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Thread: Heidi's surgery with Dr. Lenke

  1. #91
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    She fell out of bed?? That's awful. I can't begin to imagine that. I certainly hope things go more smoothly for her soon. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  2. #92
    Join Date
    Apr 2012
    Location
    kansas
    Posts
    38

    6 months til surgery with dr lenke

    Heidi glad you've made it through surgery. I appreciate you sharing your experience.

  3. #93
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    974
    Tamena was posting for Heidi, but since she is in recovery, I will post. Heidi is back at home. Her mother in law is staying with her. She is walking every day, trying to reduce pain meds, and generally seems to be doing well. This is from her friend's post on Facebook. She is still having trouble focusing on email, so it might be a while before she posts here.
    age 48
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
    Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
    Not "confused" anymore, but don't know how to change my username.

  4. #94
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    571
    This is so nice of you, Evelyn, to post for both Heidi and Tamena. Thank you and best wishes to both girls.

  5. #95
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    974
    There is a photo of Heidi on Facebook today. She's up and about at home. She took her first car trip to pick her son up at school. Looks like she's doing well, but still having troubled focusing close up. In her photo, she appears taller and lean in the abdomen. Go Heidi!

    Evelyn
    age 48
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
    Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
    Not "confused" anymore, but don't know how to change my username.

  6. #96
    Join Date
    Feb 2012
    Location
    NC
    Posts
    129

    Hi all. This is MIL Leslie typing for Heidi

    I am 3 1/2 weeks post op. Don't feel like typing yet but I wanted to let everyone know I am OK. As far as I know, the surgery has been successful and I've gained 2 1/2 inches in height. I don't remember much about the hospital stay....didn't think it was a very nice hospital......at least not compared to the hospitals around here. I didn't have a roommate and the room was adequate, but seemed old fashioned...not at all like Dr. Lenke's office.
    I was T4 to the sacrum and my right leg hurts from my hip to my knee. It looks fine but feels bruised and is sensitive to the touch. Dr Kim told my sister that it was because I was lying on a board during surgery, which lasted 9 hours. Also, my right leg is weaker than the left. I am curious if anyone else had a similar problem or has any suggestions.
    I'm definitely stronger in the mornings and I think I am weaning myself off a lot of the meds sooner than most. I am showering and dessing with just minimal help......but cooking and childcare are too difficult right now.
    When I lay flat on my back, I feel like I am wearing the Boston brace I wore in childhood............ So I know I will feel at 100% once my recovery is complete.
    One thing that surprised me......no steri strips were used to close my incision.......... they used glue.
    That's all for now. I'll get back to the forum shortly. Just wanted to let you all know that things are going well for the most part.
    Scheduled for surgery with Dr. Lenke Oct. 2012
    53*T 71*L
    Surgery 10/05/2012 T4-pelvis
    Correction: looks perfect! Will find out how perfect at future appointments

  7. #97
    Join Date
    Feb 2012
    Location
    NC
    Posts
    129

    one more thing

    Thanks Evelyn for keeping the forum up to date.
    Scheduled for surgery with Dr. Lenke Oct. 2012
    53*T 71*L
    Surgery 10/05/2012 T4-pelvis
    Correction: looks perfect! Will find out how perfect at future appointments

  8. #98
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,707
    Heidi,
    I think you are doing really well. You are through the toughest part of the recovery and will start to feel better each week. Once I was weaned off of the pain meds and started getting out of the house (and hearing compliments about my new look) I improved by leaps and bounds.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  9. #99
    Join Date
    Oct 2009
    Location
    Chelsea, MI
    Posts
    53
    Hi Heidi,
    so nice to hear from you! Those first weeks are so tough (to put it mildly). I second what Karen said - at your stage, I really noticed a huge improvement almost day to day. Then weeks and months go by, and you eventually are back up to speed. Of course napping and resting will help a lot - I hope you have enough help at home.
    Just thinking about you,
    Nancy
    Age 58
    Surgery w/ Dr Lenke August 23, 2010
    original curves 91 thoracic, 86 lumbar
    fused T1 to sacrum, new curves 50 and 45

  10. #100
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    974
    Heidi,

    If you are already weaning pain meds, you are rocking, girl!! Keep up the good work. (But take it easy on yourself, too.)

    Best,
    Evelyn
    age 48
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
    Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
    Not "confused" anymore, but don't know how to change my username.

  11. #101
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Quote Originally Posted by hasteffen View Post
    I am 3 1/2 weeks post op. Don't feel like typing yet but I wanted to let everyone know I am OK. As far as I know, the surgery has been successful and I've gained 2 1/2 inches in height. I don't remember much about the hospital stay....didn't think it was a very nice hospital......at least not compared to the hospitals around here. I didn't have a roommate and the room was adequate, but seemed old fashioned...not at all like Dr. Lenke's office.
    I was T4 to the sacrum and my right leg hurts from my hip to my knee. It looks fine but feels bruised and is sensitive to the touch. Dr Kim told my sister that it was because I was lying on a board during surgery, which lasted 9 hours. Also, my right leg is weaker than the left. I am curious if anyone else had a similar problem or has any suggestions.
    I'm definitely stronger in the mornings and I think I am weaning myself off a lot of the meds sooner than most. I am showering and dessing with just minimal help......but cooking and childcare are too difficult right now.
    When I lay flat on my back, I feel like I am wearing the Boston brace I wore in childhood............ So I know I will feel at 100% once my recovery is complete.
    One thing that surprised me......no steri strips were used to close my incision.......... they used glue.
    That's all for now. I'll get back to the forum shortly. Just wanted to let you all know that things are going well for the most part.
    Thank you Leslie! Heidi, you sound good. I hope the hip to knee pain eases as time goes by and various areas of swelling reduce. I just wanted to say that I too, had glue closing my incision and I had no problems whatsoever. You can see a photo of my scar at 11 weeks in my signature. It's very pale now and barely noticeable - amazing really. I would definitely prefer the glue to stitches.

