Page 2 of 2 FirstFirst 12
Results 16 to 19 of 19

Thread: 6 month old son diagnosed with Scoliosis

  1. #16
    Join Date
    Mar 2012
    Posts
    6
    We did the MRI last Thursday and meet with the Dr tomorrow. I am a bit nervous

  2. #17
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    991
    Hi Mike,

    Glad to hear the MRI is done. Try to hang in there until the dr's appt tomorrow, one step at a time. Enjoy Julian's daily milestones because this time really does go by so fast.

    Please do let us know how tomorrow's appointment goes. When do you go to Shriner's?

    Take care,
    Gayle, age 46
    Boston brace as a teen for AIS
    Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
    Feb 2012 major A/P revision for broken rods


    mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
    4/08 26 degrees, brace 16 hrs/day
    9/08 17 deg. OOB - brace discontinued
    9/09 30 deg, resuming brace
    5/10 VBS Dr Luhmann Shriners St Louis
    5/14 stable 4 yrs post-op, 14* T

    also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)

  3. #18
    Join Date
    Mar 2010
    Posts
    2,645
    Please keep us informed. I can safely say we are all with you on this to the best of our abilities. You already "know" what is going on. The MRI will just reveal greater detail that the doctor can go over with you. You wife is one good mama to mention this at his drs. appointment. Be glad you found it now and not later. That gives you a head start that many parents never got the chance to have. Wishing you a good appointment tomorrow.

    Rohrer01
    1985 - Dx w/ painful AIS at 16 with 39* upper LEFT thoracic single curve.
    2000 - 41*
    2010 - 46* (T1 - T6) 38* (T6-L2) Now a double thoracic
    2012 - Dx w/ Cervical Muscle Dystonia.
    DDD L5/S1 with left nerve impingement
    Left SI joint dysfunction

  4. #19
    Join Date
    Mar 2012
    Posts
    6
    Well we found out he has infantile idiopathic rather than congenital. So I believe that is easier to treat. The Dr even said that 20 percent of infants correct themselves with no treatment. But he recommended a brace or a cast. We meet with Shriners on Tuesday. I already feel a great sense of relief.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •