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Thread: Will be meeting Dr. Hey soon

  1. #1
    Join Date
    Apr 2008
    Location
    Baker FL
    Posts
    33

    Will be meeting Dr. Hey soon

    It's silly for me to be posting this as I have read nothing but positive remarks from everyone who has seen Dr. Hey. But, I have been in constant pain for 25 yrs. Several surgeries for scoli & neck. I mailed my films & photos to Dr. LaGrone apx a yr ago; he wrote back saying he thought I have flat-back to some degree. I have had to wait as both my Mom & Dad passed away within months of each other. Then my husband had a massive stroke and can no longer speak. I also have his mother in the house to watch over. Pain is severe enough to stop me from cooking or tending house properly. I have been in awe that so many other post speak of being in pain yet being so much more productive then I have these last couple of yrs. I am on medication, it helps greatly. Without it I could not cope.
    I am having some moments of panic as the days click off. I leave in 9 days for my 1st appt. on the 11th of Oct. I guess mostly I just want to thank all of you that post regularly, share your information and encouragement. My current curves are 61.6 at the top & 66.1 at the bottom. I have an area between shoulders that never fused from 1983. My neck is a mess from top to bottom. I also now have problems in the sacrum area with bulging disc. I have pain in my right hip that runs down my leg to the sole of my feet, even my toes. In the neck where it hooks to your skull the pain runs right on up the back of my head to the top of my head. I pray that surgery will be available and scared that it will at the same time.
    I don't post often, but truly thank those of you that do.
    scoli appeared age 15
    untreated until age 30
    41* T & 72* L
    Harrington Rod T4 to L4
    33* T & 53* L
    neck instrumentation C3-4,C4-5,C6-7
    Revision coming up in Nov. 2012

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,795
    Wow Taylor, you sure have a lot on your plate. It must feel very overwhelming at times.

    I just want to wish you the best of luck with your appointment, and hopefully the beginning of an end to your pain.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  3. #3
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Say hi to Dr Hey from Melissa Beckoff

    I certaintly hope that he can help you
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  4. #4
    Join Date
    Apr 2012
    Location
    Harrisburg, Pa.
    Posts
    85

    Dr. Hey

    Please feel very encouraged that a top notch doctor, like Dr. Hey, can help you. Hang onto that hope because help is out there. Please do this for yourself. You have been through a lot and need help so you can function. Please let us know how your appt goes.
    Patty
    1963 Fusion T4-L2 for congenital scoliosis. It was a bone graft and not instrumentation
    1989 to Present....Have had chronic pain. MRI's show severe neural foraminal stenosis L2-S1, rotational scoliosis lumbar spine over 40 degrees, compression of nerve roots L5-S1, Broad Based Herniations L4-L5, L5-S
    Surgery scheduled with Dr. Bridwell on December 11, 2012
    December 11, 2012 Had surgery with Dr. Bridwell. He fused L4-L5 with rods and screws.

  5. #5
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Taylor,
    You are going to a top surgeon who will, hopefully, be able to give you a life with less pain. Please let us know what Dr. Hey says at your appointment.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #6
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Taylor good luck
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  7. #7
    Join Date
    Apr 2008
    Location
    Baker FL
    Posts
    33

    Smile can't thank you enough

    Thank each of you for your response. I needed those words so much. There has been so much these last few years that I did not know where to begin to explain. I am so grateful to have my husband with me, but it is hard not being able to discuss things with him. Also I know he worries enough already without the ability to speak all I can try to do is keep it positive and light hearted. I feel like the great pretender. It is because of this forum that I found Dr. Hey. I am indebted to all of you. I am excited about the pending appointment. There are so many problems in my spine it is hard to imagine the Dr not having an answer and yet I won't believe it until I actually hear him say the words. Then I am scared of another big surgery like this. This will be my 8th surgery, but only the 2nd really big one.
    I must also figure out how to tend the bills, manage directing who needs to do what when as the entire house is dependent on me for everything. It scares me that I might let a ball hit the ground. That is where faith must take over. I am so guilty of taking it to The Lord and then just picking it right back up. Anyway, thanks, I will let you know what happens and YES, I will deliver your personal message of hello. You guys are great!
    scoli appeared age 15
    untreated until age 30
    41* T & 72* L
    Harrington Rod T4 to L4
    33* T & 53* L
    neck instrumentation C3-4,C4-5,C6-7
    Revision coming up in Nov. 2012

  8. #8
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    I hope that Dr. Hey will be able to help you. My heart goes out to you. I am in N. Carolina now and have met with Dr. Hey and he seems very compassionate. I don't need more surgery, but I still have residual nerve pain and he has directed me to good PT's and a good pain clinic.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  9. #9
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,534
    Taylor

    Try not to get too nervous about seeing Dr Hey....I think that since you waited all these years in pain that your turn has come. Its funny how we all go through our lives in pain for many years and then the timing happens for some reason. We all have our own stories, all different but all so similar.

    He should be able to tell you if he can help. I think this is what we all need to hear from our surgeons.....Itís the one thing I heard from mine, even though it would be a tough recovery. I was at a stage where I needed the help, and badly.

    I would look forward to meeting with him and talking things over. Just remember that you donít have to commit, this will be your first meeting.

    I think it was Sharon who first started posting his blog here years ago, and its hard not to like the guy....

    Be sure to let us know how it goes.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #10
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Good luck with your appointment. I bet you will be amazed how he will be able to help you. I hope you can get some help lined up with your household for your recovery. Grown children, perhaps? Best wishes.

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  11. #11
    Join Date
    May 2009
    Posts
    3,745
    hi Taylor....
    i hope the surgeon can help you, offer you hope for an end
    to the pain you have been living with...

    just a note...please, if you do have surgery, please talk to the
    hospital social worker...every hospital has at least one...and tell
    her/him your situation....social workers often know of support,
    some kind of help that could be accessed for you....
    cannot hurt to ask....

    best of luck...
    jess

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