    2.5 inches, that's amazing! You must feel like you're walking around on stilts!

    Take it easy and don't cut out your pain meds too early, all your energy needs to go into healing, not dealing with pain right now. We look forward to hearing from you again soon.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  12. #102
    Join Date
    Feb 2012
    Location
    NC
    Posts
    129

    busy day

    Hello all! Tomorrow I will be 4 weeks post op. I had a busy day... I started with a shower (which I can pretty much do on my own) I need a little help towel drying my hair but can blowdry it myself. I dressed myself. I had to use the sock tool and dressing stick but managed just fine. After breakfast, we headed to lazy boy in search of a comfortable chair for me for the next year or so. The car ride wasn't too bad a few bumps but nothing to make a big deal about. I had my first sneeze today... twice! It only hurt momentarily or maybe I had imagined it would hurt so much worse. I am down to taking 1/2 oxycotin at night. I did take 4 regular tylenol today. I'm not saying I don't have any pain but it is quite managable.
    The one thing that bothers about this whole experience is the things I can't/don't remember. Some family members are telling me some funny stories! I bet Dr. Lenke and his team think I am a piece of work....not sure I want to face them again Drugs... they sure do make some people say/ do the darndest things.
    Went for a walk with my oldest daughter this afternoon.
    The drug withdrawls have been at a minimum today and my crying spells have been limited.
    Overall, I feel fairly confident that I will have a successful outcome and will eventually be back to better then normal!
    Thanks to everyone who has stuck by me and kept up with me. I will update you when or if anything happens!
    Best,
    Heidi
    Scheduled for surgery with Dr. Lenke Oct. 2012
    53*T 71*L
    Surgery 10/05/2012 T4-pelvis
    Correction: looks perfect! Will find out how perfect at future appointments

  13. #103
    Join Date
    May 2009
    Posts
    3,745
    Heidi...i believe oxycontin is time released...
    which means it is not supposed to be cut in half...
    maybe you should check with your doctor....????
    also...did he OK how much tylenol you are taking...?

    hope you feel better every day....

    jess...& Sparky

  14. #104
    Join Date
    Feb 2012
    Location
    NC
    Posts
    129
    Jess,
    My hubby is a dr and i have the privledge of a local spine doc as a neighbor who both ok it. As far as tylenol your liver can
    Only handle 4000mg which i am way below that. I am feeling so much better since getting off the narcotics. Besifes the fact that i am no longer falling out of bed or off the toilet because i was so impaired. I really
    Have minimal pain now and can only praise God for his protection while i was on all those drugs and thank Him for my healing. I have asked him to carry my pain and he has answered my prayers.
    Scheduled for surgery with Dr. Lenke Oct. 2012
    53*T 71*L
    Surgery 10/05/2012 T4-pelvis
    Correction: looks perfect! Will find out how perfect at future appointments

  15. #105
    Join Date
    Jul 2012
    Posts
    63
    Quote Originally Posted by hasteffen View Post
    Hello all! Tomorrow I will be 4 weeks post op. I had a busy day... I started with a shower (which I can pretty much do on my own) I need a little help towel drying my hair but can blowdry it myself. I dressed myself. I had to use the sock tool and dressing stick but managed just fine. After breakfast, we headed to lazy boy in search of a comfortable chair for me for the next year or so. The car ride wasn't too bad a few bumps but nothing to make a big deal about. I had my first sneeze today... twice! It only hurt momentarily or maybe I had imagined it would hurt so much worse. I am down to taking 1/2 oxycotin at night. I did take 4 regular tylenol today. I'm not saying I don't have any pain but it is quite managable.
    The one thing that bothers about this whole experience is the things I can't/don't remember. Some family members are telling me some funny stories! I bet Dr. Lenke and his team think I am a piece of work....not sure I want to face them again Drugs... they sure do make some people say/ do the darndest things.
    Went for a walk with my oldest daughter this afternoon.
    The drug withdrawls have been at a minimum today and my crying spells have been limited.
    Overall, I feel fairly confident that I will have a successful outcome and will eventually be back to better then normal! By the way I had my second sneeze tonight too. Ouch!!!!! Also recovering from a hick up in
    Thanks to everyone who has stuck by me and happens!
    Best,
    Heidi
    Heidi, your recovery sounds so similar to mine. I am too just a little over 4 weeks post-op and am doing most everything that you are. I can now shower and dry my hair on my own. I have definitely had many crying spells in the past week or so. Trying to wean off the Meds slowly and walking the neighborhood a few times a week. I split it up a few times a day but am up to about 1 miles throughout the day. Mostly muscle
    Pain lately, some neck pain and stiffness. I'm currently on oxycodone, acetaminophen, valium, flexeril and some stool softeners. I feel like the Valium is going to be the most difficult to let go of since it really helps with muscle soreness. But well see how the weeks go! Sneezing does hurt! Tonight was my second and no fun! Hope we keep improving!!!!

    Hannah

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