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Thread: JERSEYOT UPDATE: I broke my back - in hospital

  1. #121
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    You can do this Michele! You've been through massive adversity with great courage and I can feel a level of positivety in your post that I'm sure you feel yourself. Just think of it this way: you've got to get through this to get back to healing and getting your life back. So look forward to it as being a giant step towards normality and back to being the mother you want to be and deserve to be. We'll all be barracking for you!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  2. #122
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    Quote Originally Posted by Confusedmom View Post
    -Can they give you something for the anxiety, which is only natural at this point?
    -Who is your surgeon? (Hoping he is a revision specialist!)
    -I know you've got major extenuating circumstances that most of us don't have, but the length of your fusion isn't unheard of on this forum. Maybe it can calm your nerves a little to think of TiEd and the others who are T2 to S1?
    -Do you really have to bank blood? Can anyone else donate for you, so you can be "tanked up" for surgery?
    -You seem to have a strong faith, and that will help get you through.
    Hi there: yes they've given me Valium to take as needed for the anxiety. It helps a little but because it makes me so tired, I can only take it at night when my husband comes home. My surgeon is Dr. Clements from Cooper University Hospital in Camden, NJ. Had I not broken my back in March working with am overly-ambitious home PT, I would've called that surgery a success. But. This break just messed everything up. And absolutely, YES, he's a revision specialist. Actually, he's a scoliosis specialist. He's devoted his career to people like us. I have complete confidence in him and his skills,knowledge and confidence. I just worry about the what-if's and pray that that Hand of God guides HIS hand during surgery and that I come out of surgery better than when I went in.unfortunely, no one I know has my blood type sorts all me when it comes to the blood donations. I'm "tanking myself up" by takings a multivitamin with iron as well as iron every day. And my last blood donation is on the 18th, 12 days before my surgery so it should have little impact on my total blood volume once I go in for it. Also drinking plenty of water and eating a healthy just does that much more to keep my loos levels up prior to surgery. The rest is in Gogs hands.
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  3. #123
    Join Date
    Jan 2006
    Location
    near Philadelphia
    Posts
    1,260
    The very best of luck to you, Michele. It sounds like you've got all your bases covered.

    I literally cringed when I read what your overzealous therapist had you doing at 7 weeks -- obviously you shouldn't have been on the floor at all, but of course you know that now. And it goes without saying that anything you CAN'T do shouldn't be attempted...sorry to lecture but it's critically important not to disturb the alignment of your hips and pelvis for quite a while after surgery. That was my experience, anyway, with a therapist who was very familiar with spinal fusion.

    Best wishes to you!!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  4. #124
    Join Date
    Apr 2012
    Posts
    83

    Prayers prayers prayers

    I have just read your entire thread... Woah... To sum it up... You have got all my prayers headed to you on October 30th. This will work! Positive thoughts (I know difficult after what you've endured) but positive thoughts and visualize you playing with your kids after surgery.... Sending lots of hugs, prayers and positive energy to you!!

  5. #125
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Hi Michele,

    It sounds like you have thought this through and are ready! Lots of prayers coming your way to get you healthy and strong again for your kiddos and yourself!!!

    Best,
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  6. #126
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    HI Michele,
    I know your surgery will be soon. Best wishes for a smooth recovery. I know when the Dr fixed my fracture,it really helped the pain. I hope yours will be better also.

  7. #127
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    Thanks so much Jackie. I really hope the same is true for me as well -- my 5th surgery is just 1 week from tomorrow! Hard to believe. I've found that blogging about the my experience has been extremely therapeutic, on so many levels. Please feel free to check it out sometime. All the best to you. October 30th here I can!
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  8. #128
    Join Date
    Dec 2011
    Location
    Toronto
    Posts
    27
    When I went in for my first surgery about 2 months ago, I was told by the spinal cord monitoring technician that since I had no previous incision at the site, so the first 1.5 hours of the surgery would be just the slow opening up of the surgical site. I was fused from T4 to L4 and had a few missing pedicles, so the surgery was a challenging one. My surgery took 7 hours. I think the challenge with such a long fusion surgery is the surgical time, however I don't think 16 levels would directly mean a very long surgery because its the lumbar levels that I expect to take a longer duration than the thoracic ones because of the size. You will also save some time on the initial opening.
    So what I am trying to say is that don't be focussed on the number of levels, I just hope and wish that this surgery is helpful in removing your pain and fracture.

