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Thread: JERSEYOT UPDATE: I broke my back - in hospital

  1. #91
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Jerseyot--
    I am so sorry to hear this. The Serenity Prayer is a good place to start. You have many positive thoughts and prayers heading east from here in Iowa. Take care. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  2. #92
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    So very sorry to hear this. You're overdue some good luck soon. There is still hope that it will heal. Meantime, very best wishes and positive thoughts from down under.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #93
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Hi Michele,

    I'm really sorry to hear this latest news--I too hope your back can still heal. I wonder if a bone stimulator would help? It seems like this is one of the situations they are made for.

    Take care,
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  4. #94
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    PS: thanks for all of you who vote (and KEEP VOTING) for my little "bright eyes" - his pic is at the bottom of page 2 now so just look for a cute little baby knowing on a yellow arc. Here's the link! You can vote every 24 hours:

    http://www.childrenseyefoundation.or...ion/photo-page
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  5. #95
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    I am so sorry your vertebrae has not healed yet. Before you let you spine Dr. fuse you all of the way, wouldn't it be a good idea if you were to get a second opinion? You must be so frustrated by now. Do they make bone stimulaters for the thoracic spine? I will say a prayer for you.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  6. #96
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,577
    Here's my good thoughts that you heal. I'm hoping that luck finally comes your way. I'm thinking of you and wishing you the best.

    Whatever happens, you must be one tough cookie and you'll get through it.

    Take care of yourself. You have a big team of supporters that are behind you.

    Hugs, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  7. #97
    Join Date
    Nov 2011
    Location
    Utah
    Posts
    59
    Oh honey! I am so sorry and I totally understand what you are going thru. We are about the same time out. Well from the first surgery in January. And seriously having young kids is exhausting! Getting up and taking care of me is already too much. I want to stay in better communication with you. I feel like you are my twin. lol We about the same age and both a two kids. My boys are 8 and 12 so luckily of for me they aren't as young as yours. So I have no idea how you are dealing with this. I would be losing it big time. Here is my cell if you ever want to talk or text me. Or look me up on Facebook. Search annabelle buchi rowlette. I would love to stay in closer connection with you. I feel like I have none to talk to about this and everyone who has not gone thru this has no idea what I am feeling. They think I am all better! And I should be super mom again. LOL Well I hope to hear from you and be more of a support for you.

    Annabelle

  8. #98
    Join Date
    May 2009
    Posts
    3,745
    hi Michele
    you are in my thoughts and prayers....for the best possible outcome...
    i hope it works out the way you want it to....

    about the voting....it now says a person may vote one time, not every 24 hours...
    i have voted before, but it won't let me vote again....

    jess....& Sparky

  9. #99
    Join Date
    May 2012
    Location
    United Kingdom, Leeds
    Posts
    128
    Quote Originally Posted by jrnyc View Post
    so sad to hear that things are still so difficult, Michele...
    hope they ease up soon....i am so sorry for all your pain...
    i did vote for bright eyes...how adorable he looks!

    Jenna, Michele wrote earlier in the thread that it is a
    "clam shell body brace" that she has

    for your surgery, i have never heard of any surgeons still
    using body casts...maybe they do it differently in England...?

    jess
    Hi Jess,
    Don't remember seeing that earlier in the thread.
    Not sure what type of cast or brace I will have. My surgeon just said it will just protect my incisions and remind me to stay still and straight. I'll find out Wed what it will look like though. I'm kind of glad because I'm hoping it will give me some sort of support and once I can bend a little it will stop me from trying to bend how i'm used to bending.

    Hopefully it wont be too bad
    27 yr old Female.
    Scoliosis since 12yrs, fusion to lower curve in 1998, costioplast 2001 and further corrective surgery 26 July 2012.
    Now the proud owner of a very straight spine. T1- L5 fusion.
    Mr Dunsmuir, Orthopaedic Surgeon, LGI Leeds.

  10. #100
    Join Date
    Nov 2011
    Location
    Utah
    Posts
    59
    How are you feeling? I somehow thought I was talking to you and gave my cell number to someone else I don't know on this forum. THey were a little confused. LOL. But I wanted to check on you. I don't know how you are dealing with all of this. You feeling any better? How are your kids and hubby? Talk to you soon.

  11. #101
    Join Date
    Jun 2011
    Location
    South Jersey
    Posts
    133
    Well for any of you who've been following me and my blog, I thank you and wish I had this earth-shattering wonderful news to share with you all...BUT, after another visit with my orthopedic surgeon, such is not the case. I'm sorry for all of you who have been emailing and PM'ing me....i'm just so completely overwhelmed that sometimes i wish it was a bad dream and i want to wake up in a new life. It doesn't forgive my not replying to you but i hope you accept my apologies and understand.

    Back in March (24th to be exact), I somehow broke my T12 transverse process. I was fitted for a TLSO (a back brace) and spent a month in a rehab hospital getting strong enough to come home. I came home and was doing fairly well but continued with pain of varying sorts. Slowly, "things" started getting harder, my balance was getting worse, my strength seemed to wax and wane. My entire right side from my knee to my shoulder blades started to hurt more and more. But my doctor kept saying "Everthing looked fine" - everything was clearly NOT fine. I fell on my bedroom floor last weekend and my right foot continues to turn purple if I, my leg goes numb when out for breakfast and my right foot is always soooooo much colder than my left.

    Today, the orthopedic surgeon was clearly disappointed to see that the T12 has not healed at this point. It should've healed by mid-May, so by 4 months it most definitely should have healed. It is still broken clear thru side to side, left to right thru solid bone (SEE BELOW: dead-center eye level)

    T12fx.JPG T12fx1.JPG T12fx2.JPG

    So with that news, the only way to fix it and stabilize the spine and vertebrae is to extend the fusion up to T2-3. He would leave the current screws in place in my lumbar spine, add more screws on either side of my spine up until the point at which he was satisfied, remove the current bars on either side of my spine and then place new ones (bars) the entire length of my spine. Sound familiar?? Didn't we just DO this?? Ugh. I often wonder why he didn't do this to begin with but at the time, his answer was "Your thoracic spine is solidly fused at this point so there would be no point in refusing that area."

    So, I don't know...that's where I am...Oh yeah, on Monday my god-father is taking me to have spinal injections into my SI (sacroiliac) joint and tibial nerve under sedation. Thank GOD for sedation, and for poor uncle who will be here at the not-so-bright but very early time of 6am. His hope is that it will help with my leg pain and numbness and my right hip pain. Fixing T12 by fusing all the way will hopefully fix the very painful areas along and just right of my spine. Dear Lord, I pray it works.
    Last edited by jerseyot; 07-27-2012 at 07:12 PM.
    1993/1995: PSF w/ Harrington rods T3-L4
    Jan. 24, 2012: ALIF of L4-L5, L5-S1 w/ cage spacer and BMP
    Jan. 31, 2012: PLIF of L1-S1 w/ pelvic anchors
    Scheduled Nov.15, 2012: Fusion T2-S1 w/ pelvic anchors to fix T12 fracture
    http://i31.photobucket.com/albums/c3...ot/myback2.jpg - BEFORE
    http://i31.photobucket.com/albums/c3...CT2342x406.jpg - AFTER
    http://i31.photobucket.com/albums/c3...CT1410x229.jpg - AFTER
    www.jerseyot.blogspot.com

  12. #102
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    I am so sorry this has happened to you. Have you thought about getting a second opinion? I guess I don't understand why you would need to be fused all the way to T2-T3 when the problem is at T12. Maybe I am missing something. My thoughts and prayers are with you.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  13. #103
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Hi Michele,

    I am SO sorry to hear this disappointing news, too. I can somewhat relate since I had to undergo a major revision 6 months ago for broken rods, and yes, I remember thinking "didn't we just DO this?"

    I agree with Sally that a second opinion seems like a really good idea. I too don't see how refusing your already fused thoracic will fix this difficult-to-heal fracture, especially with him recommending to go up so high into the thoracic. I was also wondering if a bone growth stimulator would help?

    Best of luck with your injection procedure coming up, and I truly hope you can get some pain relief. This has been such a long, painful haul for you, you really deserve some relief. Thanks for keeping us updated.

    Take care,
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  14. #104
    Join Date
    May 2009
    Posts
    3,745
    hi Michele
    i am so sorry to read that you will need more surgery...
    i was hoping for the best for you....but am nt surprised that it
    didn't heal right....i hope and pray this surgery will be the last
    you ever need....

    i had great results from SI injections....
    i only stopped them after i was given too much steroid, and
    it caused my cortisol level to plumet to nearly zero....
    it caused mono like exhaustion....took 6 months to come back from...
    all doctors should be taught that such a thing can happen....
    but i am sure you will be fine...and i hope you get the huge pain
    relief that i got from SI shots...
    something about the location of the injections....they were the ONLY shots
    that ever gave me relief from pain, and i had tried just about every
    kind of shot there is....
    nice that they are going to give you sedation...never heard of that before...

    i keep you in my thoughts...and i hope you will be living pain
    free in the future....you hav suffered so much....i am so sorry for
    all your pain....

    jess...& Sparky.
    Last edited by jrnyc; 07-28-2012 at 08:12 PM.

  15. #105
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,707
    Michelle,
    My heart goes out to you. I am so sorry that you are needing another surgery. Could Linda recommend a surgeon who could at least look at your x-rays and make a recommendation or do you have total confidence in your surgeon?
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

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