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Thread: Would My Spine Be Useful For Research?

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  1. #1
    Join Date
    Mar 2012
    Posts
    10

    Would My Spine Be Useful For Research?

    I am new here, and this is my first post.

    I am a 58 year old male with severe kyphosis, technically kyphoscoliosis, but the kyphosis outweighs the scoliosis by a long shot. Treatment is not an option.

    See http://www.flickr.com/photos/77824735@N03/6971001285/

    Would there be any organizations that would get value if I donated my body to research? If so, what institutions would be best to donate it to. I'm not planning on dying any time soon, but wanted info for estate planning purposes.

  2. #2
    Join Date
    Jul 2011
    Posts
    535
    Welcome to the forum. Who told you treatment is not an option? I've seen more severe curves/kyphosis where Dr. Lenke in St. Louis was able to drastically improve patients' conditions. Dr. Lenke only works with the most severe of the severe. Please explore his site http://www.spinal-deformity-surgeon.com/ and in particular, click on the Patient Stories tab.

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    Woah....I feel your pain....

    They can fix you you know.....you need the right team. They do amazing stuff these days. It would be worth e-mailing your x-ray to UCSF, Dr Lenke or any other extreme deformity center.

    Welcome to the forum
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Jul 2011
    Posts
    535
    Quote Originally Posted by titaniumed View Post
    Woah....I feel your pain....

    They can fix you you know.....you need the right team. They do amazing stuff these days. It would be worth e-mailing your x-ray to UCSF, Dr Lenke or any other extreme deformity center.

    Welcome to the forum
    Ed
    Hi Ed

    I see your preop measurements in your signature, can u share your postop measurements too?

    Warmly
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    Doreen

    You know, I never asked. I didnít think it mattered much, was just happy to come out so well.

    If you look at them, you can zoom.....my Lumbar looks like a 25 or 30.

    Both of us are missing the one screw at around T7, isnít that interesting? Since that level was quite a wedge, they didnít have clear trajectory.

    I have 5 Peek plastic spacers in my Lumbar...you cannot see them as Peek doesnít show up on x-rays.

    Glad to see you doing well.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Jul 2011
    Posts
    535
    Quote Originally Posted by titaniumed View Post
    Doreen

    You know, I never asked. I didn’t think it mattered much, was just happy to come out so well.

    If you look at them, you can zoom.....my Lumbar looks like a 25 or 30.

    Both of us are missing the one screw at around T7, isn’t that interesting? Since that level was quite a wedge, they didn’t have clear trajectory.

    I have 5 Peek plastic spacers in my Lumbar...you cannot see them as Peek doesn’t show up on x-rays.

    Glad to see you doing well.

    Ed
    Are you saying I'm missing a screw at T7? I double checked my xrays as there are some sets that I did not post and can see screws at every level. Maybe the xrays I posted didn't show the entire length of my fusion, but I see them. It is a wonderful thing to be on the other side for sure! :-) I hope gonzorini reaches out to either UCSF or Dr. Lenke to see what his options are.

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

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