Hi!

My name is Alesha and I am brand new to this site. I am so excited to get a chance to talk with other Scolio patients.

In 2000 I was diagnosed with minor Idiopathic Thoracic Scoliosis, I was 11 years old. I went through Chiropractic treatment for just about a year when they told me that my curve was to severe to continue their treatment and I needed to see a surgeon. In early 2001, at 12 years old, I began seeing Dr. Jeffery Settecerri. He said that my curve had surpassed the brace stage and I would need surgery, my curve was 60 degrees at this point. I had to have a full body MRI to make sure that there wouldn't be anything that could be disruptive to the surgery. In that process, I was diagnosed with Chari Malformation type 1. They said that I would need Chari surgery first and I may not have to have the Scoliosis surgery depending on the outcome. On February 5th 2001 I had my first Chari Decompression Surgery. In about a month after the chari decompression, my curve increased from 60 degrees to 71 degrees and the Scoliosis Surgery was scheduled. The Spinal Fusion took place on April 16, 2001 and it took 13 hours. In November 2009 I under went a second Chari Decompression surgery.

This year has been the worst year yet, in regards to pain. My lower back and shoulders seem to hurt more than ever before, even before the surgeries. I have problems with tingling and numbness in my lower back and my legs, which only seems to get better when I get up and move around. I know the doctor said that there is a strong chance that I would have to go through another surgery in my upper 20s-mid 30s, but I am starting to wonder if the pain I am experiencing is what he was warning me about.

Is there anyone on this forum that has/is going through pain again? What are you doing to help the pain?

I thank you for taking the time to learn a bit about my story and help with some advice.