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Thread: I need some confidence....anyone have any to give me? Making the BIG decision!

  1. #151
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Quote Originally Posted by golfnut View Post
    Susan,
    I am glad to read that you are feeling better about having surgery. No one takes the decision for surgery lightly, but we weigh the pros and cons and make the decision that we think is right for us.
    I don't know if you have your hair colored or not, but if so, I would recommend having it done right before your surgery. I also had a throw away razor taped to a long plastic handle for shaving my legs. I used it for many months. I bought slip on Sketcher tennis shoes that I could put on and take off independently with a long shoe horn.
    Best of luck! The waiting was the most difficult time for me.
    Thanks. No hair color, but do have leg shaving needs. I will try to hookup my razor....or just go Northwest Natural....just kidding.
    I have lots of slipon shoes, but will consider a pair of Sketchers.
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  2. #152
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Don't know if you meant the pedi is before surgery, but you might wanna postpone that. They will want to see your unpolished toes as an indicator of circulation. At least that was the policy at Barnes-Jewish.

    My best recovery tools, though an investment, I admit, we're: iPhone, memory foam mattress and risers for the clothes washer/dryer. If you have the inclination to get any of these, shopping might be a good distraction. Also movies, exercise (if possible) and easy-read books. Think Hunger Games or Fifty Shades. These are good pre- and post-op.

    Oh, if you do go shopping, pick up a few tank tops or loose fitting bras. The regular ones are uncomfortable for a while. I'm assuming you've got grabbers and the sock tool. Also long-handled shoe horn and elastic shoe laces for tennis shoes.

    Don't be afraid to post for reassurance. I posted a freak-out email the night before surgery. The responses really helped calm me down.

    Best wishes,
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  3. #153
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
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    Quote Originally Posted by Confusedmom View Post
    Don't know if you meant the pedi is before surgery, but you might wanna postpone that. They will want to see your unpolished toes as an indicator of circulation. At least that was the policy at Barnes-Jewish.

    My best recovery tools, though an investment, I admit, we're: iPhone, memory foam mattress and risers for the clothes washer/dryer. If you have the inclination to get any of these, shopping might be a good distraction. Also movies, exercise (if possible) and easy-read books. Think Hunger Games or Fifty Shades. These are good pre- and post-op.

    Oh, if you do go shopping, pick up a few tank tops or loose fitting bras. The regular ones are uncomfortable for a while. I'm assuming you've got grabbers and the sock tool. Also long-handled shoe horn and elastic shoe laces for tennis shoes.

    Don't be afraid to post for reassurance. I posted a freak-out email the night before surgery. The responses really helped calm me down.

    Best wishes,
    Evelyn
    Thanks, Evelyn. I have most of those items. I did purchase some shirts for under my brace. I am surprised that I am so relaxed about the surgery as I was a basket case all weekend. Maybe I am in denial.
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  4. #154
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Many of us calm right down prior to surgery, sort of "let it all go" type of thing. All I felt in the last few days is, "let's get this show on the road! I've waited long enough!"
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #155
    Join Date
    Jan 2012
    Location
    Yacolt, WA
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    Quote Originally Posted by JenniferG View Post
    Many of us calm right down prior to surgery, sort of "let it all go" type of thing. All I felt in the last few days is, "let's get this show on the road! I've waited long enough!"
    I have researched everything obsessively. Irina said, "I just want to get this over". I know what she was talking about. I just want to DO IT. I trust my surgeon and decided that I was not going to be the 1/100 little old ladies that dies from the surgery. Let go of that one.

    Thanks for your encouragement. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  6. #156
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    You will be in my prayers
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #157
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    I started looking to the future by thinking positive thoughts like "One week from now, I'll have a straight back and no rib hump." or "One month from now, I will be well on my way with recovery." I also had plenty of books to read and signed up for Netflix. For the first time in my life, I didn't feel guilty about taking a nap in the middle of the day or watching a movie while resting.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  8. #158
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Irina's surgery went well. If it had not, I would have difficulty looking forward to surgery.
    I am on vacation with family and friends. We are going up to Crater Lake tomorrow which should be covered in snow. I will work on getting in some zen zone. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  9. #159
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,161
    Hi Susan,

    you sound good! Day by day you are getting there.

