I had a consult with Pernendu Gupta in Chicago. He was one of Lawrence Lenke's fellows. He seems very kind. But I gotta tell you, I think with your situation I'd be looking for THE top doctor in the country. I would PM Linda Racine, the moderator, and get her advice. The blood loss can be very significant, so you need a top pediatric revision specialist who can be accompanied by a top pediatric cardiologist. Maybe the Hospital for Special Surgeries in New York? Just a thought. Best wishes!
Evelyn
age 44
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
Not "confused" anymore, but don't know how to change my username.