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Thread: Another Patient Advocacy Source

  1. #1
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,248

    Another Patient Advocacy Source

    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  2. #2
    Join Date
    Mar 2010
    Posts
    2,667
    Thank you, Linda. These are very helpful. It might be nice to consolidate these groups into one "sticky thread". It's just an idea. I cringe when I read about people with 100*+ curves not getting the help that they need BEFORE their backs get that bad. These organizations may be able to help them get the surgeries that they so desperately need.
    1985 - Dx w/ painful AIS at 16 with 39* upper LEFT thoracic single curve.
    2000 - 41*
    2010 - 46* (T1 - T6) 38* (T6-L2) Now a double thoracic
    2012 - Dx w/ Cervical Muscle Dystonia.
    DDD L5/S1 with left nerve impingement
    Left SI joint dysfunction

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,248
    I couldn't find the other one I posted. If you find it, let me know, and I'll consolidate. Thanks.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  4. #4
    Join Date
    Mar 2010
    Posts
    2,667
    I looked and can't find it, either. Maybe you posted it within another thread. I remember reading it, though.
    1985 - Dx w/ painful AIS at 16 with 39* upper LEFT thoracic single curve.
    2000 - 41*
    2010 - 46* (T1 - T6) 38* (T6-L2) Now a double thoracic
    2012 - Dx w/ Cervical Muscle Dystonia.
    DDD L5/S1 with left nerve impingement
    Left SI joint dysfunction

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,248
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

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