  9. #129
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    Thanks so much for all of your replies...I do appreciate them. Rajma: thanks so much for your words of encouragement. They are much appreciated. As for the number of levels and the number of fusions we've each had (this will be my 5th and you recently had your 1st - and hopefully it will be your last!) - and the number of levels are not first-time fusion levels for me unfortunately, which complicates things. Once all is said and done, all but my C-spine will be fused. I was previously fused (twice) at those same levels. But back then (1993, 1995) Harrington rods were used. The fusions/revisions I've had this year (which after Tuesday, will total 3 in just 9 months), is "unfortunate but also extremely rare, risky and extensive," according to my surgeon. This surgery on 10/30 (assuming SALLY doesnt cancel it) will be my 5th revision, complicated by a fractured T12 transverse process where i broke clear thru the vertebral bone and the previous bony fusion back in March. My surgeon and I are fully aware that this is my only option (and yes, i sought out 2 other opinions). This is what surgeons call (but would NEVER tell you) a last ditch "salvage surgery"- sounds so awful..."salvage surgery," like they're trying to fix a hopeless cause! But it's not without hope, for me OR my surgeon.

    He has assured me that he will make "every effort humanly possible to repair the fracture and stabilize my very unstable spine with this extensive and risky fusion." Believe me, NO ONE saw this coming or no one could've predicted that 9 months that 9 months later I'd be going under the knife again for what is supposed to be bigger, risker and more complex than the one before! The surgery will not be easy. It is estimated to take 8-10 hours and given the complications with excessive blood loss (I have thin blood), heart and kidney issues which arose from the severe loss of blood volume and hypotension after surgery #2 in January, it is a daunting and quite scary pool to jump into.

    My only real comforts are knowing that: (1) this truly IS my only option and that (2) all the angels in Heaven will be so plentiful in that operating room that there will hardly be room for my surgeon! "Quiet your heart. Quiet your mind. All is well." Im really trying to do that in these last few days leading up to is monumentsl surgery; monumental because there is just soooooo much riding on it's success. it has to help. I can't continue living (or should i say existing) like this. My two very young children deserve their Mommy back, my husand deserves his wife back, and i deserve ME back! I've been 'gone' for far too long. And its time to come back and do my very best to get thru this and emerge for the better for my family and children. That is my prayer. I've worn a bracelet every singke day since this time last year that my 97 year old grandmother gave me as i was preparing mentally for the January surgeries and its says quite simply: "EXPECT MIRACLES!" And I'm praying for one of my own! We are a special kind of people...we scoliosis patients and survivors...we're tough as nails because we've had to make the best of some really difficult and PAINFUL situations. We can get thru anything...I can get thru this...and I will..."All is well..." ---- I'll see you all AGAIN on "the OTHER side!"
    Last edited by jerseyot; 10-30-2012 at 02:33 PM.
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  10. #130
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Michele,you have been on my mind. My prayers are with you as you face this. The surgery alone is huge but now you have a major storm to worry about. I know it is heading that way. I will hope you have the kind of result that I did and you will soon be on the mend. My best to you!

  11. #131
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    You are in my prayers
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  12. #132
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Jerseyot--
    You are one brave lady! We will Expect Miracles! for you but also pray for you and your surgeon and a successful outcome. Can't wait to hear how you are doing. Best wishes and hang in there. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  13. #133
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    Surgery was cancelled yesterday. I have no idea when he will be we will be able to reschedule this...it's been months in the making and he's scheduled thru December. He said he'd do everything he could even if that means canceling office hours - but he said I'm "high priority" and I'm hoping the wait won't be too long. I'm very bummed about it but what can you do?!? No one expected a flippin' hurricane to ruin our plans. So I'll keep you posted as soon as I know anything.
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  14. #134
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Quote Originally Posted by jerseyot View Post
    Surgery was cancelled yesterday. I have no idea when he will be we will be able to reschedule this...it's been months in the making and he's scheduled thru December. He said he'd do everything he could even if that means canceling office hours - but he said I'm "high priority" and I'm hoping the wait won't be too long. I'm very bummed about it but what can you do?!? No one expected a flippin' hurricane to ruin our plans. So I'll keep you posted as soon as I know anything.
    I am so sorry to hear of this. Did you get much damage from the storm?
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  15. #135
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Oh no... I was wondering yesterday if any surgeries were being affected by the storm. I'm so sorry to hear this. You ARE high priority and I feel sure your wait won't be long, but I'm just sorry you have to go through this.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

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