Results 1 to 12 of 12

Thread: pulmonary problems, post polio

  1. #1
    Join Date
    Apr 2011
    Posts
    19

    pulmonary problems, post polio

    I am headed for surgery on 6/6 and 6/8 with Lenke. I had prior surgeries in the late 80's with Moe and Winter. My surgery is very high risk because of my pulmonary failure. I would love to hear some stories.

  2. #2
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    I don't have a story to tell about being "high risk" but just wanted to say I wish you all the best with your upcoming surgeries and from what I gather, you're in great hands with Dr. Lenke who is apparently one of the best scoliosis surgeons out there.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  3. #3
    Join Date
    Jan 2011
    Posts
    197
    Quote Originally Posted by Elisa View Post
    I don't have a story to tell about being "high risk" but just wanted to say I wish you all the best with your upcoming surgeries and from what I gather, you're in great hands with Dr. Lenke who is apparently one of the best scoliosis surgeons out there.

    This. Thinking of you!
    Female, age 38
    4 years of bracing, concluded at 42*upper/38*lower
    currently 64*upper/40*lower
    Fused T3-L4 on Feb 23 2011
    now 32*upper/18* lower

  4. #4
    Join Date
    Apr 2011
    Posts
    19
    Thank you for your response. I am very anxious. In fact, starting to respond has just shot my anxiety higher. I know that Lenke is great and that he has a good team but my pulmonary function is very bad and I am 68. I am doing this because it offers some hope. I had a bad fall a couple of years ago and my back just started to collapse and my pulmonary function followed.

  5. #5
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Maybe you can explain the respiratory issue more b/c I'm not sure what exactly the problem is.

    Did I dream this, or did I read that you're having 'halo' treatment? Been so busy since we got back from Portland and trying to remember others' details is hard.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  6. #6
    Join Date
    Apr 2011
    Posts
    19
    I will be in halo traction for 10 days prior to surgery. I was in halo traction in the 70's before my 1st surgery and I wore a halo cast after my surgery. Although my spine is fused, Dr. Lenke thinks that a period of time in traction will aid the surgery.
    I have progressive weakening of my breathing muscles do to polio. My vital capacity (lung volume) is 36%. I have too little O2 and too much CO2. It is a fragile balance. I don't expect to die during surgery, but taking me off of the ventilator could be tricky.

  7. #7
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks for explaining and am glad I didn't just dream up the "halo" thing b/c I do tend to think about that a lot since it's still so fresh in my mind from my son's experience. ;-)
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  8. #8
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    Low pulmonary function

    Before this type of surgery consultations with the anesthesia team and pulmonologist always take place. A plan is then made just for you. With the spine straightened there is more room for the lungs to expand. Special care is taken to "wean" a person off the ventilator post surgery. In your case it might take a few days rather than hours. Pain relief is most important because, with too much pain a person cannot breathe properly. Being in the ICU is normal and a good safety plan. I definitely, after your surgery, would stay in a rehab hospital for extra pulmonary care and don't go home too soon.

    By the way, if you must be on a ventilator a little longer, don't worry, they will give you some medication to make you indifferent to the whole thing while keeping you safe.

    I trust, you are having this done at a large medical center???
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  9. #9
    Join Date
    Apr 2011
    Posts
    19
    Thank you, Karen. I am having this done with Dr. Lenke at Barnes Jewish in St. Lewis. I plan to call you but I have had many appointments.

  10. #10
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    Hi,

    I just wanted to point out that one of the patient stories on Dr. Lenke's website is that of a post polio patient, "Lynn B". I wonder if the office might put you in touch with her if you expressed interest.

    http://www.spinal-deformity-surgeon....oliosis/7.html

    I wish you all the best in your upcoming surgery!
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  11. #11
    Join Date
    Apr 2011
    Posts
    19
    Thank you, Kathy. She has a wonderful story.

  12. #12
    Join Date
    Oct 2012
    Location
    Burlington VT area
    Posts
    28
    I know I'm late posting this, as I'm new to the site. However, I hope all went well with your surgery. I just wanted also for you to know that there is a whole generation of us out there, getting older now, who know that "scoliosis" and "post-polio" belong in the same sentence.

    From people of my generation who had scoliosis, I remember hearing, "Maybe I had polio and didn't know it." Thank goodness polio is close to off the map now.

    Aunt M.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •