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Thread: Pencilled in for surgery on 26th July!

  1. #1
    Join Date
    May 2012
    Location
    United Kingdom, Leeds
    Posts
    128

    Exclamation Pencilled in for surgery on 26th July!

    So after a weekend of research and being glued to the phone I managed to speak to the person responsible for referring patients to different hospitals or getting them surgery urgently if the hospital has breached its constitution.

    I was told on 19th June that he would make enquiries immediately and come back to me in a few days, referral in Oct 2010 and now a possible surgery date not until March 2013 is not acceptable.

    I received a call on 25th June saying that they had pencilled me in for surgery on 26th July. I know there is always the chance it gets cancelled and he did say he has to confirm with a few other people before coming back to me on 2nd July but I want to be excited and get prepared for surgery.

    I've been waiting so long and now it might finally be happening!
    27 yr old Female.
    Scoliosis since 12yrs, fusion to lower curve in 1998, costioplast 2001 and further corrective surgery 26 July 2012.
    Now the proud owner of a very straight spine. T1- L5 fusion.
    Mr Dunsmuir, Orthopaedic Surgeon, LGI Leeds.

  2. #2
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Wow Jenna, this is a turn for the better! Will it be Mr. Dunsmuir who does your surgery, or another surgeon? Hoping there are no changes to this date and it all goes smoothly from here on in!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #3
    Join Date
    May 2012
    Location
    United Kingdom, Leeds
    Posts
    128
    Hi Jen

    Yes it will be with him. They said they want me to have the continuity of care I need and deserve and it makes sense to keep me near home and under a surgeon that I've had contact with for years as well as being concerned about my progression.

    Shame then didn't realise this 12 mths ago but if me stamping my feet gets my surgery on 26th July I'll be happy. I've got everything crossed but feel like my emotions are all over the place. I'm excited and nervous but scared then trying to calm myself and not think about it, then I feel like crying :-)

    Think I need to keep busy and keep everything crossed!! Our holiday to portugal on 6th July for a week should help too

    Jenna x
    27 yr old Female.
    Scoliosis since 12yrs, fusion to lower curve in 1998, costioplast 2001 and further corrective surgery 26 July 2012.
    Now the proud owner of a very straight spine. T1- L5 fusion.
    Mr Dunsmuir, Orthopaedic Surgeon, LGI Leeds.

  4. #4
    Join Date
    May 2012
    Location
    Columbia, SC
    Posts
    75

    Glad to hear you have a date!

    My surgery will be July 23 in St. Louis with Dr. Lenke. Our time is drawing near quickly! I will pray for a smooth recovery for you. You have waited a long time for this.
    Jane

  5. #5
    Join Date
    Mar 2010
    Posts
    2,755
    Jenna,
    I'm also tentatively excited! I just don't want to see you get your hopes up high and then be disappointed again. I really hope this is it for you!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  6. #6
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad to hear that you have a date finally.
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #7
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Jenna--
    Wow, that would be a change from your old date. I'll keep my fingers crossed and pray for the best for you for a July surgery. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  8. #8
    Join Date
    Mar 2010
    Posts
    2,755
    Just an added thought. It's the squeaking wheel that gets oiled. You've squeaked, but don't stop squeaking until you get that date set! It's nice to finally have some hope for relief. You deserve it! I just can't imagine what you are going through having to be put off with a curve that large. Besides, how do they know that you aren't still progressing? When was your last radiograph? Keep up the good work, don't let them rest and be well so you can get on with the rest of your life! ((((HUGS))))
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  9. #9
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Quote Originally Posted by Jenna.KB View Post
    Hi Jen

    Yes it will be with him. They said they want me to have the continuity of care I need and deserve and it makes sense to keep me near home and under a surgeon that I've had contact with for years as well as being concerned about my progression.

    Shame then didn't realise this 12 mths ago but if me stamping my feet gets my surgery on 26th July I'll be happy. I've got everything crossed but feel like my emotions are all over the place. I'm excited and nervous but scared then trying to calm myself and not think about it, then I feel like crying :-)

    Think I need to keep busy and keep everything crossed!! Our holiday to portugal on 6th July for a week should help too

    Jenna x
    I agree, the holiday will help. We went away for the last fortnight before surgery. The time flew and my mind was taken off it as we drove, walked, kayaked and caught up with family during that time. A bit of sunshine will be nice too!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #10
    Join Date
    May 2012
    Location
    United Kingdom, Leeds
    Posts
    128

    Smile

    Hi

    Thanks for your messages.

    Jane, I noted our surgeries should be really close together and fused nearly the same so it would be nice to stay in touch.

    Jen, yes I'm hoping the holiday takes my mind off things. I'm a bit of a sun goddess and due to pain I'm sure we'll just laze around all week so I'm looking forward to it.

    Rohrer, I'm keeping everything crossed and I'm ready to get on that phone monday if I haven't had a further update :-)

    I haven't had an x-ray since January but due to the pains I've been getting and shifting of my chest and rib cage I'm sure i've had more progression, my GP agrees and my physiotherapist said this morning that I look more shifted to the right when I stand. I guess I won't know until I have further pre op tests.

    I'm going to stay positive and keep everything crossed but I'm grateful for your prayers.

    Thanks
    27 yr old Female.
    Scoliosis since 12yrs, fusion to lower curve in 1998, costioplast 2001 and further corrective surgery 26 July 2012.
    Now the proud owner of a very straight spine. T1- L5 fusion.
    Mr Dunsmuir, Orthopaedic Surgeon, LGI Leeds.

  11. #11
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Jenna,
    Glad to hear the good news! I'll keep my fingers crossed for you.

    Best,
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

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