Results 1 to 7 of 7

Thread: Severe Scoliosis at 61, looking to interview surgeons in Orange County CA

  1. #1
    Join Date
    Jun 2012
    Posts
    2

    Severe Scoliosis at 61, looking to interview surgeons in Orange County CA

    I have 2 curves both over 90 degrees as I was told they would not progress, WRONG. I have nerve pain in my leg and cannot
    stand or walk for long periods of time.

    I am told that the curve will continue to progress by one DR I have seen.

    Totally scared of surgery, and scared if I don't have it.

    1. First if anyone has anything like I have
    2. If anyone can recommend a WONDERFUL surgeon due to my very severe case

  2. #2
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I think that you should visit Dr Bederman at UCI . He is a wonderful surgeon as well as being a great person
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #3
    Join Date
    Jun 2012
    Posts
    2

    Dr. Bederman

    I have seen Dr. Bederman yes he is very nice.

    May I ask what type of curve you had, and why are you having so many surgeries?
    Please do not take offense to my questions, but I am just learing about all this surgery
    stuff.

    Also may I ask your approximate age, like over 50 over 60, under 50, 40 etc.

  4. #4
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525

    Researching a doctor or other matter on the forum

    Just some info about the forum: If you find a doctor that you are interested in seeing, maybe like Dr. Bederman, type in his name, just type in Bederman, do not put the Dr. in front of his name. Then every blog entry that mentions his name will come up and you can read what somebody has done with him or their comments about his care. I didn't know about that feature for a month or so after using the forum, and found it helpful when researching something.

    Welcome to the forum and best of luck and I know that you will find a doctor that your have confidence in. Ask LOTS of questions. Keep a notebook where you write down your questions as they come to you, sometimes I think of a question at the supermarket and I write it down in a small notebook that I carry w/ me and transcribe it to the big notebook that I have that I take to all scoliosis doctor's, physical therapist, and pain control MD offices that I see. That way when you go to see the doctor, you are organized and you can write down the answers and keep the information. When you go to a doctor's office, research shows that you hear about 20% or less of what he/she says, so write it down. I suggest that you also bring along a friend or partner to listen also.

    I will start a thread about what questions one should ask a doctor when considering that person to be your surgeon. That will help me also as I have not had surgery, but will probably be intervewing surgeons sometime in the future.

    Susan
    Last edited by susancook; 07-06-2012 at 02:57 PM. Reason: enter a title, forgot to do it
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  5. #5
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Quote Originally Posted by kokapellis View Post
    I have 2 curves both over 90 degrees as I was told they would not progress, WRONG. I have nerve pain in my leg and cannot
    stand or walk for long periods of time.

    I am told that the curve will continue to progress by one DR I have seen.

    Totally scared of surgery, and scared if I don't have it.

    1. First if anyone has anything like I have
    2. If anyone can recommend a WONDERFUL surgeon due to my very severe case
    I'm in Australia so can't help with the surgeon though I know lots of members will suggest their surgeons because there are many great surgeons to choose from. Also, there are many here who had worse curves than me, but I really just wanted to say, we are all scared to face this surgery. I was terrified. Initially I couldn't even imagine having it. I cancelled my first date but by the time I had surgery, I had all my questions answered, mostly here, and I had a better picture of what would be happening and I had no nasty surprises. I went into surgery without terrible nerves, just eager to get it over with and get on with my life. So as has been said, ask questions, anything that pops into your head. This will help. We all completely understand the fear. Welcome!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  6. #6
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Welcome to the forum. As Jennifer said, we were all terrified, but most have been glad they had the surgery. You might want to start a similar thread in the Surgery First Time instead of the Revision section. I was fortunate to have one of the best surgeons (Dr. Lenke) within 30 miles of our house, so I didn't seek another or even get a second opinion.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  7. #7
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by kokapellis View Post
    I have 2 curves both over 90 degrees as I was told they would not progress, WRONG. I have nerve pain in my leg and cannot
    stand or walk for long periods of time.

    I am told that the curve will continue to progress by one DR I have seen.

    Totally scared of surgery, and scared if I don't have it.

    1. First if anyone has anything like I have
    2. If anyone can recommend a WONDERFUL surgeon due to my very severe case
    Hi and welcome.

    Can I just ask how big your curves were when you were told they would not progress?

    Many people were told that and I think more recent studies have revealed a better idea of whether or not progression can be expected. The best information out there now is that 30* or lower is generally thought to be protective against progression to surgery range in a lifetime. That doesn't consider collapses though, either in the structural curve or the compensatory curve which are true wildcards it seems.

    On the other hand, we have people whose curves were about 30* and south of there who nevertheless progressed to surgery range. That would not be expected but anything can happen it seems with scoliosis.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •