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Thread: Pretty Inspiring

  1. #1
    Join Date
    Sep 2003
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    Northern California
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    6,795

    Pretty Inspiring

    Not sure what type of scoliosis this is, though I doubt it's idiopathic. It can really put it all in perspective for some of us.

    http://www.srs.org/patient_and_famil...es/caitlin.htmHi...
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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  2. #2
    Join Date
    May 2008
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    reno,nevada
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    Scoliosis is extremely complex.

    Why curves progress into the extreme shapes that they do, and why some stand still for periods of time are just two questions in a challenging puzzle that all doctors and scientists throughout the world need to keep trying to solve.

    We all have to be thankful that we have our surgeons and current technology. Nobody wants surgery, but there are times and cases when we have no choice. Caitlin’s case is one of them.

    These testimonials are excellent ways to compare and see curve examples and outcomes. Just when you think your in a tough spot, someone out there like Caitlin pulls through with flying colors....An example of determination, and a will to succeed that many take for granted.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Jun 2011
    Location
    Indiana
    Posts
    68
    That's incredible! It certainly reminds us that a situation can be anything you make it.
    Katie

    My blog: http://scoliosis-braceyourself.blogspot.com/
    My video: http://www.youtube.com/watch?v=8NG9hMohsU0

    5 Boston back braces
    Spinal fusion- Nov. 17, 2009, senior year of high school
    52 and 57 degrees pre-surgery, 22 and 20 degrees post-surgery
    Dr. Kim Hammerberg, Shriners Children's Hospital, Chicago
    Back into volleyball and music as a senior in college!

  4. #4
    Join Date
    Mar 2010
    Posts
    2,755
    It's amazing that poor girl even survived to get to Shriner's. I read one study where the natural progression of scoliosis was followed and the fatalities occurred at around 140*. Wow!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  5. #5
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Who let her curve get so big before someone tried surgery?
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  6. #6
    Join Date
    Nov 2005
    Posts
    402
    That is an amazing correction! I have two dear friends who have/had curves of above 150 degrees - one lives in Europe, the the US. Both are Idiopathic cases, but neither of them received adequate treatment as teenagers. One had surgery in her 30s which basically saved her life as her curve was using severe problems, and corrected her main curve down to about 75 degrees; the other lady's lung function is now too poor for her to consider surgery at all, and she is on full-time oxygen.

    It is very sobering to think of how severe scoliosis can get without treatment, and I know how incredibly fortunate I was to have had such good care.

  7. #7
    Join Date
    May 2008
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    reno,nevada
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    Kids that have scoliosis really need to be watched like a hawk. When curves progress as fast as they sometimes can, each day the situation gets precarious.... There are many reasons why, fear probably being the leading cause. Fear from parents and surgeons.

    Some insight from Dr Nuzzio....(graphic photos)
    http://www.pediatric-orthopedics.com...paralytic.html

    Waiting, thinking, bracing, are all part of the process....

    It was an incredible correction....and a very lucky girl.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #8
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by titaniumed View Post
    Some insight from Dr Nuzzio....(graphic photos)
    http://www.pediatric-orthopedics.com...paralytic.html
    That is just stunning. Just when I think I can't possibly be more amazed at how surgeons can help kids I get more amazed. They are literally saving lives.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
    Join Date
    May 2008
    Location
    reno,nevada
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    Yes it is. And I misspelled his name, its Dr Nuzzo. Sorry Doc.

    It truly is about saving lives..... Scoliosis is “secondary” to many underlying disorders as you can see, so complex, that those that care to ignore these “primary” or initial problems, can or are playing with the unknown which is unwise. Treatment of spinal deformity requires a thorough understanding of the underlying disease, and of course spinal mechanics and balance.

    For those that dedicate their lives studying and trying to answer questions, we owe them a sincere thank you. I do every day. Documentation is important for those that follow in the footsteps, and explaining things in a layman’s format on his webpage is greatly appreciated. His website answers many of our questions, and he keeps adding to it....Thank you.

    Since I have lived my life with scoliosis, and have had loved one’s afflicted by some of the nasty disorders mentioned on the Nuzzo site, I have an interest in asking the main question. WHY?

    Since my 5 year anniversary is this Tuesday, I have purchased myself some new reading material.....(Big smiley face)
    http://www.sciencedirect.com/science/book/9781416033721

    Of course I thank, Dr Menmuir, and all the others, Dr Rembetski, Dr Halki, Dr Uppal, Dr Kannelos, and teams for keeping me going!

    I hope I didn’t forget anyone.....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #10
    Join Date
    Mar 2010
    Posts
    2,755
    Quote Originally Posted by titaniumed View Post
    For those that dedicate their lives studying and trying to answer questions, we owe them a sincere thank you.

    Ed
    I second that thought!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

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