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Originally posted by jrnyc View Posthi Marissa
please do not let any discussion of need for immediate decision
frighten you...
this is all what you would be best off discussing with your surgeon...
or any surgeon you might want to get another opinion from...
there is a list of top scoli surgeons all across the country,
on this scoliosis website...under "resources"
jess...& Sparky
Marissa is not technically surgical in terms of hitting the trigger angle of 50*. So there is no rush from that stand point. But as Dr. Hey's blogs point out over and over again, there are other considerations like length of fusion and where it ends and what that means. There are some things known about this and the surgeon can tell you what they are if you know to ask.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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I agree with surgery sooner
I just want to reiterate that although I'm not happy with my physical appearance my flexibility is great! (T4-L1)
I wish I had surgery sooner so that my compensating curve didn't get so large. And maybe my muscles and soft tissue wouldn't be so imbalanced.
I also did PT- and although it greatly reduced my pain - it did not stop my curves from progressing.
Just my experience. Good luck!!
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Originally posted by king14 View PostI also did PT- and although it greatly reduced my pain - it did not stop my curves from progressing. Just my experience. Good luck!!07/11: (10yrs) T40, L39, pelvic tilt, rotation T15 & L11
11/11: Chiari 1 & syrinx, T35, L27, pelvis 0
05/12: (11yrs) stopped brace, assessed T&L 25 - 30...>14lbs , >8 cm
12/12: < 25 LC & TC, >14 cms, >20 lbs, neuro symptoms abated, but are there
05/13: (12yrs) <25, >22cms height, puberty a year ago
Avoid 'faith' in 'experts'. “In consequence of this error many persons pass for normal, and indeed for highly valuable members of society, who are incurably mad...”
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Hi, I've done numerous types of PT. one lung breathing, stretching short side, strengthening weak side. Aqua therapy, soft tissue manipulation, electric Stim.... The list goes on... I haven't followed Schroth which is what I believe you do... But It has peaked my interest, especially now - willing to try anything that may improve the imbalances in my appearance and my post surgical lean... I wouldn't rule out PT- I was just giving my experience with it.
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Originally posted by king14 View PostHi, I've done numerous types of PT. one lung breathing, stretching short side, strengthening weak side. Aqua therapy, soft tissue manipulation, electric Stim.... The list goes on... I haven't followed Schroth which is what I believe you do... But It has peaked my interest, especially now - willing to try anything that may improve the imbalances in my appearance and my post surgical lean... I wouldn't rule out PT- I was just giving my experience with it.
My post above was TOO short, seemed abrupt. It wasn't intended so. That's a problem with online discussion, easy to accidentally convey the wrong impression. I should have said something like "I'm really intrigued as to what you did."
In addition to much other stuff, yes, we do a lot of KATERINA Schroth type training (not to be confused with the "NU POWER SCHROTH" currently proliferating in the USA).
Regards
Tom07/11: (10yrs) T40, L39, pelvic tilt, rotation T15 & L11
11/11: Chiari 1 & syrinx, T35, L27, pelvis 0
05/12: (11yrs) stopped brace, assessed T&L 25 - 30...>14lbs , >8 cm
12/12: < 25 LC & TC, >14 cms, >20 lbs, neuro symptoms abated, but are there
05/13: (12yrs) <25, >22cms height, puberty a year ago
Avoid 'faith' in 'experts'. “In consequence of this error many persons pass for normal, and indeed for highly valuable members of society, who are incurably mad...”
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