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Thread: Surgery Next Week!

  1. #31
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,973
    Evelyn

    You sound fantastic! Are you back home?

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #32
    Join Date
    Jul 2011
    Posts
    535
    Quote Originally Posted by Confusedmom View Post
    Hi guys, I'm back! I'm in that study, too. If it's the one I think, you have to have 80+degree curves to qualify.

    Anyway, one point I'll add about pre-op jitters. Mine never did go away. But I kept reminding myself what would happen if I didn't have the surgery. Most likely debilitating pain, possible osteoporosis (I have osteopenia now), and who knows whether I would have gotten a second chance with dr. Lenke. Then there were all the scheduling nightmares to consider.

    Honestly, I was in tears up until the point where they put me under (and I'm not normally a cryer), but deep, deep down, I guess I just resigned myself to the fact that it had to be done. The good news is, the surgery itself is easy. You don't feel them putting you under, and then you wake up several hours later with someone telling you tommove your toes. I'm not sure how much all this helps, except to say: think about the risks you would be taking by NOT having the surgery.

    Best wishes,
    Evelyn
    Hi Evelyn

    Are you home yet? I hope so. The Lenke study I'm in is to gauge how patients respond to either having surgery or not having surgery in terms of how their pain changes or doesn't change. I did not have 80 degree curves so maybe u are in a different study?

    Welcome to the other side!

    Warmly
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  3. #33
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966

    Yes, it's me!

    Hi all,

    Yes, it's me and I'm home!!!!!! I tried to post a big, long blow-by-blow of everything that happened. But between me working on an iPhone (can't sit up for long yet) and all the post-op medication, I think I never got it posted. Anyway, long story short I am home and doing well. I am in pain, especially sitting, but coping. Doing my little walks, taking my meds, stretching my legs, using the spirometer and napping a lot. I will write a longer message on my usual thread when I am up to it. Nap time now.

    Btw, I did get 1.5 inches taller. Now if I could just get rid of that 4-5 months pregnant look. Oh, and washing the hair might help, too.

    I want to figure out how to change my username to "straightenedoutmom." what do you think?

    Best,
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  4. #34
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Glad that you are home and are doing OK
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #35
    Join Date
    Oct 2011
    Posts
    13
    Suzanne,
    I've been thinking about you the past several days, wondering how you're doing with the anticipation. Let us know how you are!
    Betsy
    Betsy age 55
    Atlanta
    Milwaukee brace 1966-1972
    Surgery April 17, 2012
    fuse T4-sacrum & osteotomy

  6. #36
    Join Date
    Oct 2011
    Posts
    13

    to Rockycarm

    Quote Originally Posted by rockycarm View Post
    Hi All,

    I was just reading all of your posts and thank you too for your input. Today I received my appointments for pre-op testing, mri, ekg, pft, bone, density, blood donation. I am scheduled May 16th and have been doing fairly well up to this point. Seeing this I think has put me over and feeling a bit emotional right now. I have been really trying to stay positive and thought I was until today. HELP! Will I feel like this to the day of? How do I get that calm feeling. I am spiritual and have been praying quite a bit which has helped. I don't want to be an emotional mess.
    How are you doing after the weekend? I'm scheduled for April 17, so hopefully in early May I can tell you something that will help. For now I'm so caught up in preparing my house, (maybe that's to keep my mind busy, too)it's almost like I've forgotten what I'm preparing for. I think I've convinced myself I'm arranging the house for someone else!
    Each step, like when I realized it was only 4 weeks away, or when I got the FMLA paperwork from my HR person, I felt sick. I picture myself with knees too weak to walk into the hospital. At the same time I'm anxious for it to be over. Enough worry already! We've decided it's the best thing to do, so look ahead, and look forward to getting stronger.
    Betsy
    Betsy age 55
    Atlanta
    Milwaukee brace 1966-1972
    Surgery April 17, 2012
    fuse T4-sacrum & osteotomy

  7. #37
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,952
    Hi...

    I think they're two separate studies. The 80 degree + study is probably ScoliRISK-1 and the other one sounds like the Multicenter Prospective Study of Quality of Life in Adult Scoliosis (ASLS).

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  8. #38
    Join Date
    Jun 2006
    Location
    Texas
    Posts
    137

    Twisted RN are you online yet?

    Hi, just following this thread, we're going all over the place it seems, but I was wondering if TwistedRn is back home? Is your name Evelyn? I don't remember seeing your name on your posts! well I bet you're still in the hospital, I hope your husband logs on and gives us an update! (And how is your puppy?)

    BTW TiEd, loved the three stooges ! U r crazy! ;D Jamie
    57 years old.
    thoracic curve 68 degrees
    lumbar-sacral curve +/- 41 degrees
    Cspine C3- C7 fusion Nov. 2011 <done! success!!>, then scoli surgery T2- L4 or maybe to sacrum.
    Discogram/ myelogram pending. Surgery to be scheduled, maybe fall 2015. <scared but I know this is not going to get better>
    THANKS TO EVERYONE FOR SHARING EXPERIENCES AND KNOWLEDGE!

  9. #39
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Evelyn--
    So glad you are on the other side and home! Sounds like things sound pretty typical so far. Take care and have a smooth recovery. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  10. #40
    Join Date
    May 2009
    Posts
    3,745
    hey "straightened mom"
    welcome home..congratulations...
    wishing you an uneventful and smooth recovery....

    jess...& Sparky

  11. #41
    Join Date
    Oct 2011
    Posts
    13

    to Rockycarm

    Quote Originally Posted by BetsyK View Post
    How are you doing after the weekend? I'm scheduled for April 17, so hopefully in early May I can tell you something that will help. For now I'm so caught up in preparing my house, (maybe that's to keep my mind busy, too)it's almost like I've forgotten what I'm preparing for. I think I've convinced myself I'm arranging the house for someone else!
    Each step, like when I realized it was only 4 weeks away, or when I got the FMLA paperwork from my HR person, I felt sick. I picture myself with knees too weak to walk into the hospital. At the same time I'm anxious for it to be over. Enough worry already! We've decided it's the best thing to do, so look ahead, and look forward to getting stronger.
    Betsy
    I thought later that sounds a little harsh: "Enough worry" - I'm not saying that to you as much as that's what runs through my head. (You know that OTHER little voice that argues with you?) If we can just make it to surgery day, then the day after, and the week after...... everything will be much better! (there goes that voice again)
    Betsy age 55
    Atlanta
    Milwaukee brace 1966-1972
    Surgery April 17, 2012
    fuse T4-sacrum & osteotomy

  12. #42
    Join Date
    Jul 2011
    Posts
    535

    Surgery Updates

    Suzanne asked me the other day to share her hubby's updates...

    Kevin said the surgery is going as planned and is expecting another update soon.

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  13. #43
    Join Date
    Jul 2011
    Posts
    535
    Kevin rec'd another update; almost all the screws are in and proceeding normally.
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  14. #44
    Join Date
    Jul 2011
    Posts
    535

    Out of Surgery

    Kevin said Suzanne came through with flying colors and total surgery time was less than 7 hours. Suzanne was talking quietly, but swollen and tired and then was sleeping at 6:30p. Dr. Bridwell had a minor concern related to her lower back so Suzanne will not be standing tomorrow but will stay on her back for 24 hours. If all looks good tomorrow, she will get into the standing/stepping schedule.

    Thanks for all of your thoughts, prayers, and support.--Kevin
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  15. #45
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Suzanne--
    Sounds like you are doing quite well. Hang in there and just heal and recover! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

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