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Thread: Rainbow children and babies hospital..

  1. #1
    Join Date
    Jun 2012
    Posts
    15

    Rainbow children and babies hospital..

    Has anyone's child gone to Rainbow children and babies hospital in Cleveland for their surgery? (or any kind of treatment. Doesn't have to be scoliosis related). How was your experience? I made an appointment for Ashleigh to see an orthopedic surgeon up there on the 20th. I want to be 100% confident in the doctor we're choosing. And i thought i was 100% confident in the surgeon we had, but then my husband started hesitating and it got me thinking, maybe we should check out other hospitals and doctors. My SIL is making me a nervous wreck though. Her son was hospitalized at Rainbow and they had a terrible time there. She kept going on about how there was dirt in the corners of the room, and to many patients not enough nurses. I don't want her to be at a dirty under staffed hospital! Especially since she'll be having major surgery. I'm hoping her's is the exception and not the rule.

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,311
    Why don't you ask for a tour of the hospital? I don't know if they do that but I think they might.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163

    what about Shriner's?

    Hi,

    I have no experience with Rainbow, but your SIL's report is concerning. My daughter had surgery at Shriner's Hospital (in St Louis, though there are others closer to you). She had absolutely stellar care from the moment we walked in to the moment we left. My daughter's nurses frequently had just one other child in their care, and she received tons of attention from the nurses, doctors and respiratory therapists. It really made her surgery a wonderful experience, considering the circumstances.

    Best of luck, and I think it is extremely smart to get at least one other expert opinion from a pediatric scoliosis specialist.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

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