I am completely new to forums so I hope that I am doing this right. I have a 13 year old daughter who was just diagnosed with scoliosis. She has 3 curves. 28 degrees thoracic to the left, 21 degrees thoracic to the right and 43 degrees lumbar to the left. I am feeling guilty that I did not spot this until I received a note home from the school after a screening that there might be a curve. Well apparently there was - 3 of them.
My last experience with scoliosis was in the late 70's watching my sister and mother fight over my sister not wearing her brace. She really struggled with that thing. She did not always wear it as she should and she now admits to having back pain and wishing that she would have been better about using it.
So now here we are today and my daughter is going to have to go through this. Just a brief background on my daughter. She was the baby that I thought I was never going to have. She was a foster baby that we brought home at 2 months and she was 2 months premature. She was tiny!!!! We were fortunate to be able to adopt her.
We discovered that she was mildly autistic at the age of 4. She has terrible exzema and breaks out in a rash with the slightest of heat. I am nervous that she will have to wear a brace of which her pediatrician does not think she will tolerate well. She has terrible hygiene habits. Many bowel accidents that she needs help with. Not sure how a brace will work with all of this.
I have an appointment for her on June 1st with Dr. Aminian at CHOC Orthopedic Spine Institute in Orange, Ca. My pediatrician has given him very high praises. Has anyone heard of him.
While waiting for the appointment I think that I have completely become obssessed and have read every article on scoliosis that I can find. I see a lot information talking about 2 curves but not a lot of information on 3 curves.
I am hoping that someone can give me an insight on what to expect on our first visit. Does anyone have experience with an autistic child wearing a brace that has sensory issues.
Any information, advice or just calming words would be greatly appreciated. I am one nervous mom right now and trying very hard to keep it in as to not upset my daughter in any way.
My last experience with scoliosis was in the late 70's watching my sister and mother fight over my sister not wearing her brace. She really struggled with that thing. She did not always wear it as she should and she now admits to having back pain and wishing that she would have been better about using it.
So now here we are today and my daughter is going to have to go through this. Just a brief background on my daughter. She was the baby that I thought I was never going to have. She was a foster baby that we brought home at 2 months and she was 2 months premature. She was tiny!!!! We were fortunate to be able to adopt her.
We discovered that she was mildly autistic at the age of 4. She has terrible exzema and breaks out in a rash with the slightest of heat. I am nervous that she will have to wear a brace of which her pediatrician does not think she will tolerate well. She has terrible hygiene habits. Many bowel accidents that she needs help with. Not sure how a brace will work with all of this.
I have an appointment for her on June 1st with Dr. Aminian at CHOC Orthopedic Spine Institute in Orange, Ca. My pediatrician has given him very high praises. Has anyone heard of him.
While waiting for the appointment I think that I have completely become obssessed and have read every article on scoliosis that I can find. I see a lot information talking about 2 curves but not a lot of information on 3 curves.
I am hoping that someone can give me an insight on what to expect on our first visit. Does anyone have experience with an autistic child wearing a brace that has sensory issues.
Any information, advice or just calming words would be greatly appreciated. I am one nervous mom right now and trying very hard to keep it in as to not upset my daughter in any way.
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