    I got my legs waxed a week before surgery since that lasts longer than shaving. Believe me, I did not care one little bit about how my hairy legs looked for many weeks after surgery. I don't think you will, either! I also treated myself to a "back facial" at a nice spa a week before surgery. I convinced myself it might reduce the bacterial count on my skin. It felt nice at least, and I did not get an infection after surgery!

    Don't forget to visit the dentist and have your teeth cleaned before surgery. I made sure and do it several weeks before so that any bacteria released into my blood from the cleaning would be long gone by surgery day. You definitely don't want to have to lay in the dentist's chair for awhile after surgery!

    We're thinking of you as your day gets close.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  10. #160
    Join Date
    Jul 2012
    Location
    Warsaw, MO
    Posts
    373
    Susan,
    Keep the faith and positive thinking going. I am praying for you as each day draws closer.

    Tamena

  11. #161
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
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    Quote Originally Posted by leahdragonfly View Post
    Hi Susan,

    you sound good! Day by day you are getting there.

    I got my legs waxed a week before surgery since that lasts longer than shaving. Believe me, I did not care one little bit about how my hairy legs looked for many weeks after surgery. I don't think you will, either! I also treated myself to a "back facial" at a nice spa a week before surgery. I convinced myself it might reduce the bacterial count on my skin. It felt nice at least, and I did not get an infection after surgery!

    Don't forget to visit the dentist and have your teeth cleaned before surgery. I made sure and do it several weeks before so that any bacteria released into my blood from the cleaning would be long gone by surgery day. You definitely don't want to have to lay in the dentist's chair for awhile after surgery!

    We're thinking of you as your day gets close.
    You and I are on the same wave length. I had my teeth cleaned 2 weeks ago. I will figure out the wax thing. I will be in Oakland for a week before my surgery, so will check out waxing. One thing that is an advantage, is that being 15 years into menopause, hair growth is slow and sparse.

    I didn't make it to the dermatologist, but he/she can wait. My prev MD moved, so I need to start all over again. I have a pain management MD lined up at OHSU for after I return to PDX. We also bought. A condo in PDX, so that I can do my PT at OHSU.

    I think that I will buy some Hebiclens and have my husband wash my back for a few days before surgery. Infection worries me.

    I will call you next week for your suggestions for last minute confidence. I owe you an explanation about changing doctors.

    Surgery is in less than 2 weeks. My right leg and right butt hurt so much from stenototic L4, that it is a reminder that I do need surgery. My Left butt, sciatica has started to hurt. When I look in the mirror, I markedly lean to the right, thus my coronal balance is 11! If I don't have surgery, maybe I would fall over! My left hip and the Meralgia Paresthetica has started to hurt again, so maybe I need another steroid inj in the femoral nerve area.

    I have decided that I want to see the OR. To me, the more machinery and people, the more confidence it would give me. I would actually like to walk to the OR (day one, not day 2). I guess that I don't need to worry about getting to surgery on time on the second day, huh? We will need to go to UCSF quite early on Tuesday as I need to be there at 0600 and my son lives in Oakland and we need to go through rush hour traffic, actually it is probably early for rush hour traffic.

    I have an appointment with Dr. Hu the day before surgery for last minute questions and I want my husband to meet her. She is amazingly calming and relaxed.

    One thing that frustrates me is that she is unsure that my sciatic pain will be better after surgery. That would be a real bummer, to put it mildly. I am trying to relax and just "go with it" and whatever happens, happens, but it is not easy. I will ask her about the pathophysiology of that. My PT thought that maybe the pain pathways had been too long established. Wish that someone had told me about that 6 months ago....but then again, I was still under the umbrella of the steroid injection and was pain free.

    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  12. #162
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Thank you to everyone for your good wishes. I am totally amazed that I am so relaxed now, as I was even thinking of canceling a month ago. I do not think that I would have cancelled as once I commit to something, I don't back out. I feel that I am proactively choosing surgery as the alternative is a progressive decline where surgery would be more difficult and have more risk and less correction. A friend has an aunt who waited until she was in severe pain and 80, and no one would do surgery for her.

    I welcome all prayers and good thoughts on the 19th and 22nd. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  13. #163
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Susan--
    So glad you have reached that relaxed stage. I felt that too. We will all be thinking of you and praying for a great outcome! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

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