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Thread: On the search again....Hospitals and doctors in Chicago?

  1. #1
    Join Date
    Aug 2011
    Posts
    19

    On the search again....Hospitals and doctors in Chicago?

    Hello! It's been awhile since I've been on the boards...life kinda happened and we've just been waiting things out. So we are back to searching for a great doctor and hospital now. So I was wondering is there any good revision doctors in Chicago? I hear that Rush Medical is suppose to be a wonderful hospital. Just alittle background info...My daughter is 18, she's had 3 open heart surgeries and 3 spine surgeries...the doctors really screwed up her back. She now has Kyphosis and Lordosis. We went to see Dr. Samdani who sent us home saying he would not do surgery on his own daughter if she was in the condition that mine was in mainly because Shriners doesn't have a dedicated cardiac team. He's a good doctor, I believe that but his fear was for the massive blood loss that might occur over 3 surgeries....the amount of surgeries it would take to break her fusion and redo her back. So can anyone tell me anything about Chicago and the doctors there? There are so many doctors and hospitals it is really mind boggling to know who would be the betst to go too.

    Thanks for taking the time to read my post.

    Kellie

  2. #2
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    Hi. I'm sorry to hear about your daughter's problems. I had my surgery at Rush, but my surgeon, Dr. Hammerberg, now has moved all his practice and surgeries to Shriner's (it was split before). I go for my check-ups to his partner, who is supposed to also be an excellent surgeon. His name is Christopher DeWald. I know another member was quite please with her surgery at University of Chicago(?) with Dr. Gupta. If your daughter is not too old for Shriner's, maybe she could go there... Best wishes.
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  3. #3
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    I had a consult with Pernendu Gupta in Chicago. He was one of Lawrence Lenke's fellows. He seems very kind. But I gotta tell you, I think with your situation I'd be looking for THE top doctor in the country. I would PM Linda Racine, the moderator, and get her advice. The blood loss can be very significant, so you need a top pediatric revision specialist who can be accompanied by a top pediatric cardiologist. Maybe the Hospital for Special Surgeries in New York? Just a thought. Best wishes!

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  4. #4
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hi Sierra's Mom,

    I am not sure if HSS in NYC has a full medical team (cardio specialist) either that would be able to handle this sort of thing. Maybe they do, but I've never heard it mentioned for that.

    I replied on the other thread before seeing that you are located in Chicago. I will see if I can come up with anything, but I agree that you would want THE best team in the country for this and should keep the search open to all areas, which I can see you are doing as evidenced by your travelling to Philly.

    Best of luck and please keep us posted!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  5. #5
    Join Date
    Aug 2011
    Posts
    19

    Thanks!

    Thanks Susie, ConfusedMom, and Maria! I actually live in Louisville, Ky. but I was looking at a list of top hospital's and it named Rush as one of them. We are open to traveling anywhere if insurance would allow because I do want her to have the best. I will check with Linda(?) and see what she has to say. There is so much to consider so we aren't in any rush to be honest. Before we went to Philly we checked with The Hospital of Special Surgeries but for some reason I can't remember why at this point it wasn't a good choice. Things are different now since she has a different insurance so there may be more options for her then there were before. I may make an appointment with her cardiac surgeon to see what he has to say, her cardiologist seems to thing there shouldn't be a problem with her having surgery but he is not a surgeon. I will keep you all posted. I'm off to bed now. Thank you for the replies!!

    Kellie

  6. #6
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Kellie,

    I also posted on your other thread asking if Dr. Samdani was able to recommend anyone. Just curious - I am hoping that he or perhaps Dr. Betz can offer a few suggestions. Let me know - thanks, and best of luck!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  7. #7
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Dr Steven Glassman is a respected scoliosis surgeon in Loiusville. Have you seen him? I'm not saying he's the one to do the surgery, but maybe he could point you in the right direction. Of course, I will also have to put in a plug for my surgeon, Dr. Lawrence Lenke in St. Louis. He works at Barnes Jewish hospital, which is rated as a top 10 orthopedic hospital nationwide. He is definitely one of the best scoli surgeons, but I'd want to find out about the cardiac team there, as well. Keep us posted.

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  8. #8
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    i whould recmenion Dr P Gupta at the university of chicago
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

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